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Phone: 913-535-4970
PO Box 46744
Kansas City
Missouri 64188

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Geographic areas served: Kansas, Missouri and surrounding areas


The Congenital Heart Defects Families Association is a Midwest not-for-profit 501(c)(3) corporation working to bring comfort and support to area families affected by congenital heart defects. Support groups, distribution of educational literature, meals cards, care packages and comfort items for children undergoing cardiac procedures are the Association’’s main focus. Additionally, the Association functions to raise money and awareness to promote congenital heart defects research through a variety of projects. One hundred percent volunteer run, the CHD Families Association strives to maximize investment in its work, not its overhead.We are the only support system in the midwest area for children with heart defects and their families. 

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My son Max was diagnosed with double outlet right ventricle with pulmonary atresia, asd, vsd, and dysplastic aorta the morning after he was born. (A simple pulse ox test confirmed our pediatrician's suspicion that something was wrong. It is not required in Kansas, YET!) CHD families has members ... more »
My daughter was diagnosed with CHDs at birth. I met Valerie through information I received while at an appointment at Children's Mercy Hospital. CHD Families does so many great things, but as a heart mom, the best gift is its ability to connect families in need of support. Being able to share our... more »
Chd families has provided us with other heart families. It's amazing to finally know I am not alone in this journey! I found this group when my son was 7, until that point I felt very alone. He's now 11 and I know I'm not alone. Bringing heart families together is awesome... more »
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