Joanne Pang Foundation

Rating: 5 stars   12 reviews

Issues:

Location: PO Box 320636 San Francisco CA 94132 USA

Mission: The mission of Joanne Pang Foundation (JPF) is to sponsor the first nonprofit, public cord blood bank in Northern California (Northern California Umbilical Cord Blood Bank or NCUBB) at the UCSF Children’s Hospital to provide life-saving therapeutic treatment for the patients with various cancers, genetic diseases, immune system deficiencies, and blood disorders in San Francisco Bay Area and worldwide. While the bone marrow and the umbilical cord blood both possess the life-saving stem cells, the advantages of the cord blood could be summarized as follows:  • A rich source of stem cells • Less stringent matching criteria (For a bone marrow transplant, a minimum of 5/6 match is a must. For a cord blood transplant, a low 3/6 match would work) • Less risk of graft vs. host disease (GVHD) • Less risk of viral infections (baby stem cells are less infected with various viruses) • Easily available within 72 hours (if the cord blood unit is already stored in the cord blood bank) • Collected non-invasively In most births today, cord blood is disposed of after a baby is born. Once this cord blood bank is established, parents giving birth will have the option of donating this gift of life at no cost to them.  In addition to establishing the NCUBB, the JPF is dedicated to promoting education and awareness of these grave diseases, supporting the advancement of clinical research and providing patient assistance and family support.
Results: The Joanne Pang Foundation has been working with the UCSF Children’s Hospital to develop a comprehensive business plan for the establishment of a nonprofit, public umbilical cord blood bank. The written plan is available upon request. Since the launch at the footsteps of the San Francisco City Hall in November 2007, the JPF has spearheaded with various education and awareness campaign and presented the NCUBB project to many organizations within the San Francisco Bay Area.  We have received staunch supports from the board of supervisors of the City of San Francisco, Congresswoman Jackie Speier, State Senator Carole Migden, State Assemblywowan Fiona Ma, San Francisco Health Department Director Dr. Mitch Katz, etc. The JPF has developed a five minutes documentary “A New Kite in the Sky” on Joanne Pang Family’s journey of faith, hope and love and it is available on YouTube. Her brave story of battling leukemia is also available in a book titled “See Daddy! That’s the New Kite.”
Target demographics: The umbilical cord blood stem cells once collected and stored by NCUBB would be able to treat patients with various life-threatening diseases, including a wide range of cancers, genetic diseases, immune system deficiencies, and blood disorders in the San Francisco Bay Area and worldwide.  If established, the NCUBB would be the first nonprofit, public cord blood bank serving San Francisco Bay Area, especially the various ethnic communities where the number of bone marrow donors is statistically inadequate to warrant a chance of life-saving treatment for the patients with various terminal diseases.
Direct beneficiaries per year: In the preliminary business plan for the NCUBB project outlined by the UCSF Children’s Hospital, it projects that approximately 22,000 umbilical cord blood units could be captured after the program is initiated. This means that many more patients in need of critical transplant could potentially be saved with the cord blood units from NCUBB.
Geographic areas served: San Francisco Bay Area, California, the United States of America, Worldwide.

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Community Reviews

Rating: 5 stars  

As a committed supporter and board member of the Joanne Pang Foundation for the last five years, I fully support the important work of the Joanne Pang Foundation Cord Blood for Life program. Joseph Pang did not want any other parent to experience the devastating loss of a child due to an illness where a life saving treatment may have been available. Umbilical cord blood, discarded as biological waste, is a rich source of stem cells has been used to treat seventy blood diseases since 1988. With the documented shortage of ethnically diverse and mixed race cord blood units in the national registry, the Bay Area, and California in general, are an ideal location to collect cord blood units. The JPF launched the first public cord blood collection program, at no charge to donors in the Bay Area on January 19, 2011 and since then has consented almost 200 donors, overseen the online training of 135 OB physicians and practitioners at 28 California hospitals. All this work was done with the dedicated financial support of individual donors and grantors. I urge you to support this organization.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

The JPF has done more for public cord blood collection in the San Francisco Bay Area than any other organization. All eligible donors are able to donate their baby's cord blood at no cost. All units collected and banked are entered into a global database and are accessible to any matched patient. The diversity of the Bay Area lends itself perfectly to increasing treatment opportunities for minority and mixed-race patients suffering from blood diseases or disorders.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

