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- EIN 84-1827899
- PO BOX 698 Shasta Lake CA 96019 USA
- https://www.lissfoundation.org
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Nonprofit Overview
Mission: Empowering Families & Educating Communities by promoting a day of awareness, hosting family gatherings, providing family support, & educational material.
Target demographics: Spread awareness via proclamations & evets, Advocate & support families effected by lissencephaly, & bring families together via gatherings.
Direct beneficiaries per year: Last year we helped, 50 newly diagnosed families, 1 family obtain a piece of durable medical equiptment, 4 greiving families with condolences packages, promoted 6 awareness day events, helped get proclamations signed in 15 cities and 1 state to declare September 8th "Lissencephaly Awareness Day". 2019 Was our first year as an established nonprofit, We aim to at least double those numbers in 2020.
Programs: Regional gatherings & Cephaly Conventions, Awareness events & proclamation signings, & Providing educational material such as; informational brochures, Packets of Hope, & also providing condolences packages to families whose child passes away.