The Matty Fund Aka Matthew Siravo Memorial Fundation, Inc.
Rating: 5 stars 38 reviews
Issues: Health, Philanthropy
Location: PO Box 5300 Wakefield RI 02880 USA
Target demographics: Children diagnosed with epilepsy and and their families
Direct beneficiaries per year: hundreds of families
Geographic areas served: Rhode Island and beyond
Programs: Camp Matty, Family Support Groups, A Facebook support group, college scholarships, workshops, funding medical research, family events, and more
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I became aware of The Matty Fund about 2.5 years ago. Having trained and worked in MA, PA and WI, I found that The Matty Fund was the best support group for my little patients. Not even the Epilepsy Foundation provides what they do, not just for children with epilepsy, but also for their families to be involved and for education. I give their information out to every new patient with epilepsy that I see, and some are initially reluctant, but sooner or later do check them out online, out of curiosity, even if they feel hesitant/scared/stigmatized by the diagnosis. Please keep up the good work!
The Matty Fund impacts the lives of patients with seizures both on the local and the national level. The fund's programs provide resources and outreaches to patients with seizures and families providing education on diagnosis, treatment and quality of life issues. Through the foundation's research initiative, seed fund grants allow important work in the pilot stages to be carried out in the critical initial phases. Collaboration with Brown University and Rhode Island Hospital basic and clinician neuroscientists also allows mentoring and training of the next generation of researchers. Research sponsored by the Matty Fund has been published in national neurologic journals. The Matty Fund's effect is far reaching, from community to the laboratory, improving the lives of patients with seizures and their families.
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I am so proud to be a member of the Matty Fund staff. The devotion that the Siravo's have to the foundation's mission and their desire to help others in memory of their son Matty is reflected in all that they do to "put smiles on the faces of children with epilepsy".
I've personally experienced the results of this organization in...
By attending and being a part of many Resource Center events and programs.
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