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renee11

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1 reviews

Review for CONGENITAL HEART DEFECTS FAMILIES ASSOCIATION, Kansas City, MO, USA

Rating: 4 stars  

My son was diagnosed in-utero with Tetralogy of Fallot. I found CHD Families through Children's Mercy and attended support group meetings before he was born as well as during his first year. I really enjoyed getting to know other CHD families and I learned a lot about surviving hospital stays, advocating for my child, and generally what to expect with a CHD child. CHDFA sent us a care package during our hospital stay including a handmade blanket which made us feel very welcome.

The kinds of staff and volunteers that I met were...

VERY friendly and helpful

If this organization had 10 million bucks, it could...

reach every family with a CHD kid

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2008

Role:  Client Served & I received support when my son was diagnosed with a heart defect.