Skip to content

Nearby Cities

Sort By

Most Recently ReviewedMost ReviewedHighest RatingName

All issues

Santa Fe Nonprofits and Charities

The Oral Cancer Foundation

427 Reviews
rating starrating starrating starrating starrating star
Santa Fe, NM
Search Box Image
ChrisCQ

It was back in 2019 when my regular dentist was doing a routine dental exam. She grasped my tongue with a piece of gauze, and said something to the effect of “and what do we have here? How long have you had this white spot on the bottom side of your tongue?” My response, mouth full of gauze, was “what white spot”. <br><br>She was adamant that I needed to come back in two weeks, and if it had not subsided, she’d refer me out for an oral surgeon for a biopsy. She was great at teaching me the seriousness of staying on top of this painless white lesion, that could potentially be cancerous. I knew nothing about oral cancer, except that chewing tobacco greatly increased your odds of getting it, and I was not a user of tobacco products.<br><br>In the meantime I did a little bit of research on tongue cancer and I think a google search led me to the Oral Cancer Foundation website. I never knew how deadly and aggressive oral cancer could be. In my mind it was likely similar to a squamous cell carcinoma of the skin, something you did not want to let go untreated but not a huge deal. SO WRONG. After reading various folks posts on their anecdotal stories of their experience, I read some of the scientific journals and articles on Oral Squamous Cell Carcinoma.<br><br>Because of the COVID Pandemic I think it was almost a year before I had my first biopsy. The oral surgeon did not seem very concerned about the small, painless pencil eraser sized white lesion (leukoplakia is the medical term) on the right underside of my tongue about midway back to my molar teeth. He was insistent that biopsy specimen be sent to a particular oral pathology laboratory, regardless of if it was approved by my insurance company. Oh, I forgot to mention I picked this guy, because he himself was an oral cancer survivor, his jawbone cancer found on a routine dental X-Ray. I was like, I am willing to pay a few hundred dollars out of pocket if needs be to go this top notch oral pathology company. My insurance paid for it, they were a preferred provider I believe.<br><br>He was greatly surprised when it came back from the pathology lab indicating the tissues exhibited “Moderate Epithelial Dysplasia”. The oral surgeon explained that this was considered a potentially malignant disorder, and that I should follow up with an oral surgeon who specialized in cancer and potentially precancerous conditions. <br><br>That is when I think I made my first post on the patient forums of the Oral Cancer Foundations (OCF) website. I also began doing a much deeper dive into the technical papers, the various professional medical and educational links OCF had provided on their website. I discovered that I had roughly somewhere between a 1 in 10 and 1 in 4 (10 to 25%) chance of my lesion’s area tissue converting into oral squamous cell carcinoma. <br><br>I had learned from OCF articles and patients that once diagnosed with dysplasia, one should probably be seen by an oral cancer specialist yearly, for life. <br><br>My first oncology oral surgeon saw me for I think almost 2 years, before moving out of the area. OCF’s influence on me, their patient stories and educational materials, as well as my original discovering dentists very serious advising of me to stay on top of this thing worked. I had to get established with a local medical system to get a referral to see the next oncology surgeon, whom my previous doctor had recommended. I think I saw this next doctor for about 2 years. I had 2 regular appointments. Then roughly 4 years after the first biopsy about 6 months before my regular annual appointment I noticed that the area near the biopsy scar had a tiny pimple like projection that was sore. <br><br>I got on the OCF forums and mentioned that, and several of the veteran members were like “Biopsy it!”. I was about to mention it in a patient message to my doctor’s office, and it went away in a few weeks. A month later and it was back, and now steady. So I did send a picture of this tiny pimple, barely visible, to the doctor and described that the new feature was it was painful. <br><br>He ended up making an earlier appointment for me, looked at it, and could barely find it. Said he could biopsy it right then, but it did not look very concerning. I was not expecting a biopsy that day, as the last doctor required a bunch of up front paperwork and scheduling and such. He said I could probably just follow up with my regular dentist (something I was never going to do, based on what I had read on the OCF forums and website, and also thankfully three previous dental/medical professionals had instilled in my the necessity for lifetime close monitoring with someone who treats cancer daily). The other option was to come back in 3 months and decide to biopsy it then.