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renee11

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CONGENITAL HEART DEFECTS FAMILIES ASSOCIATION
June 26, 2010

My son was diagnosed in-utero with Tetralogy of Fallot. I found CHD Families through Children's Mercy and attended support group meetings before he was born as well as during his first year. I really enjoyed getting to know other CHD families and I learned a lot about surviving hospital stays, advocating for my child, and generally what to expect with a CHD child. CHDFA sent us a care package during our hospital stay including a handmade blanket which made us feel very welcome.

The Great!

I've personally experienced the results of this organization in...

helping to raise money for CHD research through the KC Heart Walk.

More feedback

The kinds of staff and volunteers that I met were...

VERY friendly and helpful

If this organization had 10 million bucks, it could...

reach every family with a CHD kid

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2008

MY ROLE:
Client Served & I received support when my son was diagnosed with a heart defect.