2012 Top-Rated Nonprofit

Acromegaly Community Inc

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Nonprofit Overview

Causes: Health

Mission: It is our mission is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including surgery, medication, radiation and post diagnosis support. Most importantly, we provide a network of emotional support for Acromegaly patients, their friends and their family.

Community Stories

4 Stories from Volunteers, Donors & Supporters

rawaz General Member of the Public

Rating: 5

09/03/2020

I have al symptoms of acromegaly with hight level of igf-1 witch it 400ng/ml
But i did all test doctors not found the reason or how treat it i need help

1

shirlbett General Member of the Public

Rating: 5

10/26/2012

Acro Community is the most supportive group of people! The group is very organized and very informative.

1

annarruda16 General Member of the Public

Rating: 5

10/25/2012

I was diagnosed 24 years ago when my son was born. It was tough to be a young woman with a scary and disfiguring disease. To have a group like this that helps educate and support such a lifelong illness is too hard to put into words. I am still learning about my disease and receiving support for the hurdles I come across many years later. This group reaches out to families as well. All I can say is thankyou from the bottom of my heart.

1

Cheryl37 General Member of the Public

Rating: 5

09/25/2012

when i was diagnosed with acro , i was scared and had no one to talk to who really understood what i was going through, then i found this group where i can read, ask questions, answer questions and rant without anyone judging me .

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