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nancys

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1 reviews

Review for The Oral Cancer Foundation, Newport Beach, CA, USA

Rating: 5 stars  

I recently found the oralcancerfoundation web sight and only wish I had found it a year ago when I was struggling with my 55 year old husband's diagnosis of base of tongue cancer. I did not know of anyone with this type of cancer and have struggled over the past 10 months trying to educate myself about this disease and treatment modalities and the future. It is a very lonely cancer to have. Since finding this patient forum, I feel I finally have a place to go where there are others struggling with this type of cancer and it's devastating impact on quality of life. My questions can be answered by others who have been there. It has been a wonderful resource for followup questions and concerns This is a great organization but it has a huge task ahead of it: to educate the public and health care professionals about the increase in oral cancer, especially in those individuals who do not smoke or drink and whose cancer is probably related to HPV. Thank you, Nancy Mazzapica

What I've enjoyed the most about my experience with this nonprofit is...

talking with others who are experiencing or have experienced oral cancer

The kinds of staff and volunteers that I met were...

very heplful and available

If this organization had 10 million bucks, it could...

plaster the cancer centers and radiation centers with the web sight so pts and caregivers could communicate with others experiencing the same disease

Ways to make it better...

I had found this sight sooner

In my opinion, the biggest challenges facing this organization are...

visibility

One thing I'd also say is that...

I'm grateful i found this sight

When was your last experience with this nonprofit?

2009

Role:  Client Served & I received support from other members of the pt forum.