2022 Top-Rated Nonprofit

Trisomy 18 Foundation

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Birth Defects & Genetic Diseases Research, Down Syndrome, Health

Mission: T18F is dedicated to making Trisomy 18 a preventable and treatable condition and ensuring that all parents have access to compassionate and knowledgeable care that respects the humanity and potential of their child diagnosed with Trisomy 18.

Community Stories

6 Stories from Volunteers, Donors & Supporters

Sara Beth B., Client Served

Rating: 5

10/11/2021

This was an excellent resource of information when we first got our daughters diagnosis. They even supported us after she passed by sending us a caring gift and card remembering our daughter. I couldn’t thank this organization enough for the support they’ve given our family.

5

Writer Professional with expertise in this field

Rating: 5

10/26/2017

I have experienced first hand how the Trisomy 18 Foundation has made a positive impact in families lives. As a genetic counselor, one of my roles is to connect families with resources, such as the Trisomy 18 Foundation, where they can go to get good, accurate information and support through such a difficult and unexpected time in their lives. It is invaluable to connect with families who have gone through a similar experience and be able to share. The Trisomy 18 Foundation also supports very important research involving the care and management of those with Trisomy 18. Overall, this organization does amazing things - both for families and for the scientific community.

5

MomVH Professional with expertise in this field

Rating: 5

10/26/2017

Victoria and her staff are wonderful. The Foundation does so many things for families and children affected by Trisomy 18. It's wonderful to see an organization that truly cares about helping. If you are looking for resources related to Trisomy 18 I truly recommend the Trisomy 18 Foundation.

8

Michele L.1 Professional with expertise in this field

Rating: 5

10/21/2017

As a federal employee, I found this organization represented their constituents with passion. They are knowledgeable about policies and science that concern their constituents. Their advocacy is based on in-depth knowledge about Trisomy 18, its potential treatments and the needs of individuals and families affected by this condition

8

helleran Professional with expertise in this field

Rating: 5

10/20/2017

Trisomy 18 Foundation supports families and stays focused on research progress.

4

Writer Professional with expertise in this field

Rating: 5

01/18/2016

The Trisomy 18 Foundation provides a lifeline for parents faced with a new diagnosis of Trisomy 18. The executive director is knowledgeable, compassionate and unendingly dedicated to this important work.

2

Jennifer170 Professional with expertise in this field

Rating: 5

11/13/2012

As a colleague in the field of prenatal testing and genetic conditions, I have had the true honor to interact with the Trisomy 18 Foundation on a regular basis. They serve a wide array of stakeholders, including patients, families, key opinion leaders, academics, industry and policy makers. The T18 Foundation leadership is organized, thoughtful and comprehensive in providing services and tools that help mothers and families coping with the pre-diagnosis, diagnosis and decision-making post-diagnosis of Trisomy 18 and Edwards syndrome. I truly consider them to be a GREAT Non-profit, and I hope you will, too, after learning more about their offerings.

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