My Nonprofit Reviews
Review for CONGENITAL HEART DEFECTS FAMILIES ASSOCIATION, Kansas City, MO, USA
My son was diagnosed in-utero with Tetralogy of Fallot. I found CHD Families through Children's Mercy and attended support group meetings before he was born as well as during his first year. I really enjoyed getting to know other CHD families and I learned a lot about surviving hospital stays, advocating for my child, and generally what to expect with a CHD child. CHDFA sent us a care package during our hospital stay including a handmade blanket which made us feel very welcome.
The kinds of staff and volunteers that I met were...
VERY friendly and helpful
If this organization had 10 million bucks, it could...
reach every family with a CHD kid
How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?