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I’m proud to serve on the board of Sons of the Flag, an organization that truly lives up to its mission of supporting survivors beyond the burn. For over a decade, SOTF has been a compassionate and strategic force in the burn care community — helping military members, first responders, and civilians navigate the long and challenging journey of recovery after traumatic burn injury.  The organization goes far beyond awareness — funding advanced medical fellowships, supporting cutting-edge research, and providing personalized assistance to survivors and families when insurance and traditional support fall short. What I most appreciate is the heart behind the work: a community of passionate medical professionals, volunteers, and advocates who recognize that no one heals alone. Whether through survivor support, fellowship funding, or nationwide task forces, Sons of the Flag has made a real difference in thousands of lives.

NAVS mission is to end the exploitation of animals in science—ie end animal testing. I have dogs and I don’t believe they or any animal should be used in testing. NAVS is doing critical work to make advances in science without harming animals.

In the last two years, LE&RN's efforts have led to $12 million in lymphatic research funding through the Peer Review Medical Research Program and they are now awarding up to $100k in direct grants to young researchers and to mid-career lymphatic researchers along with overseeing 70 LE&RN Centers of Excellence in Lymphatic Disease treatment in 20 countries and expanding their patient registry which is so needed by researchers. I applaud LE&RN's global impact and their dedicated staff that is changing the field. Thank you.

GPER is an incredible organisation dedicated to supporting families affected by eczema. They provide invaluable resources and a compassionate community, so you never have to face eczema alone. I highly recommend GPER to anyone navigating the challenging journey of eczema and its associated conditions.

我来自中国安徽，我时刻关注DBA的最新进展，我希望这能够帮助到我的女儿，她很可爱，我想不远的将来我们一定可以战胜这个疾病，回归健康。

I have three children, all of whom live with chronic illnesses. It is truly amazing to have an organization like this, filled with individuals who possess deep knowledge about these conditions and who have also experienced them personally. Medical diagnoses can often feel overwhelming, frightening, and isolating, but this organization changes that narrative.

I have experienced you worse discrimination and customer service by this facility from receptionist to case manager all the way up to the director being unprofessional laughing at my domestic violence situation and mocking me and even presenting the proper paperwork the violence against women's act was not implemented at all I was completely ignored in belittled and if the procedures and policies that are in effect to protect victims was handled properly then my landlord wouldn't have kidnapped my child to continue receiving grants from this program. Casa grande Arizona location and the rest of the nchp

