What a dedicated group that has been crucial in bringing together the world's experts in this field to share the latest findings and collaborate to apply these solutions.
Our son was diagnosed with Histiocytosis when he was six. We had never heard of this and we were looking for a way to hear the stories of others in our same situation. We are grateful to have the Histiocytosis Association and be able to connect with other families.
The Histiocytosis Association is dedicated to providing support, education, linkage, and knowledge to the community. They are exceptional at providing service to patients, families, caregivers and providers. Their stewardship and direct connection with events, outreach and awareness ensure that the community is aware of their heart felt dedication to their mission statement and toward funding research to ensure best practices for treatment and a cure.
I am an LCH survivor; the Association was there for my family during the difficulty of diagnosis and beyond. They connected us with physicians who helped saved my life with the latest treatment. I also appreciate all the resources they continue to share out, including the webinars and podcast, so that I can stay informed of the latest changes and research.
Leadership that is focused on mission. Great stewards of resources, human and financial. Doing great things in service to patients and families. HA is a top-notch organization serving people who need education, community and compassion.
As an LCH survivor and long time supporter, the Histiocytosis Association has been an incredible resource for me and my family over the years. They provide an amazing level of support and knowledge to help further the general understanding of histiocytic disorders as a whole. Their entire team is passionate and engaging and works tirelessly to help further the cause of finding a cure for these terrible diseases. Keep up the terrific work you do!
I've had the pleasure of working with this amazing organization for the past several years. What is most impressive about Histiocytosis Association is first of all their amazing presence in the community and their ability to provide a vital service to those in need. But also the exemplary individuals that work at this organization. Founder Jeffrey Toughill, Executive Director Deanna Fournier, Kristen Nesensohn, and Danielle Hellick along with the rest of the team are second to none. This is an organization that truly makes me smile!