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September 5, 2014

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September 5, 2014

I am a board member of Rock-N-Jock Charities, We have worked with the Matty Fund for several years. We host a concert and golf tournament in August with the proceeds supporting the work that The Matty Fund accomplishes. We have supported a number of charities in years past. When we met Richard and Debbie Siravo and heard their story we instantly knew that this charity was one that we had to support through our fundraising efforts. After working with them for two years my family was suddenly dealing with a very small family member who was diagnosed with epilepsy. The Matty Fund has supported this little one with their Camp Matty, their Easter Egg Hunt as well as providing resources and education for our family. I can not even image the heartbreak that the founders of The Matty Fund must have felt when they lost Matthew--they however turned their lose into a foundation that supports so many. I feel lucky for having met Richard and Debbie Siravo and I consider them friends for life. Suzanne Viner Media Relations Rock-N-Jock Charities

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When was your last experience with this nonprofit?

2014

December 1, 2011

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December 1, 2011

My role in the mattyfund, volunteer, parent of a child with epilepsy, board member and most importantly facilitator of the Discovering My Epilepsy Support Group. I have been a part of the Mattyfund since 2004 and since then I have watched this small foundation evolve into an organization that not only raises money for research; but also provides education programing, academic scholorships, and lectures and workshops for both professional and parents. The Mattyfund continue to find new and creative ways to help support the children and families of RI. As they continue to grow I see there out reach of support spanning accross the United States.

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Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2011

November 9, 2011

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November 9, 2011

As a board member and a mom of a child with epilepsy, I know first hand the stuggles that families go through dealing with this disease everyday. The Matty Fund has done so many wonderful things for the children and families who have joined our organization. The few fundraisers that the Matty Fund promotes every year fully funds such wonderful family events like Camp Matty, Pumpkin Fest, Easter Egg Hunt , and Support Groups each and every year. The Matty Fund also has a wonderful program that educates the community and schools about epilepsy. Research has been funded by the Matty Fund as well as lectures with world renowned doctors. If you have a child with epilepsy and are looking for a great support system and fun activities for your child, you will want to call the MATTY FUND!

The Great!

I've personally experienced the results of this organization in...

many ways! Being a part of the matty fund for years has been a life changing experience.

Ways to make it better...

If I had to make changes to this organization, I would...

hope that we can reach out to MORE families so they can enjoy the many programs the Matty Fund offers.

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