National Uterine Fibroids Foundation

Rating: 5 stars   8 reviews

Issues: Health, Cancer

Location: PO Box 9688 Colorado Springs CO 80932 USA

Mission: The National Uterine Fibroids Foundation (NUFF), founded in 2000, began as a grassroots organization in 1998 and grew out of the need for women to gain access to objective, scientifically and medically based, information about treatment options for uterine fibroids BEYOND the hysterectomy. As an organization, NUFF has five mission goals: 1. To provide information to the public about the diagnosis of, and treatment options for, uterine fibroids and related conditions of the reproductive systems, and the right to receive informed consent from medical providers; 2. To advocate for the rights of all women to maintain independent choice in the matter of deciding upon treatment options; 3. To facilitate research studies conducted on the cause of, treatment options for, and patient outcomes associated with treatment of uterine fibroids and related medical conditions; 4. To promote alternative to hysterectomy in an effort to reduce the number of unnecessary hysterectomies performed on women each year in the United States; 5. To provide support to internet developed women''s health groups that provide services to women recovering from treatment choices that resulted in a negative outcome and/or reduced Quality of Life related to uterine fibroids and/or other conditions of their reproductive systems.
Programs: NUFF's programs include a toll free helpline, educational brochures, an online support group, and the continuing development of a website portal for information dissemination. In addition, we host public lectures on uterine fibroids and treatment options. NUFF also assists women and physicians in developing an internet presence that is medically related to uterine fibroids through website development or support group maintenance.
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Community Reviews

Rating: 5 stars  

10 people found this review helpful

The National Uterine Fibroids Foundation (NUFF) has been a godsend to me, as a patient with severe uterine fibroids. Uterine fibroids are a disease which no one talks about, yet many women suffer from. It is most common in women of color and other minorities. Because it's a disease of the female reproductive system, it's difficult for people to talk about openly. Furthermore, most doctors aren't trained to treat fibroids. Uterine fibroids, while common, become a serious disease in some women. They can cause anemia, kidney failure, infertility, bladder obstruction, and severe pain. I am so fortunate that my husband discovered NUFF. My doctors weren't able to treat my fibroids effectively, and didn't know where to refer me. I was only 39 and had half my life ahead of me! My husband resorted to searching the internet, and found NUFF's online community. I honestly don't know what would have happened to me, had I not found the NUFF community. NUFF has empowered me, and countless other women, to educate myself, take control of my condition, and make an informed decision of treatment options. NUFF has empowered me to take my life back from this disease! I only wish NUFF -- and its founder Carla Dionne -- had a higher profile, so that more women could benefit from the unique service and community it provides. Please list NUFF in your "Great Nonprofits Top-Rated Women's Empowerment Nonprofits."

I've personally experienced the results of this organization in...

Taking back my life, participating actively in my own medical care. And now, helping empower other women with the same disease!

If I had to make changes to this organization, I would...

Increase NUFF's public profile, and somehow make more women aware of it!

What I've enjoyed the most about my experience with this nonprofit is...

Empowering me to take back my life, and participating in an informed way in my own medical care. Not to mention helping other women do the same!

The kinds of staff and volunteers that I met were...

Involved, committed, determined, compassionate.

If this organization had 10 million bucks, it could...

Empower women to participate in an active and informed way in their medical treatment. Educate medical professionals and improve medical care. Save women's lives. Save medical costs.

Ways to make it better...

I had known about NUFF earlier!

In my opinion, the biggest challenges facing this organization are...

Being able to reach as many women as possible, instead of just counting on women to accidentally find it online.

One thing I'd also say is that...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


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