I have worked with some of the board members. Their idea to help save lives is so simple, through cord blood donation. A cast-off that can be used for those who suffer from certain cancers. They have been creative and so fortuitous with their mission and their purpose. It's inspiring and exciting to see. They are making such headway. Those who take part and contribute to the Joanne Pang Foundation can easily see how each contribution can alter lives of others immediately. I work with a lot of non-profits and I can see how effective this group is with their time and the gifts given to them.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2010

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Rating: 5 stars  

19 people found this review helpful

A donation to the Joanne Pang Foundation will be a step closer to raising the 2.5 million dollars needed to make a Northern California Umbilical Cord Blood Bank a reality. As a general pediatrian in the San Francisco Bay Area, I have met with many expecting parents who express an interest in donating their newborn's cord blood to a public cord blood bank (which is free of charge). They are disappointed to hear that currently only Southern California has a public umbilical cord blood bank. Needless to say, a public cord blood bank in Northern California is long overdue. Umbilical cord blood is rich in cells called stem cellls that could save the life of another child or adult with a life-threatening illness. Cord blood is otherwise considered biohazard waste and is thrown away after the baby is born. There are several private for-profit cord blood banks in Northern California. Private cord blood banks charge a fee for collection and storage of the cord blood. However, it is not recommended to donate to a private cord blood bank for private use unless under special circumstances. For more information about public vs. private cord blood banking, you can contact your pediatrician or find information from the American Academy of Pediatrics at www.aap.org. Please donate today! It will ultimately save a life!

If this organization had 10 million bucks, it could...

start the public umbilical cord blood bank in Northern California and fund research looking at illnesses that could potentially benefit from a cord blood transplant.

When was your last experience with this nonprofit?

2008-1-01

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Rating: 5 stars  

20 people found this review helpful

I have tremendous admiration for Joe Pang's vision and the relentless passion of the Joanne Pang Foundation. They have set out to create a much needed umbilical cord blood bank in ethnically diverse Northern California. By saving cord blood, which is currently being thrown away, the Foundation can help save thousands of people that have blood related diseases. No longer will patients have to wait until a bone marrow match can be found. Your donation will help turn medical waste into miracles.

If this organization had 10 million bucks, it could...

start saving lives tommorrow.

When was your last experience with this nonprofit?

2008-8-01

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Rating: 5 stars  

21 people found this review helpful

This organization's mission is to save lives through the public banking of umbilical cord blood. Cord blood has lifesaving potential because it yields stem cells which can be transplanted into patients suffering from as many as 70 different diseases. The Foundation's work is at the cutting edge of medicine and is non-controversial (unlike embryonic stem cells) and non-invasive. Join with me as we work to establish a cord blood bank in Northern California. The all volunteer staff is exceptionally devoted to this cause. Check out www.joannepang.org to learn more... and please donate today.

I've personally experienced the results of this organization in...

the enthusiasm of people who come to know what it is the Joanne Pang Foundation seeks to accomplish.

What I've enjoyed the most about my experience with this nonprofit is...

Outstanding people associated with this organization: donors, friends, volunteers, board members.

If this organization had 10 million bucks, it could...

Get the Cord Blood Bank up and running right away, and provide educational outreach to expecting parents about the incredible public benefit of cord blood donation (at no cost or pain to them).

When was your last experience with this nonprofit?

2008-8-01

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Role: Professional with expertise in this field
Rating: 5 stars  

21 people found this review helpful

I didn't know Joseph nor Joanne before. I hail from Taiwan and a colleague of mine handed me Joseph's book after reading it and being deeply affected by it. You see, I am in the cord blood bank business myself and I represent Safebanker (Taiwan) Ltd. Safebanker is a private cord blood bank company in Taiwan. After reading the book, I was touched and compelled to do something in not only educating people but reaching out and helping families with similar circumstances as Joseph Pang's family. My colleague and I then vowed to get in touch with Joseph and when I visited the Bay Area recently, I was able to talk to Joseph, share our ideas and got his approval to establish a Joanne Pang Foundation in Taiwan. As a result, my wife, who is based in the Bay Area has recently volunteered her time and services for the foundation in her own small way and I am sure that with all the dedicated volunteers, the Foundation will be established and God has intended it to be.

If I had to make changes to this organization, I would...

What I've enjoyed the most about my experience with this nonprofit is...

that it is truly dedicated in helping families and educate them with the many benefits from cord blood stem cells

If this organization had 10 million bucks, it could...

Help thousands of families not only in the US but around the world and fund further research on cord blood stem cells

Ways to make it better...

I had more time in the Bay Area to spend with the Founders

In my opinion, the biggest challenges facing this organization are...

Donations from people

One thing I'd also say is that...

