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Causes: Health, Specifically Named Diseases
Mission: Established in 2020, Sisters’ Hope Foundation is a 501(c)3 approved, non-profit organization. Our goal is to increase awareness and understanding of adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP), support those living with or caring for those living with ALSP and create connections for the ALSP community. Our vision is to see the first survivor of ALSP.
Target demographics: those affected by ALSP
Direct beneficiaries per year: 100 patients and families
Geographic areas served: every country
Programs: support, awareness and a research.