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linley

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1 reviews

Review for CONGENITAL HEART DEFECTS FAMILIES ASSOCIATION, Kansas City, MO, USA

Rating: 5 stars  

I moved to KC from Chicago when my daughter (now nine) was one year old. She had just had a VSD repair. I felt so alone and like I didn't have anyone who was going through what we were. Later, I found out about CHD. I joined and my daughter and I have taken food to the hospital and walked the heart walk together. She does not like to draw attn. to her condition, so I follow the website. I am so happy for all the parents that have this great resource when they need it most. Every time I look at the website I cry... it takes me right back to the moment of her surgery. Valerie does an incredible job with this website. Any parent, or loved one with a child who has been through this will appreciate this great organization.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

Role:  Volunteer & My daughter and I have taken food to the parents in the NICU at CMH.