2019 Top-Rated Nonprofit

Girl Power 2 Cure Inc

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Nonprofit Overview

Causes: Health

Mission: To empower a movement to see Rett Syndrome become the first curable childhood neurological disorder. OUR CORE STATEMENT OF BELIEFS:
We believe Rett Syndrome can be the first reversible neurological disorder.
We believe that children are powerful and positive community leaders and mentors.
We believe in empowering Rett Syndrome families by supporting and encouraging their creative fundraising and awareness initiatives.
We believe amidst the mass confusion going on within their central nervous systems, Rett Children are smart, strong and waiting bravely for us to unlock the door to their recovery.
We believe that finding a successful treatment for Rett Syndrome will pave the way to treatments of other neurological disorders such as: Autism, Alzheimer’s, bipolar disorder and more.

Community Stories

130 Stories from Volunteers, Donors & Supporters

Maria H.5 Client Served

Rating: 5

10/04/2019

Since we encountered Girl Power 2 Cure we have not felt alone anymore in this journey. My niece has Rett Syndrome and we are so thankful for the support.

1

john1966 General Member of the Public

Rating: 5

10/03/2019

October is Rett Syndrome Awareness month-Bringing awareness and support to families. Help my grand daughter Lilliana!

1

boczarm82 General Member of the Public

Rating: 5

10/03/2019

We love Girl power 2 cure and they have helped us tremendously after our daughters diagnosis. They provide educational support, family support and give us hope for a cure.

Comments ( 1 )

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GP2C 10/04/2019

Thank you for your review. We are honored to be able to support your family on their journey!

1

jkmillard Client Served

Rating: 5

10/03/2019

They have been a godsend for me during the Rett syndrome journey. They are helpful and amazing. The support they offer is the best!

Comments ( 1 )

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GP2C 10/04/2019

Thank you so much for your review and we are glad we are able to support you.

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Client Served

Rating: 5

12/31/2015

GP2C is an amazing organization that does so much for our Rett community! I am a sibling of a woman with Rett syndrome who is 50 years old. GP2C has been so supportive to us and allowed me to find other families and siblings to share with. They are amazing, helpful and passionate!! GP2C is the best!!

Karla P.2 Client Served

Rating: 5

10/03/2019

Our daughter was diagnosed with Rett syndrome in 2009 and we found GP2C a few years later. We became part of GP2C in 2015 and we loved the support it offers families. We know that if we ever need someone to talk to GP2C will be there for us or will help us connect with a local family for support. Thank you GP2C for making our rett world a better place

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GP2C 10/04/2019

Thank you for your review, Karla. We absolutely love being part of your family's journey and will be here for you all any time you need us!

1

Charity4 Volunteer

Rating: 5

10/03/2019

What an amazing organization! Girl Power 2 Cure is wonderful! I have been working Them to plan an event in February as well as doing the runs with them for the past 7 years, I cannot tell you how easy they have been to make sure everything goes well. Girl Power 2 Cure will always be an organization that I support

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GP2C 10/04/2019

Thank you for your review, Charity. We are so thankful you support our organization and our mission.

1 kmorell

kmorell Volunteer

Rating: 5

07/27/2019

We have twin daughters diagnosed with Rett syndrome, and we’ve always appreciated the support and the mission of Girl Power 2 Cure. Our family recently hosted a Kendra Scott Give Back Event to benefit Girl Power 2 Cure, and it was absolutely wonderful. GP2C connected us for a planning conversation with our local Kendra Scott event manager, and from there everything about the event was simple and seamless. The event manager and GP2C created social media posts to share for our event, and our local Kendra Scott store themed the event in honor of our twin daughters’ 6th birthday. They even provided adorable custom made cookies, beverages, and party decor. The best part of the event was that 20% of all sales were donated to GP2C, and we were able to raise $1000 just by inviting friends and family to shop and celebrate with us! It was a beautiful event, and everyone enjoyed having the opportunity to support Girl Power 2 Cure while celebrating our daughters. I highly recommend connecting with GP2C and your local Kendra Scott store to host a Give Back Event. It’s a fantastic and simple way to get involved with fundraising to help bring hope and to support finding a cure for everyone diagnosed and affected by Rett syndrome. Our hearts are full, and we are so thankful for everyone that was a part of making this event such an awesome success.

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GP2C 10/04/2019

Thank you for your review and for hosting a Kendra Gives Back event in honor of your beautiful girls. We appreciate your support and together we can do anything!

1

cdlady713 General Member of the Public

Rating: 5

07/24/2019

GP2CURE IS AMAZING. I love and live to raise awareness with my purple hair and signs in my yard. GP2CURE gives me Hope we are Family Thank you ladies

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GP2C 10/04/2019

Thank you for your review, Olivia! We have so much hope for a cure and your garden is beautiful! We are so thankful for you and your family allowing us to share in your journey.

Carolynwfowler Client Served

Rating: 5

07/24/2019

I have nothing but great things to say about Girl Power 2 Cure. They helped my husband and I put on our event "Evening of Hope for Rett syndrome", for our daughter Evelyn, back in April, and they were there with us every step of the way. They walked us through all of the details we should think about and were willing to help us in any way they could. They helped us with all of the "tedious" back end items so that we could focus on other things. They didn't just say they would support and then wait in the wings some of their staff actually showed up to our event and were a tremendous help. They were a support for our family in making our event such a great success. Love this organization!

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GP2C 10/04/2019

Thank you for your review, Carolyn. Your event was beautiful and impactful. We are so proud that you and your family are supporters of GP2C and our mission.

domhugo1 Volunteer

Rating: 5

07/24/2019

I have volunteered for Girl Power 2 Cure for 5 years. It has given me valuable experience to help me qualify for college scholarships. It has been a great experience to learn about Rett Syndrome and meet so many of the children battling each day. I have also signed up to run in the 2020 Disney Princess 5K. It was an easy process to register and the support has been great! I would highly recommend Girl Power 2 Cure if you are looking for a great non-profit to support!

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GP2C 10/04/2019

Thank you for your review, Dominic. We are grateful for all the hours you have volunteered and the awareness you spread about Rett Syndrome!

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MK Akers B. Client Served

Rating: 5

05/25/2018

What a fabulous organization! The people who work to make Girl Power 2 Cure what it is are wonderful! I have been working with Amei, Kevin and Jason to plan an event with Girl Power 2 Cure, I cannot tell you how accommodating they have been to make sure everything goes well. Girl Power 2 Cure will always be a charitable organization that I support. Their mission is wonderful and so many people need to hear their message to help kids with Rett's Syndrome.

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JennBallard Board Member

Rating: 5

05/23/2018

This has been a great support and informational source since our son was diagnosed! And now I have the chance to help bring a voice to the boys!!!

4 Janae R.

Janae R. Volunteer

Rating: 5

05/22/2018

After my friend passed away I wanted to hold a fundraiser in her memory (she had Rett Syndrome). I knew I wanted to donate the proceeds to an organization that included raising awareness (and presuming competence) and that offered lots of family support. I heard of GP2C via a blog post and took a closer look. GP2C is exactly what I was looking for!

They have been incredibly supportive not only of our annual event (I always hear back quickly when I call, message or email) but also of me personally as I've gone thru the process of grieving the loss of someone so important to me.

You can tell that they really care and are dedicated to this changing the lives of those with Rett Syndrome from research, to family supports, and educating professionals and the public about what these girls & boys are really capable of. I have been blown away by the professionalism and level of care that goes into their organization .

I am so grateful to be a part of and have such a wonderful community to direct local Rett families to!

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Volunteer

Rating: 5

12/29/2014

I recently worked with GP2C for a fundraising event in memory of a dear friend of mine. They were beyond supportive both logistically as well as offering moral support and encouragement. I specifically chose the GP2C organization because of the type of family support they offer to those with Rett Syndrome and they did not disappoint. They were in touch with me leading up to and as well as after the event and we are hoping to make it an annual fundraiser for this amazing organization! THANKS GP2C! You made what could have been a very difficult day of mourning for us something healing and positive. Much LOVE

2 Kassie Morell

Kassie Morell Volunteer

Rating: 5

05/22/2018

We love Girl Power 2 Cure and all that they do to raise awareness, support families, and most importantly their dedication to their mission to end Rett syndrome. I am a mom of 4 year old twins with Rett, and very active in fundraising. We recently had a Lemonade Stand fundraiser at our local music festival to support GP2C. The support we received from the staff at GP2C was phenomenal and made me feel so good about supporting the organization. In the end, between shirt sales, online donations, and the actual lemonade stand event we raised just over $3000! I feel so wonderful about our success, and I know that our donations are being well used to support GP2C, Rett University, and towards research that will eventually lead to a CURE for all of our children battling Rett. If you need a fantastic charitable organization to support, GP2C is definitely the best for many reasons.

