54 Pageviews Read Stories
- EIN 26-2973607
- (415) 846-8005
- 500 Westover Dr 10553 Sanford NC 27330-8941 USA
- www.personalgenomes.org
- Add to Favorites
Promote This Nonprofit
More Nonprofits
Nonprofit Overview
Causes: Biomedicine & Bioengineering Research, Health
Mission: The mission of the organization is to make a wide spectrum of dataabout humans accessible to increase biological literacy and improvehuman health. The organization generates, aggregates and interpretshuman biological and trait data on an unprecedented scale using open-source, open-access and open-consent frameworks. Efforts areinformed by values encouraging greater transparency and collaborationbetween researchers and participants.
Programs: Personalgenomes. Org supports public education about the benefits andrisks of personal genomics. We organize the genomes, environments andtraits (get) conference, where we invite leading thinkers to discussthe important ways in which new genomic technologies will affect all ofour lives in the coming years and to debate their technical,commercial, and societal impacts. The 2014 get conference included leading experts spanning the fields of clinical genomics, health tracking and personal big data, athletic performance and technology. Get labs was attended by over a dozen research groups from all over the united states.
personalgenomes. Org works with world-class institutions and leadingresearchers to establish new personal genome project sites around theglobe. Each member in the network adheres to a set of guidelines andbest practices for creating open genomic data. In 2014, we facilitated the launch of genom austria, the fourth site in the global network (others are based at harvard in boston, sick kids hospital in toronto canada, and the university college london in the uk)
personalgenomes. Org is developing a program to coordinate public dataresources composed of integrated human genetic, environmental and traitdata. In 2014, we secured funding from the knight foundation and the robert wood johnson foundation to develop a new program called open humans. The public launch of the program and website is planned for 2015 with the aim to break down barriers that make it difficult for willing individuals to access and share their data with researchers. Funding allowed us to add 3 amazing new team members.