My story is as long one but I will try to make this short. I had a very healthy pregnancy, ate perfectly, didn't use scented products, didn't visit salons, didn't use a microwave in my home. I was overly careful Every prenatal visit I was told everything was 'perfect'. My pregnancy was going ideally.................. <br> <br> My little girl suffered since birth, almost lost her life many times, was undiagnosed for almost 4 years even though she was born at the biggest Children's Hospital here in Eastern Canada. When she was born and I looked at her my heart dropped I instinctively knew something was wrong. I asked the Dr standing next to me if its possible my baby had a syndrome, I knew it was not Downs Syndrome , but here eyes were so different, and not a family trait. I saw all the little things and felt sooo extremely guilty like I was picking my new baby apart, when I noticed all the little 'imperfections' like super high palate, her little knees, her nail beds, etc instead of feeling joy and happiness, I was scared. She struggled withe feedings and I was petrified to take her home. Instead of being supported and my baby given the care she needed I was told I had anxiety as a first time mom and should talk to someone. <br> <br>My baby struggled at home to drink, she would spit up and nearly suffocate. I took her to the hospital and dr after dr countless times expressing my fear and concerns and I again was told I should talk to someone, that maybe I had postpartum depression. This of course added tremendously to my anxiety. No one helping, I feared my baby would aspirate on her spit ups and vomits, she would be so helpless and lifeless when it would happen. For 3 months straight my mother and I stayed up around the clock taking turns holding her up and if she would 'choke' on mucus or milk I would be waken by yelling out of my rest to jump up and suction her. Those 3 months were HELL, where she should have been in NICU but I thought if I can only make it through this time it will be ok. Once she grows out of this stage..... <br> <br>We all survived her first year of life, however she did not 'outgrow' her extreme GERD and hypotonia or feeding difficulties. Medical professionals now acknowledged she was behind, called it developmental delay and sent us home. <br> <br>I sought advice, training, participated in research internationally to get extra tips and techniques to teach my daughter to help her catch up, I talked to every medical professional I could, every parent, even pastors and priests, getting prayers from churches known to heal, re baptized, I tried anything and everything. I was desperate to help my baby catch up. <br> <br>Years pass and I'm still begging and pleading for help, knowing there is more wrong with my baby than delay or autism. I literally prayed ( even though I had lost belief and not sure what I believed in due to my child suffering immensely ) that one day I would know why, have an answer, so I could stop running every single thing through my head night and day. I was severely overtired and depressed and now extreme anxiety as I was not at all supported by our local children's hospital. I prayed to know why my little girl was struggling, and for someone, anyone to care enough to do research. I was told when I finally was able to get her to see the neurology department and genetics that 'science isn't there yet' , 'what is a diagnosis going to change' , 'accept what is'. They did not even want to do the genome as they said that they did not 'have the resources' to test every kid and hers was not likely a genetic cause. She was refused, even though I had been crying and begging for years and they knew how important a diagnoses and answers were to me. Life was a continuous torture of trying to keep my baby safe and alive, watching her in pain and suffering every day, with no one even acknowledging what we were going through and no one caring enough to help diagnose. When I would describe her symptoms they would tell me 'no child has ever aspirated on their milk or saliva' , that ' no child has ever passed away because of that'. <br> <br>Finally at almost 4 years old, half way across the country we got our diagnosis as part of a research project at Toronto Sick Kids. The diagnosis was a huge relief. Now I could stop replaying everything in my head, and stop spending countless hours a day researching. Getting connected with other families was such a massive comfort and resource. I was connected with the BOS Foundation and then later ARRE. I cannot articulate in words how much appreciation and gratitude I have for the ARRE and all the research that is being done. Literally this foundation and the work they are doing is the answers to MY prayers. Getting connected with researchers and other families makes me feel like all our pain and suffering was not completely for nothing and that hopefully we can prevent other families and children from going through the same. <br> <br>The ARRE provided an opportunity this past summer for us to meet in Baltimore with researchers, medical professionals, and other families. For the first time my little girl was able to meet another child with the same diagnosis as her. And it was unbelievable. I cried many tears that trip, but happy tears. Tears of joy, and gratitude. <br> <br>To anyone that has made it to the end of my very condensed but still long story thank you and if you're considering supporting a non profit this one is very special. It is new and growing but needs the support. This syndrome is caused by a de nuvo mutation meaning it was not inherited from either parents and can happen in any pregnancy. There is an increasing number of babies being born with this syndrome ( and so many that go undiagnosed due to lack of medical services or knowledge ). The findings from this research will not only help the children living with this complex syndrome, but also to diagnose children quicker. And we know from past research on medically complex and sick individuals that often times findings can provide insight, treatment, and even cures for other illness that are much more common in the general population.

After reading “Marihuana, the Forbidden Medicine” and while studying pharmacology at university in the early 90s, and then passing the book over to a friend, who’s mother had multiple sclerosis and was suffering markedly at the time, without any respite in sight, just a plethora of medication that had bad side effects and made her feel even worse at times… She started to imbibe small doses of marijuana, and the doctors were amazed at how her symptoms of MS suddenly dissipated to the point her life actually became enjoyable again. Seeing how this illicit substance actually was more effective at treating MS than any legal medication available, the dichotomy of Western society’s prohibitive law’s on illicit substances came under scrutiny in our minds. As the internet was just starting out around this time, I did a web search and found MAPS. MAPS is an American nonprofit organisation working to raise awareness about the beneficial aspects of psychedelic substances… And after speaking with them briefly, they seemed like they not only really cared about the wellbeing of people in general, but they also actually cared enough to challenge the dogmatic views about the place certain entheogens should hold in the healing of humans and how we relate to the earth. The courage of these gals and guys is unlike any I have seen in the research world. They have worked with other charities and inspired people to seek new ways of healing, not only for conditions such as PTSD but also addiction, and depression too. They continue to work tirelesdly with respected government and academic organisations the world over to bring about more effective treatments for debilitating conditions… I honestly believe that these gals and guys will one day help heal the world in more profound ways than all the drug companies put together with all their years of research. But, before that happens, we need people to help support them work through the hurdles they are facing in a world still dominated by dogmatics views about psychedelics in general and the revelatory treatments that could be derived from these substances so we can essentially free people from debilitating conditions i.e. multiple sclerosis, PTSD, addiction, depression, etc. without a never-ending prescription of medication… So come on… Let’s give MAPS some big love and much needed support.

I am thrilled and honored to have taken on the incredible responsibility of coordinating and overseeing the 2026 Comic Pain Relief event arrangements in collaboration with the esteemed International Pain Foundation. This opportunity is significant for me, and I am incredibly excited to participate in this beautiful initiative. If you are interested in volunteering, contact info@internationalpain.org! We'd love to have your assistance. This is such a creative fundraiser for iPain!

I am a proud father to a little cute 2 year old girl that has a feeding tube.