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Mtmpix Volunteer

Rating: 5

05/22/2018

My niece Quinn has Rett Syndrome, she just turned 6 years old. (Pic below is of both my neices, Madeyln & Quinn) Girl Power 2 Cure has been an amazing an incredible part of our lives since Quinn was diagnosed over 4 years ago. I am honored to fundraise and help find a cure for my niece, and all of the others diagnosed with this devastating disorder. With Girl Power 2 Cure, we will find a cure!

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Volunteer

Rating: 5

01/20/2018

Girl Power 2 Cure is the most amazing nonprofit ever!! They are always there to help!!

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Pam Maxwell H. Board Member

Rating: 5

01/24/2018

I'm currently the board chair for this fabulous non-profit organization and have served on its board for almost 7 years. When I first met the founder I had never heard of Rett Syndrome, yet the story of these girls (mostly) and the syndrome's impact on their lives and that of their families touched my heart. The "girl power" part of it was put to the test when I told my then 6-year old daughter about why I was volunteering with this group and what they did. She brought me her piggy bank and dumped it on the floor and said "Mommy I want you to give this money to those girls!". THAT's girl power, the nurturing nature of all girls to empower and want to help their own. PRICELESS!

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kevinpierce Board Member

Rating: 5

01/24/2018

GP2C has been a part of our "Rett Syndrome Family" since my granddaughter's diagnosis in 2014. They have been a compassionate resource for family support and educational material/tools. My granddaughter has advanced significantly with the help of GP2C-Rett University courses and direct interactions with Rett U instructors. GP2C-Rett University personnel have also been invaluable advocates in her educational curriculum, assisting our family with school/teacher interactions and establishing educational plans and approaches. The entire GP2C organization has embraced my granddaughter, and we are deeply appreciative of the love and support they have shown! We have also been active participants in GP2C fundraising efforts, and hold in high regard the tireless staff and volunteers who strive daily to advance the mission of the organization in the fight against Rett Syndrome.

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Client Served

Rating: 5

04/23/2017

GP2C has been a part of our life since my granddaughter's diagnosis in 2014. They have been an outstanding resource for family support and educational material/tools. My granddaughter (who is non-verbal) has advanced significantly with the help of GP2C-Rett University courses and direct interactions with Rett U instructors. GP2C-Rett University personnel have also been invaluable advocates in her educational curriculum, assisting our family with school/teacher interactions and establishing educational plans and approaches. The entire GP2C organization has embraced my granddaughter and our extended family, and we are deeply appreciative of the love and support they have shown! We have also been active participants in GP2C fundraising efforts, and hold in high regard all of the tireless staff and volunteers who strive daily to advance the mission of the organization in the fight against Rett Syndrome.

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Writer Donor

Rating: 5

01/19/2018

I LOVE GP2C and all that they do to help raise awareness for Rett Syndrome! Their passion, drive, hard work, support for families and educational focus is greatly appreciated and doesn't go unnoticed.

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Writer Board Member

Rating: 5

01/18/2018

Girl Power 2 Cure has been an important part of the life of our family since our daughter's Rett Syndrome diagnosis several years ago. GP2C provides vital resources and support services to help families as they navigate through their unpredictable and often difficult journey with Rett. Additionally, through their contributions to research and incredible Rett University programs, Girl Power 2 Cure provides parents hope that our Rett children will live fulfilling lives in the near-term and that a cure is on the horizon. GP2C is an extremely well run charity focused on ensuring that every dollar donated goes to supporting families, funding research or raising awareness.

1

Writer Donor

Rating: 5

01/18/2018

I learned about GP2C because my best friend since grade school days has a daughter with Rett Syndrome. Their daughter is amazing and beautiful, but impacted by a debilitating syndrome that takes away almost all of her freedom. She can't walk, eat on her own, talk any longer, and has some typical physical ailments.

I learned about GP2C and how they're having such great impact on the Rett community. They're doing wonderful work in terms of family support and raising awareness. Great positive events are sponsored that give Rett families the opportunity to participate with their Rett girls, meet other families, and share information that's useful for living high quality lives with Rett Syndrome.

Finally, the money raised by GP2C also goes to directly fund research to help in the overall fight against Rett to find a cure and treatments. The amazing thing is that this syndrome has shown promise to actually be reversible, which is stunning. GP2C is a positive force in the Rett community and I'm happy to support them in any way I can.

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jegjohn Client Served

Rating: 5

04/21/2017

Our life changed dramatically after we learned of our little angel's diagnosis of Rett Syndrome. We frankly didn't know where or who to turn to in order to not only find comfort in a Rett community, but also find an avenue through which we could dedicate ourselves to finding a cure. GP2C has been all that and more! GP2C's laser focus on channeling as much charity as possible to funding key research efforts and their campaigns to educate and raise awareness of this horrible disease is extremely important to us. Thank you for doing what you do!!

2

Melissa320 General Member of the Public

Rating: 5

09/14/2016

The passion and commitment to Girl Power 2 Cure is inspiring and an incredible resource for families in helping to find support, guidance and ways to help achieve a cure. It's a way to empower all of us in helping to make a difference, in big and small ways, in the lives of those with Rhett Syndrome.

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bnytko Volunteer

Rating: 5

09/07/2016

Everyone in this organization is amazing to work with. Their dedication, passion and drive to spread awareness and raise funds for research make me proud to be a volunteer with them.I was first introduced to Girl Power 2 Cure (GP2C) by a friend who has a daughter with Rett Syndrome. Since becoming involved with Girl Power 2 Cure I have been thoroughly impressed with what they do for girls with Rett Syndrome. Last year I ran the Disney Princess Half Marathon with Team GP2C and I will continually support, donate, volunteer in any way I can and charity run with them.

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Kim_235 Volunteer

Rating: 5

09/06/2016

My daughter and I have enjoyed volunteering with GP2C for several years! We have helped with fundraisers, buttons for races and thank you cards. It has been a wonderful experience for us! The idea that a cure is in sight, is so profound! There is real progress all the time. We feel we are watching a miracle happen and that is worth every minute it takes to get there!

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Writer Donor

Rating: 4

09/02/2016

I am a loyal donor to Girl Power To Cure at the most basic level because I believe in the cause and support the organization's insatiable drive to support research that will find a cure.

But as a professional working in organizational development, I am most impressed by the way Girl Power 2 Cure has responded to the need to give Rett children powerful access to learning and experiences long held unattainable.
Girl Power 2 Cure stays on the cutting edge. This is what makes the charity unique and outstanding.

2

faithdubose Volunteer

Rating: 5

07/20/2016

GP2C is one of my favorite nonprofit organizations. I have the opportunity to volunteer a couple time a month & I absolutely love it! They are some amazing people!!

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Gizmoe Volunteer

Rating: 5

05/17/2016

I had the opportunity to volunteer for a GP2C fund raiser, it was both informative and rewarding. This is the most amazing charity. I was blessed just to be a part of such awesome group of people. I was humbled to see how hard these girls work to accomplish all they can in a daily basis. I enjoyed every minute I gave to this event. I would encourage anyone who has the time to step out and give of themselves for such worthy cause. I will volunteer more.

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Kelly202 Volunteer

Rating: 5

05/09/2016

GP2C is an awesome organization! My husband and I ran the Princess through GP2C and had the experience of a life time. This all started three years ago meeting Ingrid at the Expo for the Princess weekend. She grabbed my attention and told me about Rett Syndrome and what it does to little ones etc. This year we had the opportunity to run in honor of Lily. She and other girls we met touched our hearts. This coming year my husband and I will be running again for Rett Syndrome and Lily as well! #untilshecan

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bridget_aon Volunteer

Rating: 5

05/05/2016

Girl Power 2 Cure is an amazing organization and has been a HUGE source of information, support and strength for me and my family. They really offer so much to help families: Rett Girl has a huge bank of resources for anything from nutrition to special needs equipment and Rett University has been an absolute saving grace for us since we homeschool our Rett daughter! With the help of Susan Norwell's videos we have been making huge strides in reading and writing! Girl Power even raises research funds for Rett! All of this wrapped in a bright, beautiful flower to symbolize hope! The cheerful and positive attitude Girl Power takes is definitely contagious!