When was your last experience with this nonprofit?

2008-8-01

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Rating: 5 stars  

1 person found this review helpful

Joanne Pang adopted us as her surrogate grandparents. She was a wonderful child - intelligent, active, fun and with an amazing ability to get along with everyone. We spent happy hours baking cookies, playing games and just having lively conversations. One day she participated in a school marathon fund raising walk; the next day she was diagnosed and dying from leukemia. Joanne and her family spent two agonizing years with endless hospital stays and treatments. Throughout this terrible ordeal, Joanne had an unbelievable positive attitude and provided encouragement to everyone she came in contact with. She was constantly thinking of others. In our final hospital visit, she smiled and said, “Oh, I almost forgot, Happy New Year”. Joanne did not have time in that new year but with the establishment of NCUUB, the first nonprofit, public cord blood bank in Northern California, other bright and beautiful children will have a chance for life. The umbilical cord blood stem cells provide life-saving therapeutic treatment for patients with various cancers, genetic diseases, immune system deficiencies, and blood disorders in the San Francisco Bay Area and worldwide. This is a cause that will benefit thousands and is certainly deserving of support.

The kinds of staff and volunteers that I met were...

enthusiastic, energetic and deeply concerned with the mission of the organization. The collaboration with the University of California in San Francisco is very important to the success of the organization.

If this organization had 10 million bucks, it could...

save numerous lives and raise the hopes of many parents, friends and most importantly the many children who suffer from this terrible disease.

When was your last experience with this nonprofit?

2008-8-01

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Rating: 5 stars  

2 people found this review helpful

I feel fortunate to have had an opportunity to know Joanne and her family. We met at Duke University Hospital where both Joanne and our son, Andrew, had their cord blood stem cell transplant. Joanne remains in our thoughts and in our hearts. Cord blood stem cells provide hope and saves lives. I am in full support of the Joanne Pang foundation in its efforts to establish a public cord blood bank. With your support of the Joanne Pang Foundation you will be directly taking part in the saving of lives. Herb Lee

If this organization had 10 million bucks, it could...

help relieve suffering, save lives and provide hope to seriously sick children and their families.

When was your last experience with this nonprofit?

2008-8-01

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Rating: 5 stars  

2 people found this review helpful

I was privileged to know Joanne Pang as my talented and exuberant piano student. I was aware of her painful struggle with leukemia and heartbreaking decline for two years and also of the emotional suffering endured by her parents and her younger brother, Chris. The community who loved this child also mobilized for a bone marrow drive, but despite great local response, the right source of bone marrow did not materialize. There are no words to describe the despair of seeing a precious child get sicker and sicker while waiting for an elusive matching bone marrow donor. Joanne was a bright little girl with a child's curious, pragmatic and surprisingly scientific view of cancer, and I remember soon after her diagnosis, being amazed by her hopeful spirit when I visited her at home, and later, in the hospital. It is still difficult to believe that leukemia has stolen Joanne's spirit from her family and friends. The Joanne Pang Foundation created by Joanne's family in her memory seeks to create a public, nonprofit umbilical cord blood bank that would provide a source of healthy stem cells for a life-saving transplant. All the umbilical cord blood that are currently discarded as the medical waste in the San Francisco Bay Area could be saved, stored and deliver a cure and a future for other children with blood cancers and many other grave diseases. Joanne's family wants to channel their own grief and loss into a source of miracles for other patients. It will take the extraordinary generosity and kindness of the public to make this dream come true. The Foundation is Joanne's legacy and a most worthy cause, deserving of your dollar.

I've personally experienced the results of this organization in...

The true results will happen when the funding goals are met to launch the public, nonprofit, umbilical cord blood bank.

If I had to make changes to this organization, I would...

This organization is already being run by the right people!

What I've enjoyed the most about my experience with this nonprofit is...

I am so grateful for the opportunity to honor Joanne Pang's memory and to contribute to her legacy of hope for sick children.

The kinds of staff and volunteers that I met were...

I have met many of the individuals who hold positions in the JPF and they are all people of the highest integrity. In addition, I would describe the JPF staff as intelligent, compassionate, creative and motivated.

If this organization had 10 million bucks, it could...

Cure many children of serious diseases and alleviate suffering.

Ways to make it better...

I can think of no criticism.

In my opinion, the biggest challenges facing this organization are...

The single biggest challenge is raising ample funds to create the public, nonprofit, umbilical cord blood bank in economic hard times.

One thing I'd also say is that...

Donate!

When was your last experience with this nonprofit?

2008-8-01

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