<br><br>The day after he probed the lesion with the wooden end of a cotton swab, I was like, man, now that thing is on fire. I am definitely asking him to biopsy it Dec 2023. Again got back on the forums, and it really helped me stay insistent to pursue the re-biopsy of the area and this pimple like lesion.<br><br>The surgeon does the biopsy, was the most pain free oral/dental procedure I had ever experienced. My previous tongue biopsy not so much, the lidocaine needle for my first procedure was red hot intense pain. He joked that he kind of had to biopsy the location by feel, as it just was not readily apparent where exactly to excise, but he was fine with going ahead and doing the procedure as that was my desire. <br><br>My insistence on that biopsy was about 50% due to what I had learned from OCF and 50% from my previous doctors. Because of the extent of the pain of my first procedure I may have been unconvinced with the need to go through it again if the doctor was on the fence himself and did not think it was necessarily indicated. To me the red flag was the change, the pain and the raised nature of the bump. Happily, the second biopsy was pain-free, and I would have gladly went back to that surgeon for an annual biopsy if needed.<br>A couple weeks later January 2 2024 the oral surgeon calls me with the biopsy results. Microinvasive Oral Squamous Cell Carcinoma. He was very apologetic of not pushing for the biopsy as being absolutely indicated in my case. I was very appreciative of his skill, and said I understood, it was not anything you would see in a textbook as likely cancer. He said that the margins were clean, but much narrower than he would want around a nascent cancer tumor just starting. He wanted to set me up with an in house oncological ENT surgeon.<br><br>This was all at my states flagship teaching hospital, an a NCI designated Comprehensive Cancer Center. From my readings on OCF and other sources I had long since decided that if I was ever diagnosed with an actual cancer I would seek treatment at the flagship Comprehensive Cancer Center in all of New England with the strongest oral cancer program, and that I my particular tumor was some rare odd variety I’d seek treatment at the best CCC in the country, taken a trip if needed. I am young enough that I was and am willing to go to pretty large measures to get my next 3 or 4 decades of life and quality of life.<br><br>Again I credit OCF for giving me the background knowledge to know you can request such referrals, don’t be afraid to ask second opinions, don’t feel disloyal if you would like to be treated by a different organization etc.<br><br>I was surprised how happily the cancer finding oral surgeon was to set me up with a referral to this other agency. He even recommended a specific colleague of his, well regarded even at that institution. <br><br>The next ENT Oncology surgeon did a small partial glossectomy, just taking wider margins around the original excision and also scoped my throat looking for any other evidence of disease while I was under general anesthesia in a regular surgical suite at a major hospital. <br><br>Anyway OCF and the OCF forum and patients who have “been there, done that, and got the T-Shirt” are great sources of encouragement and information FROM THE PATIENTS PERSPECTIVE of what to expect, what questions to consider asking, how things progress treatment plan wise, what things mean etc.<br><br>When you are at the doctors office and he is explaining things about your cancer, in a newly diagnosed patient, it was to me, a bit like the television scenes where there is a lot of white noise in the background as the doctor is talking. My wife was there, and took copious notes, and my situation was not as shock inducing as many, but one could easily imagine if the doctor is giving a bunch of dire news about the need for a slew of aggressive treatments, that experience would be “shock and awe” to a terrible extent.<br><br>The OCF forums helped me organize my thoughts, as I kind of chronicled my experience in my entry in the “symptoms and diagnsosis” sub-forum. It was helpful for me to be able to kind of journal what happened and when, and how things developed, and to get near real time feedback from other cancer patients, again what questions to ask, different things to think about post surgery etc.<br><br>So OCF is a great resource to me in education, moral support, pre-surgery encouragement, recovery encouragement, encouragement in the progress of research and treatment methods and options.<br><br> <br>