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Writer Volunteer

Rating: 5

04/29/2016

I've helped to organize a run in Tucson, AZ to support GP2C, and it has been an amazing experience.

Hang B. Donor

Rating: 5

01/12/2016

Girl Power 2 Cure works tirelessly to help the young girls affected and their families. I have had the honor of participating in their events and each person I've met as a part of this wonderful organization has spoken from the heart. They are hard working, caring and determined individuals who make up this fantastic organization. Thank you Girl Power 2 Cure for all you do and all you have accomplished!

Henry14 Donor

Rating: 5

12/30/2015

My son and I worked with GP2C to raise money and awareness for Rett syndrome through a hike this past year. The GP2C staff was wonderful to work with and they are truly providing a fantastic service to the Rett community!

Jennifer509 General Member of the Public

Rating: 5

12/30/2015

Thank you for supporting our Rett girls! You are a blessing to the girls and their parents!

Melanie45 Volunteer

Rating: 5

12/29/2015

We love GP2C! Our Julie Grace, almost 5 yo, has Rett Syndrome. Girl Power 2 Cure has been such a lifeline for support! It has also been such a great resource in recruiting support for awareness and fundraising activities. Our local schools and community geared up to support a local father and son, Hemry and Bemnett Fisher. that hiked the entire Appalachian Trail through for the 2015 Hike for Julie with donations benefitting GP2C and the Suki Foundation. So blessed to be a part of the GP2C community!

1HavalinA2 Donor

Rating: 5

12/29/2015

To be completely candid, I am a parent of a girl with Rett Syndrome. We were lucky to discover it in 2006, shortly after its founding. What appealed to us most was the total commitment to finding a cure, by funneling its resources to the Rett Syndrome Research Trust. As the years have gone by, the obvious needs for family support, educational resources, and a myriad other concerns of families with Rett Syndrome became quite apparent, and GP2C has begun to diversify the application of its donations to great effect. The most exciting development to come out of this is the partnership with Susan Norwell - quite likely the world's foremost authority on literacy and communication as it applies to Rett Syndrome - and the development of Rett University. All of the people at GP2C are wonderful - caring, helpful, insightful, involved and aware. I can't think of another charity I would ever support more than Girl Power 2 Cure.

bayvenner Volunteer

Rating: 5

11/03/2015

I am a college student who was looking for somewhere to volunteer some time during my summer spent back at home. I found GP2C online when looking for organizations that promoted female health. I could not have asked for a better volunteer experience or opportunity. The women of GP2C were so welcoming and friendly. They are all so passionate about giving back to the Rett community and making each Rett girl feel special. Their dedication to raising funds and awareness of Rett Syndrome is admirable. I learned so much about Rett Syndrome and how valuable just my time was to them. I really appreciate all they do and thank them for the amazing experience they have given me!

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GP2C 11/04/2015

Bailey, Thank you for the wonderful review. We really love being able to educate people that are not in the Rett Community about all the amazing girls, families and hope there is for a cure. Thank you for all your help this summer and we hope to see you again when you have a break from school.

Niki.Tebbe Volunteer

Rating: 5

09/01/2015

Girl Power 2 Cure is a fantastic organization helping families and girls with Rett Syndrome. My daughter Quinn has Rett Syndrome and they offer support and numerous events throughout the year to get family, friends and supporters involved in raising awareness about this nuerological disease and funds for research.
Thank you so much for your devotion and support for Quinn and my entire family.

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GP2C 10/01/2015

Niki, Thank you for the wonderful review. We are so happy you, your family and Quinn are part of GP2C! We love what we do and working to support families, raise funds for research and help to find a cure for all the girls!

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Client Served

Rating: 5

10/23/2013



Our Daughter was diagnosed with Rett Syndrome in 2005, We were devastated. We felt alone, scared and helpless. The future we once envisioned for our little girl was replaced with emotional and physical challenges we did not understand nor could we comprehend. Then by some miracle I met Ingrid Harding the founder of Girl Power 2 Cure. She helped me to understand and decipher the maze of Rett Syndrome. For the first time after the diagnosis I had Hope. Hope for my daughter and Hope for my family. Girl Power 2 Cure is simply AMAZING! This organization works tirelessly to provide support to the families and friends of our girls. GP2C spreads awareness, offers invaluable resources, funds critical research, and provides a place of acceptance and understanding. We are in this journey together, fighting for our girls, with Girl Power we will succeed!

Teamquinnrocks Volunteer

Rating: 5

08/31/2015

I have a beautiful niece with Rett Syndrome and Girl Power 2 Cure has been very helpful in helping my sister and our family with many obstacles during their journey. Thanks to the consistency of this nonprofit our family knows their research will help my niece make great strides!

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GP2C 10/01/2015

Thank you for the wonderful review. We are so happy you, your family and Quinn are part of GP2C! We love what we do and working to support families, raise funds for research and help to find a cure for all the girls!

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Shelley S. General Member of the Public

Rating: 5

07/16/2015

I have an older daughter with Rett Syndrome so I have worked with many different organizations over the years. There is something very special about Girl Power 2 Cure, Inc. Not only are they working hard to help all of the new families that are struggling with a diagnosis of Rett Syndrome, but they are constantly looking for new ways to help the families that have been dealing with Rett for years and need new, fresh ideas and things to try with their girls. The organization works hard to raise huge amounts of money for research, but they also make sure that parents have the support and friendship that is crucial to all families that live with Rett Syndrome. No matter what your interests, passions, or needs, Girl Power 2 Cure is available to help. You won't find another nonprofit organization like them. Whether you are a parent, grandparent, sibling, or just looking for an amazing nonprofit to be a part of, welcome to an amazing group of people!

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GP2C 07/22/2015

Shelley, Thank you for the wonderful review. We are so happy you and McKenna are part of GP2C! We love what we do and working to support families, raise funds for research and help to find a cure for all the girls!

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Volunteer

Rating: 5

05/07/2013

GP2C is a place where parents, grandparents, siblings, and caregivers can go for support, hope, and help. Getting a dignosis of Rett Syndrome is a heart-breaking time in a family's life. I remember being filled with grief and despair when I first heard the words Rett Syndrome. Being able to connect with others who have been where you are, who understand what you are feeling, is more important than anything else. The hope and support you receive at GP2C is what makes parents realize that Rett Syndrome can be beat! My questions were answered. I was able to get tools to spread awareness. I could even set up a page to teach others about Rett Syndrome and help raise money to allow researchers to continue their battle to find a cure. No matter where you are on your Rett journey... GP2C has something for you.

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glpz828 Volunteer

Rating: 5

06/02/2015

My daughter was planning an Art Auction and sell those drawings to benefit a non-profit. After attending Golf for a Cure and meeting a beautiful girl and her sister. She chose GP2C as the organization her Art Auction would benefit. After careful planning for several months, we finally focused on getting people to the event. We contacted GP2C and they gave us so many tools to help our event. We also had some very Special Rett girls and their families come to our event, It was amazing! We were very happy with the outcome, we raised awareness and some money. This has also left plenty of motivation in my daughter to do this all over again!

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GP2C 07/06/2015

Thank you for being part of our movement and for sharing your experience. GP2C appreciates your support!

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CarleeMcDot Volunteer

Rating: 5

05/12/2015

Worked with GP2C while running the #Ragnar4Rett with the other ladies from #TeamSparkle. They are AWESOMESAUCE! The money that goes towards Rett Research is extremely valuable and I am honored to have been a part of something so much bigger than myself!

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GP2C 05/13/2015

Thank you for being part of our movement and for sharing your experience. GP2C appreciates your support!

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Claire.oliver Board Member

Rating: 5

05/05/2015

Great organization. Not only raising money for a cure but also helping families connect so they have support through diagnosis and treatment.

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GP2C 05/13/2015

Thank you for the kind words and for sharing your experience. GP2C appreciates your support!

1

kristy-brooks Volunteer

Rating: 5

05/04/2015

We have a daughter with Rett Syndrome and I can't say enough how much it meant to our family to find this organization. Finding Girl Power 2 Cure has given us purpose. We are motivated to work with them and raise money to find a cure for our amazing daughters!

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GP2C 05/13/2015

Thank you for the kind words and for sharing your experience. GP2C appreciates your support!

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Volunteer

Rating: 5

05/04/2010

When we recieved the diagnosis of Rett Syndrome for our daughter we had a very rough time with it. We couldn't imagine how we would be able to move on, knowing what our future held. Finding Girl Power 2 Cure was what pulled our family out of depression and into fight mode. Girl Power taught us that we didn't have to take this diagnosis lying down. Their support and friendship was invaluable during this difficult time. They gave us a purpose again and light at the end of the tunnel. They educated us on the research going on and gave us advice for things we were going through. This organization helps so many people on so many levels. Not only is is spreading awareness and funding critical research, it is teaching families how to move forward in a positive way! Thank you Girl Power 2 Cure!

