ALEXA R GOOD A L S FOUNDATION
I want to thank the ALEXA R. GOOD ALS Foundation for their immediate response to a request made through a Speech therapist, AMY, at the ALS Clinic in Charlotte, NC. I had been undiagnosed, misdiagnosed, and finally after 4 years I was accurately diagnosed with PBP-ALS onset, which has caused me loss in my ability to speak clearly, my tongue, and my ability to swallow easily. I hesitated about going out in Public and could not express myself. I had to give up tutoring. Within a month of the request for an iPad with a text to speech to help me function, this foundation responded. I now go out in public, use the iPad to communicate, do my banking, shopping, and now I can continue to tutor three students via the iPad. They love the technology! My quality of life has improved because ALEXA R. GOOD ALS Foundation stepped in and met my need. Thank you, Amy, for making the request, and thank you, ALEXA R. GOOD Foundation, for cutting through the red tape so quickly! You are a Blessing from God!
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We are having a benefit with all proceeds to go to the Alexa R. Good Foundation on Saturday, May 21. 2011, at 7:00 p.m. tickets are $20.00 each. Contact Nichols Store at 803.328.9792. Live Auction and Silent Auction items, free food and drinks! What a way to celebrate a wonderful event!
I've personally experienced the results of this organization in...
My husband shares the same birthday as his brother. His brother would have been 60 years old on 5.21.11. He passed away from ALS 10 years ago this year. Instead of a birthday party with gifts, I thought this would be better. A benefit raising money to go to the Alexa R. Good ALS Foundation in honor of him (my husband, Darren) and in memory of his brother, Thomas Nichols.
Ways to make it better...
If I had to make changes to this organization, I would...
Raise more money as they help local families!