1 person found this review helpful
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October 28, 2014
1 person found this review helpful
My daughter was diagnosed with MLD in 2012. We were directed to this site by our doctor. It has been a lifeline for us. I don't know how we would have gotten through the past two years without the wealth or information it provides and the link to other families with MLD loved ones. They in many ways have become a second family to us.
June 17, 2010
my daughter has MLD, the effect it has had on our life is devastating,Dean and Teryn are lovely genuine caring people who have an effected daughter themselves yet they strive to raise awareness of this horrid disease and offer words of comfort, advice and make you feel your not alone, even though they live in USA and we are in england. Without them many people would feel totally alone
The Great!
I've personally experienced the results of this organization in...
meeting them when they came to visit england we recieved support and warmth and met with others who are suffering too
More feedback...
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
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