I have a long history of gastrointestinal issues, and too many surgeries and hospitalizations to go into here. In 2006 I had a non-reversible ileostomy which it took me a long time to accept. If only I had found Oley then, I think that my journey to acceptance of my ostomy would have been much shorter. I've been on alternative feeding (either tube or TPN) for over three years, and have gotten a lot of information from the site. The accumulated experiences of the members is invaluable; it is virtually impossible to present a problem or question that someone hasn't had experience with. While it doesn't pretend to substitute for a professional's advice, the site provides advice, support, and encouragement to all its members. The Oley friends monitor the site and take down offensive posts, making us feel safe in expressing our feelings without fear of being attacked. Plus, the process of offering support to others makes sense out of the experiences that I've been through -- it gives a meaning to my suffering to be able to help others who find themselves in the same situation.
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- EIN 13-3194182
- info@oley.org
- (518) 262-5079
- Albany Medical Center MC 28 43 New Scotland Ave. Albany NY 12208 USA
- www.oley.org
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Nonprofit Overview
Causes: Health, Medical Research
Mission: The Oley Foundation is a national, independent, non-profit 501(c)(3) organization that strives to enrich the lives of those living with home IV nutrition or tube feeding through advocacy, education, community and innovation.
Results: Independent research shows that contact with Oley: • lowers the incidence of catheter-related sepsis* • reduces reactive depression* • significantly improves quality of life* • gives members the tools and confidence they need to manage their therapy** • enables members to achieve normalcy in their lives.** *Home Parenteral Nutrition: Does Affiliation with a National Support and Education Organization Affect Outcomes? Smith, et. al., JPEN 2002;26(3): 159-163. **A Qualitative Study of the Perceived Value of Membership in The Oley Foundation by Home Parenteral and Enteral Nutrition Consumers. Chopy, et al. JPEN 2014; online 17 March 2014, DOI: 10.1177/0148607114527134.
Target demographics: home nutrition support consumers (those on home parenteral and enteral nutrition)
Direct beneficiaries per year:
Geographic areas served: all areas of the globe, with patients from birth to 100+ years old.
Programs: an annual conference, a bimonthly newsletter, an equipment-supply exchange program, and other opportunities for home nutrition support consumers to network with and learn from one another and experts in the field.