My Nonprofit Reviews

renee11 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits


220 profile views
1 reviews

Review for Congenital Heart Defects Families Association, Kansas City, MO, USA

Rating: 4 stars  

My son was diagnosed in-utero with Tetralogy of Fallot. I found CHD Families through Children's Mercy and attended support group meetings before he was born as well as during his first year. I really enjoyed getting to know other CHD families and I learned a lot about surviving hospital stays, advocating for my child, and generally what to expect with a CHD child. CHDFA sent us a care package during our hospital stay including a handmade blanket which made us feel very welcome.

The kinds of staff and volunteers that I met were...

VERY friendly and helpful

If this organization had 10 million bucks, it could...

reach every family with a CHD kid

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?


Role:  Client Served & I received support when my son was diagnosed with a heart defect.