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linley

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1 reviews

Review for Congenital Heart Defects Families Association, Kansas City, MO, USA

Rating: 5 stars  

I moved to KC from Chicago when my daughter (now nine) was one year old. She had just had a VSD repair. I felt so alone and like I didn't have anyone who was going through what we were. Later, I found out about CHD. I joined and my daughter and I have taken food to the hospital and walked the heart walk together. She does not like to draw attn. to her condition, so I follow the website. I am so happy for all the parents that have this great resource when they need it most. Every time I look at the website I cry... it takes me right back to the moment of her surgery. Valerie does an incredible job with this website. Any parent, or loved one with a child who has been through this will appreciate this great organization.

I've personally experienced the results of this organization in...

see above...

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

Role:  Volunteer & My daughter and I have taken food to the parents in the NICU at CMH.