Search Box Image

Heart And Soul Animal Sanctuary

2 Reviews
rating starrating starrating starempty starempty star
Santa Fe, NM
Search Box Image
Stephanie N.6

I have only had one exchange with the person who answers the phone at the sanctuary. Who, represented the "sanctuary" the day I called. I recently placed 5 puppies in good faith with a unidentified "pitbull rescue", whom in turn "sold" the litter to the "sanctuary", whom in turn had them sold before these puppies ever made it there. I am the person who bottle fed these puppies every three hours for 3 weeks after their mother was hit by a car. I have other dogs so I had to find some place for these babies to go that they would be safe from exploitation of fighting, or being mistreated because of the breed they are. I went to see MY BABIES the day after I took them to the fosters house that represent themselves as a rescue.its not the picture of the puppies on the blanket with all the toys they sent us. The empty room with a box, the two empty bowls and a floor covered in puppy pee and poo made me furious. I trusted these people and they sold these puppies. I called the sanctuary to ask if it was true and not only was it true the sanctuary had also already sold the puppies. I am devastated. I was told that adoption fees were appropriate because of the expense the rescue and the sanctuary incur in making sure these puppies are healthy and well... I am positive that neither of these places were out ANYTHING because I incurred all the cost of these puppies well being as well as the hours of caring for them. I love these puppies and I'm devastated that I let them be sold twice . The person on the phone that day said they were accountable to a board of directors. That sort of takes the individual out of the sanctuary theme doesn't it ?

Search Box Image

El Rancho De Las Golondrinas Inc

1 Reviews
rating starrating starrating starrating starrating star
Santa Fe, NM
Search Box Image
jackiecamborde

There is really no way to fully describe 2020. Never in any of our lifetimes have we had such a strange, isolated and distant year. El Rancho de las Golondrinas was closed until September, and all our usual festival weekends and other special events were cancelled. The throng of locals and tourists that usually arrive all summer long were unable to visit the museum. No field trips or classrooms visited this year. Our volunteers were sidelined from their passions of teaching and demonstrating the ways of the past.<br><br>It almost seemed like an impossible time to keep going.<br><br>But you know what? El Rancho de las Golondrinas did keep going. Our volunteers got to work making masks for essential workers. Our staff, Board, volunteers and neighbors came together for a cleanup of Los Pinos Road. We donated almost a ton of clothing and household goods via a community fund drive. We worked together with Youthworks and Santa Fe County to distribute free grab and go meals and kids’ hands-on history kits in our parking lot every week. We grew produce based on the needs of the Food Depot and have donated thousands of pounds of fresh vegetables to them for those in need.<br><br>Why so much activity and outreach during a pandemic? Because the people at Las Golondrinas have a passion for this community, this land and New Mexico. We know that you share our passion; that’s why you received this letter. You know that El Rancho de las Golondrinas is a place like no other, a place worth supporting and preserving for future generations of New Mexicans and visitors to enjoy.<br>Even though we missed most of our season, and a great deal of revenue, we still have the day to day expenses of maintaining over 500 acres of museum campus. Growing and watering crops, caring for livestock, taking care of a dedicated staff, and repairing historic buildings with accuracy and care all require funding. Even though the country shut down, our day-to-day activities never stopped.<br><br>We look to you to support all of our efforts, with the hope that we can meet again soon, here at the museum. Will you consider making a gift to help us continue all that we do? Your support is essential so that we can continue to bring history to life, to give guests a unique experience like no other, to preserve the acequia and land; and to create memories that last long after a visit has ended.<br><br>During these difficult times our history and culture are what ground us. When everything seems out of control it is the understanding of ourselves and each other that tethers us to a sense of community and normalcy.<br><br>You can make a gift at golondrinas.org. Heartfelt thanks to you for supporting Las Golondrinas and all that we do - ¡Un millón de gracias!

latest_news_iconGet Our Latest News

Are you a NonProfit?

Message Box
Get visibility and free tools for your nonprofit today!
Palomacy Pigeon

0 Reviews
empty starempty starempty starempty starempty star
Reviewed by

Hot Topics

Nonprofits and Charities in Other Cities
Whether your causes are animal shelters, food banks, or breast cancer groups, you'll find real nonprofit reviews you can trust at GreatNonprofits.
Millions of nonprofit clients, donors, and volunteers have shared their candid reviews of charities, nonprofits, and social enterprises.
Add your nonprofit reviews and help other donors and volunteers find a great nonprofit.

Find Nonprofits and Charities

Want to donate to or volunteer for a charity or nonprofit? See ratings and reviews. Find top-rated nonprofits and charities and start volunteering or donating today.

Browse by State and City

footerlogo
GreatNonprofits amplifies the voices of people who’ve seen nonprofit impact firsthand — clients, donors, volunteers, and beneficiaries. Read their stories. Find trusted nonprofits. And support the causes that matter to you.

Top Cities

Top Causes

    @ 2026 GreatNonprofits. GreatNonprofits is a 501(c)3 nonprofit. EIN 68-0224596 Terms and Privacy.
    Scroll to Top Icon