My husband went to city of hope in Newnan Georgia Atlanta for prostrate cancer. My husband and i did not know what was going to happen. We have encountered very nice people at city of hope, Miss hingle, and Miss McCormick, and Miss roach was the three people that instrumental making a change in my husband life. In a time like this they made it very easy to deal with my husband cancer. I had Dr Farhang Rabbani as a urologist / surgeon and he performed my husband surgery, i cannot thank him enough for what he has done for my husband and i. The surgery was successful and now my husband is cancer free. I felt the care and warmth from him when i first met Dr Rabbani and he explained everything so we can understand. I would recommend him to anyone and also city of hope. City of hope is exactly what it says hope for families that just don't know what is going to happen when they are diagnosed. City of hope gave me hope with having a smooth process from the beginning to the end.

This group has been an incredible resource through what was been the mist difficult period of my life. The information and education they provide is invaluable and way beyond what my busy oncologist can offer. The advocacy for advances in medical knowledge and the commitment to providing hope and therapies is unbelievable Finally, the emotional support for this rare cancer has been a lifesaver. I’m so glad this foundation is on the frontlines battling for us. Thank you!

We've called both the number on the donation clothes bin and on the website to have the clothes bin removed. It is in a residential parcel at the rear near an alley and on its side and not at the gas station where it used to be. No response from anyone. Clothes bin is contributing to blight and needs to be removed. Negatively impacting quality of life.

I am 62 years old and April 2023 I lost about 14 feet of my small intestine considered short bowel syndrome. I am so thankful for this nonprofit website there nowhere to turn until I found this group. No words can truly say how much I appreciate the help. Love, support and Information I receive.

Modern Outcomes is an exemplary model of how a nonprofit should operate. Their commitment to addressing critical global issues by conducting both research and humanitarian work matters. While they are a new nonprofit, I'm excited to see the impacts they make over the upcoming years.

I volunteered with the Indiana AFSP for 5 years just to be thrown out like garbage! (Which Indiana chapter was just given the best chapter award mind you). I was called and told because of a complaint I was no longer allowed to volunteer. I was so upset, so I decided to dig deeper and require a better explanation. To my surprise the original complaint was not even a thing. I was on a phone call with the Indiana Director and another higher up, when the higher up told me that no one made the original complaint that the Indiana Director said was made! So when I asked the Indiana Director that I’ve volunteered/worked with for the last 5 years wtf on the call she said NOTHING!! <br><br>As the phone call goes on I am told I am still unable to volunteer as I have a list of complaints against me…I said “ok, humor me!” From supposedly telling a “Pride” Official that I would not put on a mask while I was outside (which isn’t true) but because a board member that doesn’t like me said I did do that I’m guilty, because he was a board member and they “have to take his word”!! In the 5 years I volunteered I was chair of a walk for 1 year and co-chair for 2 in the first 3 years. I was told after by the Indiana Board President that I was being asked to step down because after 3 years they wanted to rotate the chair to a new person in the committee. (Even though this person has been a different walk chair for much longer). But I went along with it. Then what would have been my 5th year as a volunteer my co-chair for my 2nd-3rd years was starting her 4th year as walk chair, so I said something to the board president that asked me to step down a year prior. She said it didn’t apply to my co-chair because her first 2 years were co-chair not chair; just as 2 of my years were! So I stepped down from the committee for a year to focus on my mental health because obviously AFSP didn’t care about it! I came back to the committee for 2023 and boy do I regret it. The year went fine, walk was great; then the bull crap started flying again. This is when I’m told on the most recent phone call that the now walk chair is complaining that I don’t communicate and that I’m too difficult to work with! To keep it shorter, basically the chair was saying I wasn’t communicating with her about some decisions which weren’t true, 1 OF WHICH I PROVED TO THEM by showing them texts of the communication I made and all they could say is “she’s the chair so we have to take her word for it”. <br><br>I am absolutely dumbfounded, people that I thought cared about me flat out lying to and about me and not one of them blinking an eye to defend me. OH, but don’t forget they had the audacity to tell me I could come to the walk and raise money and walk, just not volunteer! I will NEVER volunteer for them again even if they let me. They are supposed to care about people and mental health but if it doesn’t affect them then they don’t care. Luckily I got married in 2022 because if I hadn’t found my person, this is the kind of BS that would have put me in a tailspin and into a depression fighting for my life. Shame on the Indiana leadership and any other ones that treat people the way I was treated. They don’t care about the volunteers, they care how much money their walk made. Since I was one of the go-getters for sponsorships I guess some others will have to make up for their losing me. Good Riddance AFSP, I’ll put my time and money into an organization that cares about their people!

