Alpha 1 Association

Rating: 0 stars   0 review

Issues: Health, Cancer

Location: 2937 Sw 27th Avenue Ste 106 Miami FL 33133 USA

Mission: Alpha 1-antitrypsin deficiency (AAT deficiency), also referred to as alpha 1, is a relatively common genetic disorder characterized by low levels of alpha 1-antitrypsin (AAT), a protein found in the blood. This deficiency manifests most commonly as lung disease, less commonly, as liver disease, or more rarely, as a skin condition called panniculitis. Prevalence, as determined by population based screenings, suggests 80,000 to 100,000 Americans have severe AAT deficiency or approximately 1 in 3,000 individuals. Given this high prevalence, it is surprising that many in the medical community perceive AAT deficiency to be rare. 95% of those estimated to have AAT deficiency have been not been identified. The Association is dedicated to the identification, control and cure of alpha 1 antitrypsin deficiency. We expect to achieve that aim through our education materials and programs, connection with support groups, and providing advocacy efforts at a national level.
Write a Review
Invite people to share their experience with this nonprofit!

Filter Reviews by Role

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on

Community Reviews

There are no reviews yet. Be the first to review this nonprofit!