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2017 Top-Rated Nonprofit

Coping With Laryngomalacia, Inc

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Nonprofit Overview

Mission: to provide support, strength and education for families coping with LM, TM and BM. Located in Port Monmouth, New Jersey (USA)...serving families worldwide.

Results: Thanks to our amazing donors, we have sent close to 500 care packages all through out the USA, Canada, The United Kingdom, South Africa, Australia and The Netherlands!

Target demographics: families worldwide

Direct beneficiaries per year: over 1,000 families

Geographic areas served: Port Monmouth, New Jersey

Programs: 24/7 online support Live online chats Breathe Easy Care Package Program Pint-Sized Powerhouse Grant Program Malacia MeetUps CPR training Breast, bottle & tube feeding support Tracheotomy tube education and support Awareness apparel and merchandise Education resources and more!

Community Stories

4 Stories from Volunteers, Donors & Supporters

3

Client Served

Rating: 5

This is an amazing group that has given us so much more information than we have ever received from any medical professional. Our ENT is wonderful but we found him after reading the stories of other LM families and deciding that we needed to speak up at the pediatrician's office. We are grateful for the support shown to us through their wonderful facebook page as well as a very kind care package we received before a surgery. This is a nonprofit that truely supports it's cause.

Donor

Rating: 5

This is an amazing non profit organization, my baby got diagnosed with LM and their website and support group are phenomenal.

Nikki S.1

Donor

Rating: 5

You were there for my friend Tarah when she needed support most. This group really cares about the kids and their parents♡

Donor

Rating: 5

I need more resources can someone please assist. Does anyone have any good resources or point in the direction of an individual or website or even agency that can explain more on children with laryngomalacia and reactions from colds??? My baby boy B was diagnosed with moderate Laryngomalacia around 6 weeks. I was extremely worried. However now that he is almost 2 years old he is doing much better. The only thing is: if he catches a common cold, the retractions, and sucking in between the breast bone becomes intensily present. I believe he will be asthmatic like my other children and myself. When my son gets a vold he wheeze and retracts rapidly and I give him a treatment and it clears things up and he is content. Even though this is only his 2nd ER visit. I would like something better to manage his breathing for these incidents. Im glad to have found this group. Hopefully I will gain a wealth of information.

Erica44

Donor

Rating: 5

CWL has helped me so much. When my daughter was diagnosed at 1 month I was very sure what was going on. Being able to connect with other parents of babies with LM I could have questions answered in terms I understood. I was able to get real life experience stories.