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Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) Overview
Our mission is to educate, inspire and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy and research funding for better treatments and eventual cures.
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We learned of FIRST in 2005 when our son was born and diagnosed with Congential Ichthyosiform Erythroderma (also known as ARCI). We quickly learned they were the only organization of its kind in the US dedicated to helping families living with or caring for others with ichthyosis. The disease is ...
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When our son was born with a collodian membrane covering his body, and the doctors in our major-city hospital had to run to the medical library to be able to diagnose him, FIRST came into our lives as a comforting and knowledgeable resource. This caring advocacy organization has made a tremendous ...
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