I was diagnosed 24 years ago when my son was born. It was tough to be a young woman with a scary and disfiguring disease. To have a group like this that helps educate and support such a lifelong illness is too hard to put into words. I am still learning about my disease and receiving support for the hurdles I come across many years later. This group reaches out to families as well. All I can say is thankyou from the bottom of my heart.
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- EIN 27-2116493
- 716- 844-8780
- 432 Amherst Street 2nd Floor Buffalo NY 14207 USA
- www.acromegalycommunity.com
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Nonprofit Overview
Causes: Health
Mission: It is our mission is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including surgery, medication, radiation and post diagnosis support. Most importantly, we provide a network of emotional support for Acromegaly patients, their friends and their family.
Target demographics: Patients, loved ones, and professionals touched by or involved with the rare disease of Acromegaly
Geographic areas served: Everywhere
Programs: Conference to educate the public and support research regarding the medical condition known as acromegaly.
