Canavan Research Foundation, Inc. Overview
Because Canavan Disease is considered an "orphan disease," research to find a cure receives little public funding. Research is extremely dependent on our fundraising efforts. This means that the children born with devastating disease will not be cured unless we and similar organizations initiate, identify, and fund the necessary research.
The first treatment, gene therapy, made history when it created the growth of myelin in the children's brains. Every single child who was treated with the gene therapy has experienced a better quality of life, the end of degeneration in the brain, and greater awareness of the world.
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The Canavan Research Foundation has been at the top of my charity list for over 15 years. My wife and I find their work relevant, important, and highly impactful. Unlike other research organizations that may take years to turn labwork into clinical trials, the CRF has been able to quickly translate ... more »Review from Guidestar
I have over and over again been amazed by the work of the Canavan Research Foundation. They have created research on a disease where there was none, and furthermore, all of the children who were treated with the revolutionary gene therapy made history by their brains developing myelin. Furthermore, ... more »Review from Guidestar
When my daughter was diagnosed with Canavans Disease in 2004 we felt completely isolated and alone. It was wonderful to know that there are other families out the dealing with the same struggles that we are experiencing. I have asked all my friends to donate to canavan research foundation in honor ... more »