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amulrooney Volunteer

Rating: 5

04/15/2015

I am a Mom to a girl, Hailey, age 9 who has Rett Syndrome. I recently held my first fundraiser for GP2C at Texas Roadhouse. I was so excited for this event and to spread awareness. GP2C provided me with all the information I needed to make this event a success. They also encouraged me and made me feel welcome. We were fortunate to meet other Rett families that traveled to help us raise awareness. We have been welcomed into the "Rett family" . Thank you to GP2C for all of the help you provided and I look forward to working with you again on my next of many fundraisers!

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GP2C 04/22/2015

Thank you for the kind words and for sharing your experience. GP2C appreciates your support!

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WhitCooley General Member of the Public

Rating: 5

04/13/2015

This organization has gone above and beyond what I ever expected an organization to do. It has helped my daughter and my family in so many ways. They are always promoting events and making us feel included and in the loop with events and allowing us to participate in them. So grateful for Girl Power 2 Cure and the blessing it has been in our lives.

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GP2C 04/22/2015

Thank you for the kind words and for sharing your experience. GP2C appreciates your support!

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Joy_27 General Member of the Public

Rating: 5

01/09/2015

I have a personal interest in GP2C as my granddaughter has the same syndrome that sweet Laura has. I'm very impressed with how supportive they are. Also, it's extremely important to bring families together who have something in common. Even if that something happens to be Rett Syndrome.

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rhaydon Donor

Rating: 5

12/17/2014

I heard about Ingrid Harding and Girl Power 2 Cure through her uncle in Merritt Island, Florida. When I went to the GP2C website, I was amazed at how much this organization had accomplished. Ingrid is a mother who, after having a daughter with Rett Syndrome, went on a mission to help others. She is a fantastic role model for people who want to make a difference. I asked Ingrid to speak at Epsilon Sigma Alpha's (ESA) leadership meeting in October, 2013, and she was so inspiring that ESA has had fundraisers around the state to help raise awareness of Rett Syndrome and fund research. My ESA Chapter, Nu Alpha, recently had a fashion show fundraiser at Dillard's in Merritt Island and it was very successful. Many people came up to me, after hearing about Rett Syndrome, and told me they had no idea what Rett Syndrome was and they were happy to be able to contribute to this worthy cause. ESA will continue to support GP2C, and we pray that a cure will be available soon.

2

Stacy48 Volunteer

Rating: 5

09/30/2014

This was my first year assisting Kelly and her family in the fundraiser. I was and still am very excited to help. A little background on why. My son was in Brooklyn's classroom last year. They became great friends as well as I did with the teacher, Brooklyn's aunt. As we begun to draw closer the family who would come in and assist Brooklyn would explain Rhett, and what it does to the body. They have so much passion and conviction for what they do that it drew me in. I too wanted to play my part. So, I asked local business for donations and to hang posters. The night of the event drew closer and I didn't know what to expect so I got to to the venue early. There the family was setting up tables and running all over the place, it was chaos, however it was organized. I asked where I could help, as the night wore on I was overwhelmed by all the love and support of the community. In my eyes it was a huge success and I look forward to participating next year at the same level of compactity or more.

3

joyasam Volunteer

Rating: 5

07/23/2014

Joyful is how I would describe GP2C. Having worked in the not-for-profit arena for over 8 years, I have been so very impressed with the spirit of joy that permeates GP2C in every aspect of their organization, from special events, to their vision for our girls and the supportive way they look out for each other. Seeking a cure is important; but so is supporting the families that are finding their way through this new world they have found themselves in. Ingrid has grown a family of support and her staff shares her vision. As a grandmother of a Rett girl, my appreciation for what they do and how they do it is boundless. GP2C has made our lives better and allowed us to pass that on to others.

I am looking forward to many more special events where I can help educate and spread awareness of Rett Syndrome and - of course, raise money for a cure.

2

KLB1228 Volunteer

Rating: 5

07/16/2014

I have only volunteered for one event with GP2Cure, but after my experience, I cannot wait for next year! I had no idea what type of impact this event was going to have on me....I was welcomed with open arms and really made a part of the GP2Cure family. I have never been so honored to be a part of something that I didn't know that much about previously. Every person I encountered during that event was incredible. The Brooks family has become such a role model for me in regards to how I want to raise my family. Their family and friends are a tribute to what amazing people they are. I sincerely appreciate them allowing me to be a part of something so special.

2

BJTracy Volunteer

Rating: 5

06/10/2014

I have volunteered for several years in the local GP2Cure fund raiser and am able to see the positive results that this organization does. I have also been the physical therapist for several little girls with this impairment and personally witness the wonderful connections that families have with this great organization. GP2C provides a lifeline for families that cannot be met by any one other than those who are experiencing the same challenges with their daughters.

2

aikomstevenson General Member of the Public

Rating: 5

06/09/2014

I never heard of Rett Syndrome until I met this sweet girl, Laura. Her family and friends from her school love her so much that I wanted to be a part of raising awareness and fund for research. If you are looking for a non-profit charity organization to help, GP2C is perfect; it is filled with awesome volunteers with great energy!

1

Gail35 Donor

Rating: 5

06/09/2014

I had a great time, and saw many friends. I won several items at the silent auction, including a baby quilt. I gave it to a friend who is having her first baby and she loved it!

1

Pjvieser Volunteer

Rating: 5

06/02/2014

The mission of GP2C to raise awareness of and support families with girls afflicted with Rett Syndrome is carried out by Ingrid Harding and her dedicated team. I recently had the opportunity to work with this amazing group when co-chairing a charity golf torunament to raise funds for this worthy cause. I was impressed by the professionalism, vigor, and unwavering passion of the GP2C organization as they facilitated the tournament to fulfill our common goals of raising awareness, support, and funding for Rett Syndrome. GP2C is a truly inspiring non-profit to work with and support.

1

aircas13 Volunteer

Rating: 5

06/02/2014

The Newcomers Ladies Golf Club of Amelia Island recently hosted a charity golf tournament to help raise funds for GP2C. Our Golf Club worked hard to obtain sponsors, donors and a field of golfers. However, preparing for this event would have been so much harder without the guidance and support of the Girl Power 2 Cure staff of Ingrid Harding, Jen Stallings and Claudia. These ladies are totally dedicated to the Girl Power 2 Cure Family. You can see it by the smiles on their faces each time we would sign up another sponsor, donor or golfer. I am personally proud to say I am a true believer of the organization and their continuous efforts to find a cure for Rett Syndrome and help the families and their daughters dealing with the challenges Retts brings to their everyday lives.
I thank God everyday for connecting me with Girl Power 2 Cure. Sometimes there are charitable organizations, which are not so trustworthy. But Girl Power 2 Cure is not one of those organizations. Feel confident your generosity is used to benefit Rett Girls in every way possible.

1

Miracle4Myiah Client Served

Rating: 5

04/21/2014

GP2C helps raise awareness, connect families, answer questions, and provides overall support to help families receiving a Rett Syndrome diagnosis learn to cope with what the future holds. This organization and the people who make it up are AMAZING individuals and the work they do is absolutely priceless. I'm forever grateful that GP2C exists.....our family would be lost without them!

1

kenza Volunteer

Rating: 5

04/21/2014

hi their i have a 2 year old daughter that has rett syndrome with me being a teen mom and not really knowing much about this disibility girl power 2 cure helped me out a lot!!!! its a great organization that helps not only moms know about rett syndrome but also lets the world know more about it. ... me and my family dont look at is as a organization but more like a helping hand a place where i can ask questions and compare things with other moms who have been threw this!!! their aren't a lot of girls in ct with rett syndrome so for me its personally a great way to know and meet other moms and girls... as my angel continuous to grow and get bigger as she turns 3 5 and hits her teen years i hope that girl power 2 cure and all the moms out their will help me get thew it all .. keep up the great work!!!!!!

1

Vanessa18 Client Served

Rating: 5

02/25/2014

GP2C doesn't feel like an "organization"; it feels like a family. This isn't an organization that is all about just adding another member or another $ sign. Girls with Rett Syndrome are the heart and soul. GP2C works tirelessly to fund research for a cure, but I once heard founder, Ingrid Harding, say that one of her fears is that a cure will be found, but there will still be girls out there undiagnosed. This "family" does what they can to spread awareness about Rett Syndrome so that won't happen.

