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NATIONAL UREA CYCLE DISORDERS FOUNDATION Overview
Our mission is to save the lives of children and adults suffering from the catastrophic effects of UCDs. We do this through REACH:
Research: Stimulating research for new treatments and a cure.
Education: Providing information on treatment and management to both medical professionals and affected families.
Awareness: Raising awareness so that no child or adult goes undiagnosed.
Community: Providing support for all those affected.
Hope: Together, we WILL conquer urea cycle disorders.
Recipent of 2010 Child Neurology Foundation Advocacy Award of Merit, recognizing outstanding achievements on behalf of children with developmental and neurological disabilities.
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Hello my name is Christine and I was diagnosed with OTC at the age of 3 1/2 when I ended up in a coma on my mother and now 33 years later I find an organization and people who are just like me and to know that there is someone who understands what we as UCD patients are going through is great. I ...
I would like to thank NUCDF for their great help in a difficult moment for me and my girlfriend's family when we had to deal with cases of OTC disorders. Cynthia was absolutely fantastic, competent and patient to answer all the questions and provide us many useful suggestions to deal with this ...
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My daughter was diagnosed with a UCD at 6 months old. In m country, NOBODY knew very well what this was or how to treat it. I contacted NUCDF to learn a bit more about UCD´s, and now, I cannot imagine what it would be of my daughter and me without their support. NUCDF gave us all the info we needed...
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