This is an amazing group that has given us so much more information than we have ever received from any medical professional. Our ENT is wonderful but we found him after reading the stories of other LM families and deciding that we needed to speak up at the pediatrician's office. We are grateful for the support shown to us through their wonderful facebook page as well as a very kind care package we received before a surgery. This is a nonprofit that truely supports it's cause.
I need more resources can someone please assist. Does anyone have any good resources or point in the direction of an individual or website or even agency that can explain more on children with laryngomalacia and reactions from colds??? My baby boy B was diagnosed with moderate Laryngomalacia around 6 weeks. I was extremely worried. However now that he is almost 2 years old he is doing much better. The only thing is: if he catches a common cold, the retractions, and sucking in between the breast bone becomes intensily present. I believe he will be asthmatic like my other children and myself. When my son gets a vold he wheeze and retracts rapidly and I give him a treatment and it clears things up and he is content. Even though this is only his 2nd ER visit. I would like something better to manage his breathing for these incidents. Im glad to have found this group. Hopefully I will gain a wealth of information.