I am a GP2C family member because my daughter has Rett Syndrome. This is where I turn when I need medical and/or therapy advice, information on new research, or I just need someone to say, "I get it. I've been there, too."

1

mwhite Volunteer

Rating: 5

10/23/2013

The last few years have given me an new insight and appreciation for having a healthy daughter. My best friend's daughter was diagnosed with Rett and the journey has been nothing short of life changing. I've watched GP2C generate hope where Rett robbed them and create spark where a fire had been extinguished. GP2C pulls families out of a lonely dark place and provides them with a circle of friends and family that they can depend of for strength. Most importantly they have shown appreciation for every dollar they earned and put those dollars directly to research. Nothing feels better than to give and know what's given is being appropriated honestly. In addition, the mission to educate the public through creative resources has been amazing. Keep up the great work!

sweetpealott Donor

Rating: 5

10/22/2013

GP2C is always up to date with all the current studies. I love that they share stories about all of our Rett girls. Having that connection with each other helps us all underdstand Rett syndrome a little better. I also like how they share volunteer ideas. My niece has Rett & we are determined to find a cure & help all the little girls out there. I can't wait for the day for my sister, brother-n-law & nephew to hear the words "I love you" to be spoke of from her. Every parent & sibling longs to hear those words from our Rett girls. The more we can spread the word about this syndrome the faster a cure will be found. WE CAN DO THIS! Never give up on our girls :-)

rondatrester Board Member

Rating: 5

10/22/2013

I absolutely love GP2C. I have a daughter, age 8, who has Rett Syndrome. The journey has been heartbreaking, but with a group such as GP2C you have encouragement and hope. The non-profit organization encumbers the most amazing supporters who are caring, loving, compassionate individuals that truly get you. I am honored to be a part of such an incredible organization. We have the same goal- We have the same mission! Together we can make a difference. Believe in the power to cure Rett Syndrome!

tanisanderson83 Client Served

Rating: 5

10/22/2013

My daughter has Rett Syndrome and after the initial shock of the diagnosis I found Girl Power 2 Cure. They have helped me in so many ways with support and resources. Through this organization I have met so many wonderful moms, dads, siblings and friends of girls just like mine and they have become my friends. I don't think I could have gotten through the last 2 years without them!

Naomi S. Donor

Rating: 5

10/18/2013

I had never heard about Rett Syndrome until my son came home one day his freshman year at highschool. He told me about Laura,one his band director's daughter with Rett Syndrome. He because involve and when I saw how excited he was about helping I became involved also. I make cake pops for the Rocking for Rett event Tina holds every year. Last year I also made a mosaic tile plaque for the silent auction. I will be there again this year with my cake pops and another mosaic tile plaque.
Tina is such an inspiration. I admire her so much. Girl Power 2 Cure has been such a resource for their entire family. I am so glad there is such a great organization to help the families that have be affected with Rett Syndrome.

Candice4 Volunteer

Rating: 5

10/15/2013

In February 2013, our two year old daughter was diagnosed with Rett Syndrome. Girl Power 2 Cure (GP2C), their staff, members, and supporters, have become a beacon of light for me and my family. They bring an air of excitement, youthfulness, and fun to a very serious diagnosis. As a volunteer, I found something to throw all my energy behind and know that everything I do with GP2C is going to help find a cure for Rett Syndrome and help the next family that receives a diagnosis of Rett Syndrome. As a parent of a daughter with Rett, I found an organization committed to my daughter and to us. I volunteer as often as possible, arriving at their office full of excitement and leaving rejuvenated. GP2C is very dedicated, inspiring, motivated, and creative in their approach to fund raising and awareness. It is no surprise that they are rapidly growing. I'm thankful and proud to be a part of GP2C.

Dawn62 Client Served

Rating: 5

10/14/2013

My daughter has Rett Syndrome. From the moment I heard about GP2C I knew they were special. The support, the inspiration, the knowledge they have and share has been amazing. I have made wonderful friends who I know will always be there for my daughter and our family. My journey as a parent to a child with Rett Syndrome was forever changed and made easier just by being a small part of this wonderful organization's family.

isabelanne1021 Volunteer

Rating: 5

08/19/2013

This past summer, I was given the opportunity to work as an intern for Girl Power 2 Cure. In short, Girl Power 2 Cure raises awareness, support, and research funds in an effort to fight Rett Syndrome, which is a debilitating neurobiological disorder that mainly affects females. I loved working for them, to say the least. Not only did I get to meet wonderful people like Ingrid Harding and Cynthia Colalillo, but I was truly a part of something bigger than myself. Before coming in contact with this organization, I was not aware of the devastating effects of Rett Syndrome. I hurt for the girls who experience this and for their families. The work that Girl Power 2 Cure does to empower and aid these girls and their families is INVALUABLE! They are bringing a community together where before rett families were scattered and information on how to care for rett girls was even more scattered. I am very excited to see where Girl Power 2 Cure goes in the future - especially with their proposed program Rett University, which would revolutionize how rett girls and their care teams are taught and connect.

racheldalton4 Volunteer

Rating: 5

07/11/2013

GP2C is the most inspiring organization I've ever encountered! not only does it provide funding but it provides support and LOVE!

Rheabax Volunteer

Rating: 5

07/11/2013

GP2C was an organization that I wanted to be part of when my sixth child was clinically diagnosed with Rett syndrome. This organization gives hope when sometimes life with Rett is incredibly difficult. They do an amazing job with supporting parents, raising money for a cure and they absolutely thrive on doing their best.

Aunt Jane Volunteer

Rating: 5

06/28/2013

My great niece Julia Miller has Rett Syndrome. She has a loving family who has been trying to raise money for research to cure this disease. Recently with the help of Girl Power 2 Cure, a benefit was held and they raise $13,000 to aid in finding a cure. Julia's Mom, Tarah Miller, organized the benefit and with the help of friends and family she made it a huge success. It was amazing to see how supportive the Girl Power 2 Cure team was in showing her Mom what needs to be done to make this benefit successful. I got to meet Ingrid Harding, the Founder and Executive Director of Girl Power 2 Cure who traveled from Florida to give assistance where needed. I also got to meet so many of the girls with Retts. People who attended Julia’s benefit were exposed to so many informative brochures to help educate more people on Retts.

I would like to thank all who were involved in this wonderful opportunity to find a cure for my Julia.

Patricia M. AZ Volunteer

Rating: 5

06/25/2013

My daughter Olivia made a friend in Kindergarten named Laura. Laura has Rett Syndrome. Olivia was very excited about our 1st annual Rockin' For Rett and asked me to contact Laura's mom, Tina, and ask how we could help. Since then, we have volunteered our time and had 2 more Rockin' for Rett events, to benefit Girl Power 2 Cure, in hopes that Rett Syndrome will one day be cured. I know that Girl Power 2 Cure has been a great resource to Laura and her family and they are thrilled to be a part of such an amazing and supportive organization. Keep up the great work GP2C!

oaklynnbug Board Member

Rating: 5

06/25/2013

I learned about GP2C from my sister. Right after my daughter was diagnosed she was searching to learn more about Rett Syndrome and came across GP2C. She sent me an email with the info and I signed my daughter up. Right away I was contacted from someone to welcome me and let me know that they were there for me if I needed anything. I am grateful to GP2C for helping me out through hard times and for celebrating good times with me. I love GP2C!!

RettDad General Member of the Public

Rating: 5

06/25/2013

My 7 year old daughter is battling Rett Syndrome. From the day of her diagnosis, GP2C has been a part of our life. They strive to provide us with support, information, research and most importantly HOPE that a treatments and a cure are within our grasp!

specialmommyx2

specialmommyx2 Client Served

Rating: 5

06/25/2013

I connected with GP2C over 5 years ago after receiving my daughter's Rett Syndrome diagnosis. The website was so "upbeat" and positive - in a world where doom and gloom of what life with Rett Syndrome might look like, this organization was a pleasant change. It encouraged me and encouraged me to channel my energy in what my daughter CAN do. I felt so "at home" with the organization I soon became MORE involved and ultimately became the Family Support Coordinator. After six years with our diagnosis, I am glad that I am at a place where I can now help other families along their journey.

