When I was first diagnosed with Fuch's Corneal Dystrophy I was very concerned. I had never heard of it before so started researching the disease. In my research I found the Corneal Dystrophy Foundation. They have been a font of information about a rare disease where information can be hard to come by. Many patients with Fuchs will require what can be a sometimes complicated surgery to replace part of the cornea. The Corneal Dystrophy Foundation maintains a list of qualified ophthalmologists who are trained in the specific procedures required for the surgeries. In addition, the listserv provides support for patients at all levels of the disease stages. The Corneal Dystrophy Foundation is an amazing nonprofit providing education and support to patients and their families on a disease where information can be difficult to find.
Twenty two years ago, My husband Bob Bellizzi was told that he has Fuchs' Dystrophy. We thought he was going to be blind. Bob was in the computer industry and the first step that anyone does is to go to google for information. He found very little and that caused him and Dorothy Action another person who was serching for information to establish a website and start sharing what they learned. They worked so well togetheer that Dorothy became the other woman in our life. In 2004 the Corneal Dystrophy Foundation was formed with a goal to provide the latest research information on corneal dystroophies. A need for a private, support group was vitial. A place where questions could be answered and experiences shared. We now cover many countries via the internet while sharing our stories Celebrating 20 years of helping people. How Great is that.
This is a group of people who volunteer to help those with Corneal Dystrophy's. We cover the world, 170 countries have been heard from. Join our Fuch's Friends Community for support, information and help. AND as with a re a charitable organization we always ask for donations to help others. Should you have a charitable mind set and wish information, a DVD of our 2011 Symposium with the top Cornea Surgeons speaking is available with a donation of 75.00 PLEASE HELP