NATIONAL UREA CYCLE DISORDERS FOUNDATION
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Geographic areas served: International
Mission:
Our mission is to save the lives of children and adults suffering from the catastrophic effects of UCDs. We do this through REACH:
Research: Stimulating research for new treatments and a cure.
Education: Providing information on treatment and management to both medical professionals and affected families.
Awareness: Raising awareness so that no child or adult goes undiagnosed.
Community: Providing support for all those affected.
Hope: Together, we WILL conquer urea cycle disorders.
Research: Stimulating research for new treatments and a cure.
Education: Providing information on treatment and management to both medical professionals and affected families.
Awareness: Raising awareness so that no child or adult goes undiagnosed.
Community: Providing support for all those affected.
Hope: Together, we WILL conquer urea cycle disorders.
Results:
Recipent of 2010 Child Neurology Foundation Advocacy Award of Merit, recognizing outstanding achievements on behalf of children with developmental and neurological disabilities.
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ximena
10/03/12
My daughter was diagnosed with a UCD at 6 months old. In m country, NOBODY knew very well what this was or how to treat it. I contacted NUCDF to learn a bit more about UCD´s, and now, I cannot imagine what it would be of my daughter and me without their support. NUCDF gave us all the info we needed...
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jillf
09/26/12
I first heard about NUCDF 12 years ago when my son was diagnosed with a different rare disorder that also has hyperammonemia. The executive director was very helpful in explaining hyperammonemia to me and sending us in the right direction. A couple years later, I started a non-profit with other ...
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Kim_41
09/25/12
My experience with the National Urea Cycle Disorders Foundation has been an absolute godsend! My son has been recently diagnosed with OTC and I had never heard about OTC. The dietitian at the Children's Hospital suggested this site to me and I thank God that she did! It has absolutely been the ...
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