JennTyler Volunteer

Rating: 5

06/25/2013

I recently helped with and attended GP2C's event and it was incredible! I learned about Rett Syndrome and the organization from Tarah Miller, Juila's mother. Julia is a beautiful and inspiring little girl with Rett's. Tarah organized this event to raise monies to find a cure for her daughter and so many other little angels effected by this disease. For a first time event, it was amazing. Tarah worked behind the scenes for months and months writing donations letters, gathering volunteers, organizing bands to play and spreading the word about Rett's and the event in several media outlets. The evening was an overall huge success. The event was coordinated so well. The bands were great, everyone enjoyed singing along and dancing. The gift baskets and raffles were a wonderful. Overall, it was just amazing to see so many people gather to learn about and support such a worthy cause. My favorite part of the evening was seeing so many Rett Girls and their moms out on the dance floor!

Tina W. Volunteer

Rating: 5

06/24/2013

From: Dave, father to 8 year old Laura Rayne Walton, our Rett Angel.
I am very impressed with everything I see from Girl Power 2 Cure. They are a very dedicated group and their caring and giving attitudes are most amazing. I have attended several Rockin' for Rett events and the organization and excitement generated is always impressive. I know that they will keep up the high level of enthusiasm and work; and with time I know they will become even greater!

FrankieZee General Member of the Public

Rating: 5

06/23/2013

The Benefit I attended was an Amazing turn out. The out pouring of Love to help kids with Rett was just pure Love and Kindness. It was very well organized and showed how many people in this world that people can come to the plate and show that they really do care. I'm glad I was to be a part of the Event.

Sm650 General Member of the Public

Rating: 5

06/23/2013

This benefit was a great turn out. The event was amazing! It was a lot
Of fun and just nice to meet new people and spread awareness for RETT syndrome. Tarah did an amazing job with this benefit, a lot of hard work definitely paid off!

1

Elizabeth103 Donor

Rating: 5

06/22/2013

Girl Power 2 Cure Inc is an amazing organization. My little girl has Rett Syndrome and I've seen this organization grow from inception to the wonderful group it is today. Their idea that there is power in every girl and that we can all harness that power within to help find a cure for Rett syndrome is a perfect way to reach out. I have attended a fantastic fundraiser this week that was emotional and heartwarming. I have sold paper flowers and grown a Girl Power 2 Cure garden. The organization is run by people who truly care for this cause, often due to the fact that each person knows someone or is related to someone with Rett Syndrome. I know I can call them and get support. Their website is always filled with heartwarming stories and pictures of our girls as well as being a great resource of information. Their "purple" card has helped me share my child's story, our lives, with others. I'm proud to know the people who run Girl Power 2 Cure Inc.

1

Tarah Miller Volunteer

Rating: 5

06/22/2013

I am not only a volunteer and donor, I am also a mother of a Rett girl. This organization is more then inspiring! They made me want to do more then just wish and pray for a cure, but rather become part of finding one! They make you feel so welcomed and understood, as if they have know you all your life. GP2C brings such joy and hope to something many would find sad and heartbreaking. I am honored to be apart of GP2C!
Tarah Miller

carol101 Professional with expertise in this field

Rating: 5

06/18/2013

I have been involved with this organization since its inception. It has gone from a founder's organization to a group with talented outside leadership. I believe, given the dedication of this board and the leadership, that they will be significant players in finding a cure for the debilitating condition.

1

ksheets Volunteer

Rating: 5

06/07/2013

I am not only a volunteer and donor but my niece has Rett Syndrome! I am lucky enough to have a close personal relationship with GP2C! I simply do not have the words to explain how AMAZING this organization is as well as the people who run this charity! Their knowledge and resources have helped countless individuals. They spread awareness and touch the lives of families all across the world! Their flower has come to represent hope and power! Girl Power and hope that a cure for Rett Syndrome is in our NEAR future! Please share Girl Power 2 Cure with all your friends and family! They will touch your heart and give you inspiration for greatness!

1

Lirwin General Member of the Public

Rating: 5

06/05/2013

This organization is absouelty incredible. I'm a teenager and was doing a school project in rett syndrome when I came across GP2C. I spoke with them and they really helped me launch my project. It was truly a gift to have their help. Every single action they take is to help cure Rett syndrome. I have never seen a more committed and passionate group of people in my life. Their girls are in a fight everyday just to be normal. We need to continue to allow this organization to do their amazing work by supporting them. I LOVE GP2C with all my heart and hope that their work will continue for a very long time. I have been able to speak with several families who have girls with Rett syndrome and I could tell right away what girl power 2 cure has done for them. It FANTASIC! They have created an outstanding resource for parents to go to if they ever have questions or just want to connect with other rett families. GO GIRLPOWER and GO GIRLPOWER 2 CURE

colalillo Volunteer

Rating: 5

06/04/2013

Girl Power 2 Cure is a wonderful organization that goes above and beyond to support families who are battling Rett Syndrome. I am blessed to be part of GP2C as their Program Coordinator. Each day we are working towards raising awareness, to reach as many girls out there to give them our support and most importantly the hope that there will be a cure one day.

KatieRuth Volunteer

Rating: 5

05/13/2013

Girl Power 2 Cure is an amazing organization! I have had the priviledge to vounteer for them and see first hand the difference they make in the lives of girls and families affected by Rett Syndrome. All of the individuals involved are filled with passion to spread awareness about Rett Syndrome and work towards a cure for this terrible disorder, every event I have seen has been filled with positive energy and hope that a cure is coming soon. I have enjoyed every moment of time volunteered with this organization and hope to work with them again in the future.

Mimi B. Volunteer

Rating: 5

05/09/2013

My daughter was diagnosed with Rett Syndrome in 2006. For the first few years of her diagnosis I searched for support, information, and for a tread of hope. I felt alone in this journey. It was years later (in 2009) when I learned of Girl Power to Cure, and our lives were forever changed.... I realized that we were not alone, and that together~ we CAN make a difference. There were so many other famlies out there to talk to. To support eachother in good times and bad. There are friends, strangers, and famlies coming together to raise awareness, and working towards a cure. GP2C helped me lear that, and brought us together with so many famlies. They are a place for information, support, friendship, and HOPE.

JennM Board Member

Rating: 5

05/09/2013

I am honored to be on the Board of Girl Power 2 Cure. With the great strides that are being made towards finding a cure it is more important than ever that we support our researchers as well as our girls. Girl Power 2 Cure does both through fundraising efforts for research and incredible family support and outreach.

Roger21 Board Member

Rating: 5

05/08/2013

Our family found Girl Power 2 Cure in 2009 shortly after our daughter Juliana's diagnosis. We were so moved by the care and compassion we received, I became a board member in 2010. I currently serve as Board Chairman and I am very proud of the support we provide families, the awareness we create across the country, and the efforts we put towards finding a cure for Rett Syndrome through fundraising. Girl Power 2 Cure gave us hope, hope for a better future for our daughter and taught us that when we work together, we can do amazing work. They have been our source of inspiration and family over these last years and I could not be more proud to be affiliated with such a remarkable organization. We will find a cure for our girls one day and it will be because of the coming together of all of us, working together and believing our girls deserve so much more. - Roger Brooks, Juliana's Dad

Danielle34 Client Served

Rating: 5

05/08/2013

This is who I've been looking for since my daughter's diagnosis! An amazing group of parents who are welcoming and supportive.

Rhea Bax Volunteer

Rating: 5

05/07/2013

Girl power 2 cure has given me such hope, especially when my sixth child, Anna was diagnosed with Rett syndrome. Their website was bright and their attitudes were brighter. I looked into other organizations that dealt with Rett, but GP2C definitely won my heart. I am thankful to this organization that brought me out f darkness and saw great potential in my daughter's future!

rttklb Volunteer

Rating: 5

05/07/2013

I joined this group without knowing anyone. I do not have a daughter with Retts. The group was amazing! The other parents so grateful and welcoming. All my questions were answered. Support and help was always available. Best experience working to make a difference. Highly recomend this this group.

Christina Walton Board Member

Rating: 5

05/06/2013

GP2C is nothing but support and power when it comes to helping families of girls with Rett Syndrome. Our daughter, Laura, received her diagnosis in March of 2007 and since then we were brought in to the wonderful family called Girl Power 2 Cure. These people radiate hope and a never ending drive to keep striving for what you BELIEVE in. With a belief that Rett Syndrome will be cured some day in the near future, we all work to keep the faith, support each other and others as needs arise.

Jen_16 Volunteer

Rating: 5

04/24/2013

GP2C first entered our life almost 5 years ago when our then 2 year old daughter was diagnosed with Rett Syndrome. In a time when were scared and heard more of the bad than the good, the little flower of hope gave us a focus. There WILL be treatments for this disorder. There is HOPE. I will continue to support this fantastic organization with my time and talents to help others they way GP2C has helped me!

