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June 17, 2010


June 17, 2010

my daughter has MLD, the effect it has had on our life is devastating,Dean and Teryn are lovely genuine caring people who have an effected daughter themselves yet they strive to raise awareness of this horrid disease and offer words of comfort, advice and make you feel your not alone, even though they live in USA and we are in england. Without them many people would feel totally alone

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meeting them when they came to visit england we recieved support and warmth and met with others who are suffering too

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