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Nonprofit Overview

Causes: Health, Medical Research, Public Health

Mission: The Preeclampsia Foundation reduces maternal and infant illness and death due to preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving healthcare practices. We envision a world where preeclampsia no longer threatens the lives of mothers and babies.

Results: 700 active volunteers trained in awareness-raising, patient support and education, including online forum moderators http://www.preeclampsia.org/forum/ 2,250 stories shared by survivors and/or their family members 38 cities hosting the Promise Walk for Preeclampsia across the US in 2014 http://www.promisewalk.org/ 5,000 new visitors to our website every day 140,000 patient education brochures and materials distributed to clinics, health centers, and provider offices 500 health care providers educated through in-person and online CME/CEU courses and symposia over the past three years $550,000 in research funding awarded to date 5,000 participants recruited for research studies http://www.preeclampsiaregistry.org/

Target demographics: reduce maternal and infant illness and death due to preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving healthcare practices.

Geographic areas served: Globally

Programs: Educate, support and empower women – and their friends and loved ones - on the warning signs, long term consequences and medical understanding of preeclampsia, including their need to get timely, appropriate care. Increase public awareness of preeclampsia, including raising global attention on this devastating maternal-fetal health issue. Enable professional training, resources and research to improve the clinical practices of health care providers. Fund and advocate for research and improved policies to meet critical gaps in scientific knowledge and inspire new thinking.

Community Stories

18 Stories from Volunteers, Donors & Supporters

Kristen88

Volunteer

Rating: 5

I first learned about The Preeclampsia Foundation because I was looking for some support postpartum after I suffered through Preeclampsia. I had my daughter at 34 weeks because of it, and she was in the Special Care Nursery for 24 days. The Foundation is fundamental in helping find a cure for preeclampsia and other hypertensive pregnancy disorders. I had volunteered in 2016, and now I am a co-coordinator for one of the Promise Walks!

Review from Guidestar

Leila T.

General Member of the Public

Rating: 5

I was diagnosed with Preeclampsia in 2012. I had briefly heard of the word as a Dietitic student and did not know anyone who have had it. Suddenly, laying in that hospital bed, I was googling like crazy and came across the Preeclampsia Foundation. I joined the forum, read through conversations, and entered my worries for others to see. My daughter came in at 3 pounds 4 ozs at 31 weeks, and spent 6 weeks in the NICU. The moments away from her, I kept coming back to the site, kept reading, and researching; anything that would help me figure out what happened, why, and how it could be preventable. In 2016, I gave birth to another premature baby - a son, who was born at 34 weeks, and weighed in at 5 pounds, 4 ozs. I wasn't as afraid with the diagnosis this time around. Over the years, I somehow found myself in the center of all these stories from women who had preeclampsia. The first place I always tell them to look at is the Preeclampsia foundation site. They do so much with spreading awareness, keeping those of us who want to know in the loop about new research findings, clinic trials, etc. One day, we'll get to a place where Preeclampsia can be prevented and treated. I'm just so grateful that there are lovely people out there that share their stories, so I don't have to feel alone in mine! Thank you, for all that you do!

Review from Guidestar

Board Member

Rating: 5

After my son died due to an overlooked preeclampsia, they answered all my questions marks I had about his dead. What doctors were not telling me to cover their negligence .

Review from Guidestar

1 Joy V.

Volunteer

Rating: 5

I first encountered the Preeclampsia Foundation a few weeks after delivering my baby girl in 2013. I had undiagnosed severe preeclampsia and went through hell at the hospital. The web site was terrific and informative. And on Facebook, I noticed how communicative the foundation was with women--I'd ask a question and within minutes it would be answered by a real person.

Months later, I decided to apply for a spot on their volunteer patient advisory council. We help the foundation keep its focus on being patient-centered, and they frequently ask us to evaluate information for them to make sure it's keeping in line with what real women encounter when enduring preeclampsia.

What has impressed me most about the Foundation is how they do SO MUCH with a tiny staff. I've worked for a large non-profit (500+ staff) and the Foundation feels as equally productive, with a staff numbering I believe around just 10 people.

Preeclampsia can be a devastating disease--for both mom and baby--and healthcare providers don't always respond with prompt, accurate treatment. The Foundation is a beacon for helping us get better maternal care, and keeping us informed.

Review from Guidestar

1 Rachel200

Volunteer

Rating: 5

Research and funding is important for this foundation. I'm a survivor of preeclampsia but my baby girl wasn't. Knowledge is key. If more awareness was made available to me my story with preeclampsia would be so different. Help others improve their story. Preeclampsia shouldn't kill .... meet my daughter Courtney a victim of my illness

Review from Guidestar

1 Wendy L.

Client Served

Rating: 5

The Preecclampsia Foundation has been a most valuable and trusted resource for me since April 2008 when I suffered and thankfully survived a severe bought of post partum eclampsia. Six days after my twin boys were born, I was back in the hospital, suffering a seizure and many of the other effects of this horrible condition. In the months follwing my release from the hospital, I struggled physically and emotionally with the lingering effects and looked to the Foundation for support, guideance and understanding. The honest information, helpful volunteers, and sense of community that the Pre-eclampsia Foundation have provided have helped me and many others more than words can express. The Foundation has also been an incredible resource for my husband by giving him a unqiue perspective on what I was feeling and going through. I look to the foundation for support with ongoing physical issues I still experience. It is also the first place I direct people to when they want to learn more about this serious and often fatal condition, which takes away too many moms and babies away from their families.

1 kallynsmom

Volunteer

Rating: 5

I found the Preeclampsia Foundation in 2008 after my daughter was born 7 weeks early because of Preeclampsia with HELLP. The foundation gave a answers to what happened to not only myself but my daughter as well. I felt that there were people out there that knew how I felt and could help me turn this negative into a positive. I now am holding my 3rd Promise Walk for Preeclampsia this year. I have made the Preeclampsia Foundation a part of my family, and I try to spread there information everyday in the hopes that I will save lives!

Jenette Z.

Volunteer

Rating: 5

When I lost my son due to Preeclampsia, I went out to look for resources on how this could happen. After a month or two I found Preeclampsia Foundation. They helped me understand the disorder and grieve for my son in the forums. I dedicate my time now in helping raise awareness. I also hold an annual fundraiser and give the proceeds to the foundation.

Rebecca C.

General Member of the Public

Rating: 5

I found the PF after my experience with pre-eclampsia and HELLP Syndrome in 2006. It is an absolutely great place to gain, and give, support to those affected by these complications of pregnancy. It is truly a second family.

Donor

Rating: 5

The Preeclampsia Foundation has been an invaluable resource for me in finding the research and emotional support I needed to become better able to tell my story as a survivor of preeclampsia and HELLP Syndrome. I've been involved with the Foundation several years with 2009 and 2010 being my most active yet.

In addition to being a donor, I also volunteer my professional expertise as a newsletter beat editor and providing guidance on matters related to fundraising.

The webiste has proved invaluable in creating linkages between survivors, letting them know that while each story is unique that they are not alone.