Williams Syndrome Changing Lives Foundation helped us in a time when we thought there was no help. They offer educational material and HOPE for parents who first find out they have a William's Syndrome Child. They send out newsletters keeping parents informed of current WS news and inspirational stories to keep our chins up. The CEO, Penny Perez, is nothing less than a Saint. She is not only the CEO she is a parent to a child with William's Syndrome. My wife regularly seeks advice from her from advocating for our children to other general parental concerns. The non-profit is well executed and managed and makes a real difference in people's lives. Thank you Penny and William's Syndrome Changing Lives Foundation for all that you have done to help our family and our son Ethan (16mo old).
Williams Syndrome Changing Lives Foundation provides assistance to families finding solutions for family members diagnosed with Williams syndrome. This foundation helps many families by providing financial assistance in addition to providing vital information to parents and medical professionals helping those diagnosed with this rare disorder.
This organization was founded on the belief that a community of families could help other families dealing with this rare disorder by sharing information and experiences. With this in mind, and through collective experience, we can help educate medical professionals and parents with children diagnosed with Williams syndrome in order to enable those diagnosed with Williams syndrome live life to its fullest potential.
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I am proud to be a part of this organization for various reasons. This organization has been able to provide information and support to parents and caregivers of individuals with Williams syndrome.
Consequently, over a short period of time, this organization has managed to corral the community to create a support group to help others handle the daily challenges and collectively cheer when milestones are met.
Above all, this organization has assisted financially challenged families with their needs to help their children with Williams syndrome live better lives.
We are truly changing lives.
