Oxalosis and Hyperoxaluria Foundation

Rating: 4.91 stars   22 reviews

Issues: Health

Location: 201 E. 19th Street, 12E New York NY 10003 USA

Mission: The Oxalosis and Hyperoxaluria Foundation (OHF) is a voluntary, not-for-profit health organization established in 1989 under IRS Code 501(c)3. The OHF was founded in 1989 to seek the cause, improve the care and treatment and discover a cure for Oxalosis, PH and related stone disease. Since then, the OHF has been and continues to be a global leader throughout the PH community. The OHF helps educate and provides support to patients, professionals and the public to better understand Oxalosis, PH and related stone disease. All programs are supported by contributions from individuals, commerce and industry, unions and foundations, clubs and organizations, and bequests and memorials. Contributions are tax-deductible within the limitations prescribed by the Internal Revenue Code.
Target demographics: all affected by Primary & Enteric Hyperoxaluria
Direct beneficiaries per year: hundreds of children and adults throughout the world.
Geographic areas served: all parts of the World
Programs: research grants, education, awareness and advocacy.

2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

My son was diagnosed in1987 when no one knew anything about the disorder. The doctors encouraged me to call OHF I did and I have spent hours on the phone with the staff telling me what we needed to do and telling me to be an advocate for my son Joshua. I have learned so much from them and they have always been there for us. I lost my son a little over a year ago but still stay involved with OHF because these people mean so much to me and I do believe one day there will be a cure.

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Rating: 5 stars  

OHF is an excellent organization that helps bring funding and attention to a condition that affects a small population in a very severe way. OHF provides a voice for those that otherwise wouldn't have one.

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Rating: 5 stars  

My son was diagnosed 11 years ago with PH1. His doctor told us to connect with OHF.org I spent hours if not days on the website absorbing information and connecting with other families who child(ren) had the same disease. OHF provided a soft landing with open arms and hearts when our life was turned upside down. LOVE OHF.

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Rating: 5 stars  

my son has ohf, and this site is a awesome place to get info. ask ? and get answers. we love this site. And knowing we r not alone fighting this battle. t.robbins

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Rating: 5 stars  

We LOVE OHF! It's our main source of information about our son's Hyperoxaluria! We send our family and friends to OHF to learn more and help us support and understand all who have been diagnosed with Hyperoxaluria! Thank you OHF non-profit for being an amazing source of information and guidance!!

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Rating: 5 stars  

OHF is a wonderful small non-profit organization that provides guidance, awareness, information and research dollars to PH patients and information to their family and friends. I am personally involved with three beautiful children who suffer from this rare generic disease. I am so happy there is an organization out there that is so so knowledgable on information regarding Hyperoxaluria especially after learning that many doctors know little about this rare disease. I am so glad OHF is out there to refer my family and friends to for information.

If I had to make changes to this organization, I would...

none I can think of at this time except to make people aware of what they do through postings and Ads in publications.

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

OHF is my go-to for information on Hyperoxaluria. It is also the site that I refer my family and friends to when they want to know about my son's condition. Everyone I have talked with at OHF has been very kind and supportive.

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Rating: 5 stars  

Three words -- Saved. My. Life.

Great organization that is committed to patients. They are very responsive and helpful to patients.

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Rating: 5 stars  

The OHF is an amazing organization that provides me with information and guidance when my daughter first diagnosed with PH1. Oxaluria and Hyperoxaluria conditions being so rare it is great to have a place to go to get support and information. I love seeing up to date info on this group of disorders as well as the inspirational quotes on facebook daily.

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Rating: 4 stars  

OHF is a great small organization that works extremely hard to raise awareness of PH and much needed research monies for PH suffers. PH is a very rare genetic disease that even many doctors have never heard of and OHF is working hard to change this. They are extremely helpful and there to help you at any time. Also very active in getting government grants to help fund research as well as hold many events to raise dollars. Very lucky to have them fighting to find a cure for PH suffers!

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