APS Foundation of America, Inc.

Results: 2024 Year in Review  Maintained 501(c)3 Non-Profit Status granted under Section 170, 2055, 2106, 2522. We also were granted an advanced ruling as a Public Charity.  Filed Taxes.  Registered to solicit in the states we were required to do so.  Made all brochures & booklets that have bibliographies available – available online.  Invited to several large professional medical conferences. Attend via Zoom when possible.  Represented at the Annual Venous Disease Coalition Meeting.  Represented at the American College of Rheumatology Annual Meeting  Partially funded Research for APS ACTION  Promoted APS iBook published by Laurent Phialy, Stephane Zuily, and Dourk Erkan  Maintained EURORDIS membership  Maintained membership with the Defense Health Research Consortium  Networking with other Non-Profit Organizations and medical professionals.  Maintained HONCode Certification on APS Foundation of America, Inc.  Earned the GuideStar Exchange Seal: Platinum Participant. Only 0.5% of organizations have this rating.  Attended CARRA Annual Scientific Meeting 2024  Attended Thrombosis UK and International Society on Thrombosis and Hemostasis (ISTH) round table virtually in Montreal, Canada  Continued June 9th as World APS Awareness Day.  Continued June as APS Awareness Month.  Participated in Deep Vein Thrombosis Awareness Month  Participated in Lupus Awareness Month  Participated in Stroke Awareness Month  Participated in Heart Disease Awareness Month  Participated in Autoimmune Awareness Month  Participated in Rare Disease Day  Participated in World Thrombosis Day with APS Awareness  Continued collaborations with MoMMA’s Voices  Continued collaboration with Rare Disease Legislation  Continued collaboration with EURORDIS  Continued cooperation with CARRA on APS and Lupus  Continued collaboration with the National Coalition of Autoimmune Patient Groups  Participated in Pregnancy Loss and Stillborn Awareness Month  Supported various legislation through a national coalition of patient organizations  Attended National Coalition of Autoimmune Patient Groups Meeting  Invited to and Participated in Chat with Thrombosis Experts, Medscape & Everyday Health on World Thrombosis Day  Attended & Hosted a Booth at the Autoimmune Summit presented by the Autoimmune Association  Collaborative work with Stago Diagnostics  Started publishing Constant Contact Newsletter News Briefs  Launched press releases – benefited at least 500,000 people.  Launched Radio Public Service Announcements – benefited at least 2,000,000.  Donated $5,000.00 to APS ACTION for their ongoing research needs.  Shared reputable articles about APS at the lay and professional level, as well as disease-related, such as DVT, PE, stroke, and Raynaud’s  Co-hosted an Antiphospholipid Syndrome Patient Round Table with Stago  Shared reputable disease prevention articles. Read in full: https://apsfa.org/new/wp-content/uploads/2025/01/2024-Year-in-Review.pdf

Target demographics: patients with Antiphospholipid Syndrome (APS)

Direct beneficiaries per year: 2,000,000 people

Geographic areas served: USA

Programs: -Offer understanding and support to individuals, family, friends, and caregivers of Antiphospholipid Syndrome. -Offer information about and education on Antiphospholipid Syndrome. -Support research regarding Antiphospholipid Syndrome by keeping the latest information available and referring people to such agencies that do research. -Raise funds to provide information and education through public donations, grants, fundraisers, sponsorship, and bequests. -Bring national focus to Antiphospholipid Syndrome in the United States.