May 2, 2013
I was originally told about TMA 5 years ago by my Pilates teacher, who was working on getting me stronger after my diagnosis with dermatomyositis and trying to learn about the disease to help me. I am so thankful she found it! I have since joined TMA, attended four conferences and made many friends. The small staff does an amazing job with its limited resources. The highly educational yearly conferences have been overwhelmingly appreciated by all attendees, with the added bonus of a very committed and knowledgable medical advisory board (who are actually involved in research and patient care, not just names on a list). The website not only has a wealth of information, but has access to webinars and a community forum where individuals can pose questions and get answers and tips. And due to the many support groups (called KIT - Keep In Touch groups), nearly anyone in the country can find a local outlet to meet others with the same condition, a HUGE deal with such rare conditions. It has made a big difference in my life.
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MY ROLE:Client Served