Alpha 1 Association Overview
Prevalence, as determined by population based screenings, suggests 80,000 to 100,000 Americans have severe AAT deficiency or approximately 1 in 3,000 individuals. Given this high prevalence, it is surprising that many in the medical community perceive AAT deficiency to be rare. 95% of those estimated to have AAT deficiency have been not been identified.
The Association is dedicated to the identification, control and cure of alpha 1 antitrypsin deficiency. We expect to achieve that aim through our education materials and programs, connection with support groups, and providing advocacy efforts at a national level.
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