Dare To Hope Foundation Overview
Target demographics: children either diagnosed with a rare, chronic or critical medical issue, or undiagnosed with complex medical issues
Programs: Services in Georgia:
We provide resource referral and coordination to families in Georgia with children affected by rare or complex medical issues including:
help and advocacy for school IEPs
procuring durable medical equipment
applying for Medicaid waivers, grants & scholarships, insurance claims, etc.
help with home education & therapy tools
locating or establishing on-line & local support
We work with existing services and grant opportunities and strive to “fill in the gaps” for Georgia’s families. Contact firstname.lastname@example.org to find out more.
The Dare To Hope Foundation has worked tirelessly to provide the Georgia Disabled Community & Beyond with community connections, global resources and international awareness of rare and complex diseases.
Current programs include:
Toy and diaper drive benefitting Georgia’s children on waiting lists for services, children in long-term hospital stays & treatment, children confined to home care, etc.
Cell phone charger recycling program-collecting cell phone chargers to place in Children’s Hospital’s surgery waiting rooms
Partnering with other rare disease organizations to raise funds & Global awareness of children’s medical issues
On The Horizon:
The Dare To Hope Foundation is working alongside other organizations, advocates and parents in our
program to be unvieled throughout 2011. This state-by-state initiative will enable doctors, specialists and hospitals to hand a list of local resources to newly diagnosed families. This seems so simple, yet parents are often handed a devastating diagnosis (or prognosis with no known diagnosis) with nowhere to turn to answer questions or find support. Doctors have a difficult time keeping up with resources which tend to come & go.
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