My Nonprofit Reviews
Review for CONGENITAL HEART DEFECTS FAMILIES ASSOCIATION, Kansas City, MO, USA
I moved to KC from Chicago when my daughter (now nine) was one year old. She had just had a VSD repair. I felt so alone and like I didn't have anyone who was going through what we were. Later, I found out about CHD. I joined and my daughter and I have taken food to the hospital and walked the heart walk together. She does not like to draw attn. to her condition, so I follow the website. I am so happy for all the parents that have this great resource when they need it most. Every time I look at the website I cry... it takes me right back to the moment of her surgery. Valerie does an incredible job with this website. Any parent, or loved one with a child who has been through this will appreciate this great organization.
How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?