My daughter was diagnosed with hEDS, and I stumbled upon Sofias organization. She’s received so much support one year her artwork was entered into Sofias calendar. We also joined them in the victory walk for the Marfan organization. They sent us a goodie bag full of things to entertain my days when she’s at doctor’s appointments. She’s a wonder person with a supportive family. I wish her all the best and I’m so thankful that she created a platform for other children with Ehlers Danlos Syndrome to find support and community.

I am thrilled to share my experience as a volunteer for Americans for Safe Access (ASA), a remarkable non-profit organization dedicated to ensuring safe access to medical cannabis for patients across different states. Throughout my time volunteering with ASA, specifically during their Advocacy Academy and Hill Day events, I had the opportunity to engage in impactful activities that have left a lasting impression on me. <br> <br>During the Advocacy Academy, ASA equipped me with invaluable tools and knowledge on effectively communicating with and educating legislators. The training sessions were comprehensive and provided me with the confidence to articulate the importance of patient access to medical cannabis. I learned how to effectively advocate for the rights of patients and how to navigate the legislative process to bring about positive change. <br> <br>One of the most memorable aspects of my volunteer experience was participating in citizen lobbying on Capitol Hill. It was an empowering experience to engage directly with members of Congress and their staff, sharing personal stories and discussing the crucial need for safe access to medical cannabis. The opportunity to be a voice for patients and witness the impact of our advocacy efforts was truly inspiring. <br> <br>Volunteering with ASA also allowed me to hear firsthand accounts from patients whose lives have been positively transformed through medical cannabis. These stories were incredibly moving and served as a constant reminder of the importance of our advocacy work. It motivated me to deepen my commitment to advocating on their behalf and to amplify their voices. <br> <br>Beyond the meaningful work, ASA provided a platform for me to forge connections and friendships with a diverse network of individuals. I had the privilege of interacting with industry professionals, patients, and fellow volunteers who share a common passion for improving patient access to medical cannabis. These connections have enriched my understanding of the industry and opened doors to new opportunities for collaboration. <br> <br>In summary, my time volunteering for Americans for Safe Access has been an empowering and transformative journey. The organization's dedication to advocating for patient access to medical cannabis is commendable, and their efforts have a tangible impact on the lives of countless individuals. I am grateful for the knowledge gained, the connections made, and the chance to make a difference in the lives of patients. <br> <br>I wholeheartedly recommend Americans for Safe Access to anyone interested in joining a non-profit organization that is actively working towards improving patient access to medical cannabis. Together, we can create meaningful change and help build a more compassionate and inclusive healthcare system. <br> <br>Thank you, Americans for Safe Access, for the opportunity to contribute to your mission and be a part of something greater than myself. <br> <br>Sincerely, <br> <br>Jassmin Brown

Love CureNFwithJack and the way they educate the public about neurofibromatosis. Their advocation for a cure or effective treatment through medical research is inspiring. What's even more impressive is their growth from a "mom and pop" charity to a full-fledged leader in NF research and funding.

Worse Hospital. Don't risk your health by going to City of Hope. I had a surgery with one of their doctors. I developed pain and could not lift my arm few days after the surgery. I called the doctor's office and his nurse and left messages for the doctor to call me. The doctor never called me for two months. After weeks, his nurse called me for the office visit after I left a detail feedback of what happened to me on their server. In brief; I suffered and still suffering until today. The city of hope did not want to pay for my physical therapy. I contacted their CEO, never received an answer. I contact their chief, he sent me two letters that city of hope is not responsible. Do not go to this hospital. Worse Hospital ever.

I'm proud to part of TEAM FD/MAS! The Million Dollar Bike Ride is an awesome event for a great cause. <br>I look forward to riding again in 2024 to support TEAM FD/MAS and the FDMAS Alliance. <br>

The Myocarditis Foundation is an inspiring institution. Its members have a huge positive impact in the myocarditis patient community. They not only give space for every patient's journey and needs to be heard, understood, and supported, but also connect patients with clinicians and relevant scientific breakthroughs. The Foundation has shown us how this thoughtful cross-talk between the patients, medical professionals, and investigators is vital to bring solutions to myocarditis patients and their families sooner.

Founder Grainne Owen and her team are highly educated in the field of pediatric cancer research. Through her partnerships with the best doctors and hospitals across the country, donors' contributions are specifically targeted to fund the most promising new studies and continue the work of researchers' groundbreaking developments. By working with the best doctors and hospital research programs in the country, Grainne and the Board insure that every donation funds a project that has been through careful review and oversight. I know that every contribution made to this charity goes directly to the best doctors and research programs in the country based on Grainne's commitment, expertise, and networks.

As sponsor for the Florida Gynecologic Cancers & PCOS Run/ Walk event, I am truly honored to participate in this amazing event.