The Matty Fund Aka Matthew Siravo Memorial Fundation, Inc.
Rating: 5 stars 37 reviews
Issues: Health, Philanthropy
Location: PO Box 5300 Wakefield RI 02880 USA
Target demographics: Children diagnosed with epilepsy and and their families
Direct beneficiaries per year: hundreds of families
Geographic areas served: Rhode Island and beyond
Programs: Camp Matty, Family Support Groups, A Facebook support group, college scholarships, workshops, funding medical research, family events, and more
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I am the Vice-Chairman of Rock-N-Jock Charities and first met Rich and Deb Siravo at a RNJ board meeting six years ago. We were meeting to make a decision on which Rhode Island children's charity RNJ Charities was going to support that year, with our two-days of fund raising events. When Rich and Deb got through telling us the story behind The Matty Fund and what they do, and have accomplished, there wasn't a dry eye at the table and we voted unanimously to support The Matty Fund that year and each year since. Along the way, we have supported other groups with The Matty Fund, but we have found that when it comes to event support The Matty Fund is 100% on board supporting all of our efforts. Whether it's advertising our events through their social media pages, helping set up silent auction tables, right down to helping load in sound equipment for the concert, The Matty Fund personnel, including Rich and Deb, are right there. I would strongly encourage any fund raising organizations that are looking to make donations to a very worthy non-profit, please consider The Matty Fund. RNJ Charities will continue to support The Matty Fund as long as I am a director on this board. I now consider Rich and Deb friends, and you will too.
I have been involved with The Matty Fund since its inception. Being able to view the organization as a volunteer, employee and now a board member has proven to me day in and out, just how wonderful The Matty Fund is. The events are a blast, the staff are professional and most importantly the children and families touched by epilepsy are the main priority!
I am a board member of Rock-N-Jock Charities, We have worked with the Matty Fund for several years. We host a concert and golf tournament in August with the proceeds supporting the work that The Matty Fund accomplishes. We have supported a number of charities in years past. When we met Richard and Debbie Siravo and heard their story we instantly knew that this charity was one that we had to support through our fundraising efforts. After working with them for two years my family was suddenly dealing with a very small family member who was diagnosed with epilepsy. The Matty Fund has supported this little one with their Camp Matty, their Easter Egg Hunt as well as providing resources and education for our family. I can not even image the heartbreak that the founders of The Matty Fund must have felt when they lost Matthew--they however turned their lose into a foundation that supports so many. I feel lucky for having met Richard and Debbie Siravo and I consider them friends for life. Suzanne Viner Media Relations Rock-N-Jock Charities
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My role in the mattyfund, volunteer, parent of a child with epilepsy, board member and most importantly facilitator of the Discovering My Epilepsy Support Group. I have been a part of the Mattyfund since 2004 and since then I have watched this small foundation evolve into an organization that not only raises money for research; but also provides education programing, academic scholorships, and lectures and workshops for both professional and parents. The Mattyfund continue to find new and creative ways to help support the children and families of RI. As they continue to grow I see there out reach of support spanning accross the United States.
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When was your last experience with this nonprofit?
As a board member and a mom of a child with epilepsy, I know first hand the stuggles that families go through dealing with this disease everyday. The Matty Fund has done so many wonderful things for the children and families who have joined our organization. The few fundraisers that the Matty Fund promotes every year fully funds such wonderful family events like Camp Matty, Pumpkin Fest, Easter Egg Hunt , and Support Groups each and every year. The Matty Fund also has a wonderful program that educates the community and schools about epilepsy. Research has been funded by the Matty Fund as well as lectures with world renowned doctors. If you have a child with epilepsy and are looking for a great support system and fun activities for your child, you will want to call the MATTY FUND!
I've personally experienced the results of this organization in...
many ways! Being a part of the matty fund for years has been a life changing experience.
If I had to make changes to this organization, I would...
hope that we can reach out to MORE families so they can enjoy the many programs the Matty Fund offers.