Kristin2345 Volunteer

Rating: 5

04/24/2013

Girl Power 2 Cure has given our family great support, hope, and the opportunity to BELIEVE in the power to cure Rett syndrome. We have been involved with GP2C for 4 years and are grateful for all they have done in that time. They have grown much larger since! Which is a wonderful accomplishment. GP2C has supported our family, other Rett families and communities around the nation with different events. I Believe they should receive well beyond a 5 star rating as anon-profit and I look forward to watching them grow even bigger! Job well done GP2C!

Previous Stories

Advisor

Rating: 5

11/28/2011

We have been involved with Girl Power 2 Cure for 3 years! They have given us so much support and information about rett syndrome. Because of Girlower 2 Cure, our family has been able to advocate for Brynn better and raise much awareness! I have never felt love and support from any other non profit and they deserve well beyond 5 stars!

psbell3 Client Served

Rating: 5

04/16/2013

I have a daughter with Rett Syndrome and first came across this organization at the 2012 Disney Princess Half-Marathon Expo. GP2C is an amazing organization which raises awareness, supports families and rasies funds for research. They offer great products such as little purple cards - which tell the Rett story for a specific girl, t-shirts, buttons, and paper flowers. All of these items are very beneficial in getting the word out about this debilitating disorder. The GP2C website offers many items that supports families. The ideas that are shared there including recommended technology, iPad apps, ideas for various issues that arise with Rett are very helpful for families. The fund raising for GP2C occurs in a "grass roots" type of format. It is amazing that seemingly small dollar amount fundraisers held across the country can add up to so much funding for research. The passion found in this organization is second to none. We all want a cure for Rett Syndrome and this organization has taken that desire to the next level.

ksoojung Client Served

Rating: 5

04/12/2013

I have a daughter with Rett Syndrome. Ever since the diagnosis, my family has gone through some difficult times dealing with this devastating disorder my daughter has. Kelly Butler at Girl Power 2 Cure, Inc. has helped me to connect with other families. GP2C provides support and resources for the families and I feel that my family is able to move on and be empowered by the support of the community GP2C helped us to build. GP2C promotes awareness and raises fund for research and family support. I strongly encourage newly diagnosed families and anyone who wants to be educated and get involved in Rett awareness to contact GP2C.

Lori234567 General Member of the Public

Rating: 5

11/29/2011

my daughter has Rett Syndrome and the Girl Power 2 Cure is working hard everyday and in every way to inform people about this aweful disease. They are a wonderful support system for Rett Families.

This 'thing' that has taken our daughters from us can only be repaired; cured, through research. Funding is needed for research to find that cure. My family puts on a fundraiser every year to help raise funds for this important research. Knowledge is Power!!! Power Can Cure!!

cureforkeira Client Served

Rating: 5

11/29/2011

Originally our daughter's Auntie bought a beautiful rett girl flower sun catcher after she was diagnosed last year. We then began to connect with families on facebook and met a mom/team member there. We then began to plan for a better future than what we have been offered for our daughter, and we sent in a small donation and we immediately recieved an email and call from the exec director. The family support is phenomenal and the educational opportunities are endless with the web support. We are blessed to have a team like this on our side. After launching Keira's page we were able to raise $600+ for research and support and it was totally free for us! Thank you GirlPower 2 Cure!

Marta C. Volunteer

Rating: 5

11/28/2011

I contacted Girl Power 2 Cure the day we received Caroline's diagnosis. They immediately reached out to us with assistance and information, and connected us to other families in our area. Since then, we've received daily support, encouragement, and benefited from the incredible knowledge base of the GP2C staff and community. We are deeply grateful.

Marta Conner

annas mama Client Served

Rating: 5

03/15/2011

Our daughter Anna was diagnosed with Rett Syndrome in February 2010. We were devastated and needed family support and a positive attitude about living with Rett. Girl Power 2 Cure not only connected us with other families but it also gave us practical ideas on everything from alternative communication devices to fundraising for a cure, and just about everything else you can imagine. We love our GP2C family!

Vickie

Vickie Client Served

Rating: 5

03/09/2011

I found Girlpower2cure on facebook. I looked at their page and was sure I had found a way to raise awareness and money for research that would be easy and fun to do. I dont have much free time so this was exactly what I knew I could commit to. Kelly had Vicoria's web-page up and running in less than 24 hours I was pleasantly surprised.With-in days I had my flowers for her garden, and personalized fliers. Yesterday I recieved my beautiful purple cards. In less than a week I had all the tools needed to get started. I have a meeting at Victoria's school today to get this garden planted. I know I will use Girlpower2cure for all future fundraising projects,Kelly made it simple and she was available to help me get started. Thank-you ladies for giving moms like me a way to help raise awareness for Rett Syndrome it blesses many.

Lisa D. General Member of the Public

Rating: 5

03/08/2011

I came upon Girl Power 2 cure shortly after my daughter was diagnosed with Rett Syndrome. My local hospital had very little information for my husband and I. This web site had provided a life line for us! Not only have I connected with the wonderful folks like Kelly who work for GP2Cure but other families as well. They have helped me to create tools such as a web page and business "like" cards that allow me to introduce others to my daughter Lily while explaining Rett and spreading awareness! They have wonderful marketing ideas and fundraising tools which has been such an amazing resource in such a little amount of time. Again, when I think of GP2Cure, I think "my lifeline!" They are fabulous and I don't know what I'd do without them!

Kelly S. Volunteer

Rating: 5

03/08/2011

We became part of the Girl Power 2 Cure family after attending one of the fundraising events they have created. There are so many things that Girl Power 2 Cure is doing for families, to raise awareness, and to support families in fundraising. Notice I am saying "family" alot? Well, that is because Girl Power 2 Cure is like a family for this family of a beautiful girl with Rett. Through them, this Mom feels empowered, and the little sister of this family does too! We can make a difference in our Rett Girl's life and Girl Power 2 Cure is helping us do that with information, support, and advice. Thank you Girl Power 2 Cure!

budd0806 General Member of the Public

Rating: 5

03/08/2011

We found Girl Power 2 Cure when our daughter was diagnosed with Rett Syndrome. This non profit is an amazing organization that reaches out to families and the general public to spread awareness and raise funds to fund a cure and treatments for rett syndrome. Their dedication and commitment to this cause surpases many with not only their care and kindness but their expertise that many other organizations lack. I am blessed to have found this organization.

Kristy J. Client Served

Rating: 5

03/08/2011

I became involved with Girl Power 2 Cure after our daughter was diagnosed with Rett Syndrome. We wanted to be part of the Rett Community and learn what we could do to help. We have found exactly that in GP2C! We feel like part of the "Rett Family" as they have opened their arms to us and have given us the resources to help our baby girl and so many other families through fund raising (Dress Up 2 Cure) and links (rettgirl.org) to helpful information and so much more. Thanks so much for ALL you do!

dee34 Volunteer

Rating: 5

03/08/2011

I became aware and involved with Girl Power 2 Cure after seeing my friend's beautiful daughter diagnosed with this crippling illness. I remember holding her when she was born and was so excited that my friend was blessed with such an awesome little girl. Even though Brooklyn can't do many of the things that other girls can do, that feeling of optimism still lingers because of organizations like Girl Power 2 Cure. I started donated to the organization on behalf of Brooklyn and the hundreds of other girls. I feel it is my duty as a woman to stand up for these girls. I am also helping to get a fundraiser together now so Girl Power 2 Cure can educate, advocate and help fund research around Rett Syndrome. At the heart of the organization are 2 women who will do whatever it takes for their girls and others. I also love that fact that the organization brings together families around the world for support. They are an inspiration and I am proud to suppor this organization.

dawnconroy General Member of the Public

Rating: 5

03/08/2011

I found Girl Power 2 Cure in January 2010 shortly after I found out my then 2 year old daughter was diagnosed with Rett Syndrome. The organization provided me with information and resources that other organizations could not provide, that was the personal experiences of the Rett parents. Through GP2C I have connected with many amazing Rett Moms that I consider to be some of my closest friends and I know that are with me on this journey. In addition, I have found resources on ways to improve my daughter's quality of life, which is priceless.

Margaret Volunteer

Rating: 5

03/08/2011

Our Granddaughter was diagnosed with Rett Syndrome 21/2 yrs ago. It was heartbreaking to think she will never walk or talk.. but with the effort of Girl Power 2Cure and all the caring people she will be able to do these things... We just need more people to care about the research and donate to accomplish this... Then not only our Granddaughter but her family can have a normal and better life... Please help as I would love this to happen in my lifetime for her and many other beautiful girls. Thank you.

