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Phone: 800-821-7356
1737 King Street
Ste 600

Alexandria
Virginia 22314
USA
Website
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Target demographics: Adults and children -- patients, family members, and caregivers. Medical and therapeutic professionals who work with these patients.

Direct beneficiaries per year: 3,000 patients who are TMA members and 1100 physicians treating myositis patients

Someone who had 3 hours of volunteer time could: Volunteers could help with an awareness event, assist with mailings, or support a fundraising event.

Geographic areas served: Primarily North America with some partners in Europe and Australia

Programs: Education
The Annual Conference brings together myositis patients with health professionals who specialize in myositis and related fields. This event features a panel of medical experts and sessions on treatments, promising research, coping strategies, exercise techniques, and more. Find presentations from previous Conferences.

TMA publications —both in print and electronic—present information on diagnosis, treatments, research news, and other relevant topics that help patients and caregivers learn what they need to address their individual health care concerns.

Support
Support groups offer members the chance to share their feelings and discuss their concerns with people in similar situations. These groups encourage an atmosphere of communication and compassion.

Advocacy
Public recognition of myositis, increased research funding, greater access to care, and better coverage and reimbursement for treatments—TMA gives you the tools to make a difference.

Research
TMA provides funding to emerging and established researchers who are seeking answers to the mysteries surrounding myositis. TMA is committed to continuing its research program to increase understanding, find better treatments and, ultimately, a cure.

Mission:
The mission of the Myositis Association is to:

- Provide support to myositis patients and their families
- Provide connections between the Medical Advisory Board and the general medical and patient communities
- Increase funding to support myositis research
Results:
There is greater awareness of the disease among physicians; there is better understanding among physicians about how to treat the disease; there are new treatments for the disease that did not exist before; there are research trials underway to find better treatments; TMA has funded 35 research projects related to myositis in the past 10 years

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10/14/14
I was diagnosed in February 2010 with polymyositis, and six months later lupus. In 2011 I started a wellness campaign to gain back my mind, body, and spirit, and help others. It was around this time I reached out to TMA. They responded and offered their time and effort to help me achieve my goals, ... more »
10/10/14
My husband has inclusion body myositis and we have found TMA to be so very helpful in dealing with this disease. The newsletters, support groups and the yearly conference has been a tremendous resource for us as this disease progresses. We had never heard of IBM and knowing that we have support ... more »
10/09/14
Dermatomyositis with ILD is rare and there is No Cure! Most die within 5-7 years after being diagnosed. I am beating the odds am going on my 12 year. This terrible disease effects my lungs, joints, muscles and everyday living. This past September I was able to go the Myositis Assocation Conference ... more »
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