The Myositis Association Overview
Target demographics: Adults and children -- patients, family members, and caregivers. Medical and therapeutic professionals who work with these patients.
Direct beneficiaries per year: 3,000 patients who are TMA members and 1100 physicians treating myositis patients
Someone who had 3 hours of volunteer time could: Volunteers could help with an awareness event, assist with mailings, or support a fundraising event.
Geographic areas served: Primarily North America with some partners in Europe and Australia
The Annual Conference brings together myositis patients with health professionals who specialize in myositis and related fields. This event features a panel of medical experts and sessions on treatments, promising research, coping strategies, exercise techniques, and more. Find presentations from previous Conferences.
TMA publications —both in print and electronic—present information on diagnosis, treatments, research news, and other relevant topics that help patients and caregivers learn what they need to address their individual health care concerns.
Support groups offer members the chance to share their feelings and discuss their concerns with people in similar situations. These groups encourage an atmosphere of communication and compassion.
Public recognition of myositis, increased research funding, greater access to care, and better coverage and reimbursement for treatments—TMA gives you the tools to make a difference.
TMA provides funding to emerging and established researchers who are seeking answers to the mysteries surrounding myositis. TMA is committed to continuing its research program to increase understanding, find better treatments and, ultimately, a cure.
- Provide support to myositis patients and their families
- Provide connections between the Medical Advisory Board and the general medical and patient communities
- Increase funding to support myositis research
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