EmmaClaires mom Client Served

Rating: 5

03/08/2011

What awesome support and great resources Girl Power 2 Cure provides to families with Rett Syndrome! Our daughter was diagnosed with Rett Syndrome in September 2008. After meeting Ingrid Harding and learning about GP2C, we have made connections to services, equipment, and other families. Their website provides recommendations for every aspect of Rett Syndrome. Kelly Butler helps with any questions you have! What a great "place" for Rett families!

7

debbie-davis General Member of the Public

Rating: 5

06/08/2010

My name is Debbie Davis and I am blessed to know Ingrid Harding and Kelly Butler with Girl Power 2 Cure. These two amazing women are the epitome of "mom-power". The love and hard work behind Girl Power 2 Cure reminds everyone that no act is too small. We can make a difference, and Girl Power 2 Cure promotes this. This great cause is changing the lives of girls affected by Rett Syndrome, and it is inspiring fellow peers who do not have Rett to know how special they are, too.

8

brookiesgrammy Volunteer

Rating: 5

05/28/2010

My granddaughter was diagnosed with Rett Syndrome around her second birthday. Our family was devestated! We knew nothing about Rett! My daughter searched the internet and found Girl Power 2 Cure...What a Blessing!! She was able to connect with other moms who could "walk her through" what was to come. It is so good to know you are not alone.

7

anniesmom Volunteer

Rating: 5

05/28/2010

My daughter was diagnosed with Rett Syndrome in May of 2006. It was a devastating time for our family. We took time to grieve and get our daughter the help that she needed. When we were in a more stable place we decided that we would do everything possible to help our daughter and to fight for her cure. We started networking with other families and looking into medical research for Rett Syndrome. Through that networking we met woman named Monica and she introduced us to Ingrid, founder of Girl Power 2 Cure. After meeting Ingrid and reading about Girl Power 2 Cure I was thrilled. I loved the positive attitude that the organization portrayed and how they empowered families, kids and schools to come together and do something amazing: raise funds for Rett Syndrome research! Since I have been working with Girl Power I have come to know and love so many families and their girls. I am constantly supported and assisted in any and all fundraising endeavors. And the positive, empowering attitude is very much contagious.

8

aunt-kristin Volunteer

Rating: 5

05/27/2010

Girl Power 2 Cure is a fantastic organization that raises awareness and funds for Rett Syndrome as well as promotes over all positive self image and empowerment of young girls! I am a teacher and have participated in their Dress Up 2 Cure fundraising campain the past three years and it has been an amazing experience for my thrid grade students. They have become more aware and accepting of children with disabilities over all which is always a great thing to be a part of. This year my students REALLY fell in love with my neice Brooklyn and even made her birthday cards this year....they adore her! I love the work of Girl Power 2 Cure!

7

terri4 Volunteer

Rating: 5

05/19/2010

Girl Power 2 Cure is a part of my life and run by the most wonderful and caring individuals. They are so much more than a fundraising organization. If I am having a bad day I get a call or an email. If my daughter is sick I get a shoulder to cry on and a hand to hold. I have never seen or heard of anything like this from any other charity. They are truly hands on and they make sure they KNOW each and every person they serve and their families. Truly the best!

7

loriquig Donor

Rating: 5

05/12/2010

If an organization could run on passion alone, GP2C would have cured Rett Syndrome 10 times over. The founders have literally put their heart and soul into this work, because it will translate into saving girls with Rett Syndrome. All the work is done by volunteers with mostly borrowed or donated supplies. Almost every penny raised goes directly to research aimed at curing this debilitating condition.

6

myrnajo Client Served

Rating: 5

05/12/2010

My name is Myrna Johnson. My grand daughter was diagnosed with Rett Syndrome a few weeks after her second birthday. My son posted on his blog about Nora's diagnosis since so many people follow their blog and would be able to find the details there. One of the first people to comment on his blog was Kelly Butler from Girl Power to Cure. We didn't have to go looking for a support group they found us before we even could start thinking about the support that would be needed. She just put a short comment on my son's blog that she had a daughter with Rett Syndrome too and to check out their site for a lot of good details. I now follow Kelly's personal blogs and the Girl Power to Cure site almost daily. There have been many times that I have had questions. I have emailed Kelly and within hours I have a response back. It's a good feeling to know that there are people out there that have walked in your shoes and are eager to help in any way possible to make the path a little easier. Girl Power to Cure cares so much about Rett Syndrome that they are a big encouragement to the rest of us to help find a cure for this sad syndrome. I'm glad I can depend on those at Girl Power to Cure to be there to help when help is needed most. They're the best!

8

xayiasmeme Client Served

Rating: 5

05/11/2010

My name is Lori Moorehead and in 2008 I was granted custody of my step-granddaughter, Xayia. Two months after she came to live with us she was diagnosed with Rett Syndrome. I was devastated. I started scouring the web looking for information and support. Everything I read and all the organizations were so bleak. I went to an Autism support meeting and was told (by the area rep) that she really hoped she would never have to meet any family with Rett Syndrome. Needless to say I never returned. Xayia's early intervention specialist suggested something called Girl Power 2 Cure. So I poured over my computer and found out there is hope and I can handle this and my little Xayia will be ok. I spoke on the phone and through emails with Kelly Butler and Ingrid Harding and received words of encouragement and the knowledge to raise our girls. This year I have helped Girlpower2cure raise over 800.00 in my small community and I am but one of many members working to raise money for a cure and to spread the word about this syndrome that can affect many girls. These wonderful women have helped me realize Xayia and I are in control of our lives not Rett Syndrome. We are not victims, we are soldiers fighting a battle that we will win.

6

syds-mom Volunteer

Rating: 5

05/11/2010

My daughter was diagnosed with Rett Syndrome in 2004. Shortly after her diagnosis, we attended a national conference of another Rett Syndrome organization, and I was recruited to service as a local state rep. During the 2 years I served in this role, I was able to meet and connect with many families with daughters suffering from Rett Syndrome. At this time I also began raising money for Rett Syndrome research, and while I was very hopeful in direction of research and science, I felt disconnected from the organization and did not feel that its stated mission of finding a cure for Rett Syndrome was first and foremost. My daughter was selected for a Littlest Hero photo-shoot in June of 2008, and through the photographers blog Kelly contacted us and we began exchanging emails. It was so great to meet some more families who are 100% behind finding a cure for Rett Syndrome. I love the energy and enthusiasm of both Kelly & Ingrid and all the incredible families I have meet since joining the GP2C team. We all work very hard to raise money throughout the year, and the focus on a cure is never lost. There are no distractions, very little (if any) overhead costs, and all money raised goes directly to cutting edge research (RSRT). I am very proud to be a part of this organization and love all the positive ways in which we are able to help and support each other and our daughters. Kelly & Ingrid Rock!

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dturnip1 Client Served

Rating: 5

05/11/2010

Edda was diagnosed with Rett Syndrome four years ago in 2006. Girl Power 2 Cure brings the "fun" to fundraising! They work tirelessly to drum up money to fund research to find a cure for Rett Syndrome. Their hard work and optimistic attitude inspires me always to do more!

2

jen10 Board Member

Rating: 5

05/11/2010

When my daughter was diagnosed with Rett Syndrome in September 2008, I immediately needed to find a place for support and a place where I felt I could use the pain of such a devastating diagnosis to help find a cure. Girl Power 2 cure was a perfect fit. Kelly Butler and Ingrid Harding welcomed me with open arms and helped to give me a feeling of empowerment - that we could beat the monster that had taken over our girls. I was invited to become a member of the Mother's Advisory board and with it the opportunity to connect with other families all around the world, who are struggling everyday with this little known disorder. Being able to help others has provided me with a huge amount of strength and strength to others!

2

suzanna1 Donor

Rating: 5

05/05/2010

My daughter was diagnosed with rett syndrome in May of 2009. This was the most devastating and heartbreaking news my family and I had ever received! I felt so lonely and lost until i met Bridget. Bridget is on the mothers advisory board for Girl Power 2 Cure. She introduced to me to this fabulous organization that i had never heard of. I am so grateful for Girl Power 2 Cure! They have helped me to become a stronger person and better mom to my daughter. Girl Power 2 Cure is helping me to spread rett sydrome awareness in my community with such confidence. Girl Power 2 Cure has truly been a power of positive change for me and my family. I have never felt so full of life and empowered!

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