July 21, 2009
MARF is an awesome organization that truly cares about the patient as well as the care givers. They work really hard along with their members to get the word out regarding this orphaned disease and the research money it so badly needs to find a cure! If it was not for MARF I'm not sure how I would have survived these past 3 years! My husband was diagnosised on 8/31/06 and the foundation and it's resources have been terrific!!!!
The Great!
I've personally experienced the results of this organization in...
my own family and friends of educating them as to what Meso is.
Ways to make it better...
If I had to make changes to this organization, I would...
have a symposium on the east coast - Boston
More feedback
What I've enjoyed the most about my experience with this nonprofit is...
the caring people and volunteers
The kinds of staff and volunteers that I met were...
GREAT and INFORMATIVE
If this organization had 10 million bucks, it could...
surely have research monies to find a cure or new treatments!
Ways to make it better...
I was more outgoing and could get my community more involved in MARF
In my opinion, the biggest challenges facing this organization are...
financial
One thing I'd also say is that...
we should never give up!!!!!!!
When was your last experience with this nonprofit?
2009
MY ROLE:
Volunteer & Volunteered to search the web for links to MARF, sell blue bracelets.