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White Sutton Syndrome Foundation

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Nonprofit Overview

Causes: Health

Mission: The mission of the White Sutton Syndrome Foundation is to build a community that will improve the quality of life for those diagnosed with White Sutton Syndrome and their families, to educate others about this condition and to fund research in order to better understand its symptoms, treatments and prognosis.

Target demographics: White-Sutton Syndrome patients, caregivers & researchers

Community Stories

2 Stories from Volunteers, Donors & Supporters

1 Elizabeth D.6

Client Served

Rating: 5

This foundation has allowed me to connect with other parents of children with the same rare genetic syndrome as my child.


Board Member

Rating: 5

I helped start the White Sutton Syndrome Foundation in 2018, and we've come a long way in just over a year. We have begun by promoting awareness and enabling affected families to connect, and have expanded to begin promoting research tools. The support from the community has been wonderful, and we continue to grow our efforts thanks to them.