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The Oral Cancer Foundation

Rating: 4.98 stars   328 reviews 9,552

Nonprofit Issues:

Health, Cancer

Address:

3419 Via Lido #205 Newport Beach CA 92633 USA

Mission:

The Oral Cancer Foundation is a non-profit 501c3 charity that works to provide information about this disease to the public, advocate for patients, and provide support services to them. OCF operates the world’s largest real time, patient-to-survivor interactive support service via the web, and the foundation’s main information web site, which contains thousands of pages of information, receives over 22 million hits per month. We are also sponsors of research, primarily in the area of detection mechanisms that facilitate the discovery of the disease at early stages when survival rates are the highest.

Results:

*WINNER OF THE 2009 CANCER FIGHTERS AWARD FOR SMALL NON-PROFITS* CURRENT CAMPAIGNS Rodeo - Tobacco Outreach - "Be Smart. Don't Start." In 2014 our first rodeo spokesperson joined OCF; Cody Kiser, a young, personable, up and coming bareback bronc rider. Cody and OCF founder Brian Hill began a program of doing interviews at rodeos or by phone after Cody’s competition in the arena with local print media. The message from Hill, an oral cancer survivor, and Cody, a rodeo cowboy that believed in rodeo as a family oriented event where tobacco wasn’t a contributing part of the mix, was simple. Tobacco eventually brings bad things into your life, and you can be a great competitor and cowboy/athlete without it. The foundation worked with photographers to not only capture the excitement of a wild 8 second ride on a horse that wants to put you on the ground, to showcasing the message and branding that Cody wears on his safety vest and shirts into the arena competition. The idea, particularly Cody’s compelling story of wanting to do good in the world while following his passion of traveling to rodeos to compete each weekend, was an immediate success. That human interest story, coupled with facts about tobacco and nicotine addiction, and the dire oral cancer element, was a story that resonated with people. Almost immediately it attracted national attention in venues like the largest print magazine in circulation in America; Parade, to front page stories in local newspapers like the The Idaho Press Tribune and PRC Rodeo. Part of the Change: The RDH community is uniting to be part of the much needed change in early discovery of oral cancers. With their commitment to performing oral cancer screenings and being the first line of defense you have an opportunity to find cancer in its early stages. Early discovery and diagnosis, yields better long-term outcomes, and lower morbidity to those who undergo treatments. Together, we can make a difference! Together, we can give oral cancer a voice! If you would like to be part of the change, please email Jamie O'Day - jamie@oralcancerfoundation.org. Oral Cancer Awareness Month - April Oral Cancer awareness in the American public is low. Approximately 43,250 people in the U.S. will be newly diagnosed with oral cancer this year. Dentists are often the first line of defense against oral cancer, through the process of early discovery. While smoking and tobacco use are still major risk factors, the fastest growing segment of oral cancer patients is young, healthy, nonsmoking individuals due to the connection to the HPV virus. We cannot stop this virus from spreading; our only hope to save lives is with professional involvement and public awareness. This is your opportunity to get involved and give back to your community in hopes to raise oral cancer awareness and the need for early detection in order to save lives. Together, we have the opportunity to make a difference in the world of oral cancers. Please join us.

Target demographics:

While historically the majority of people are over the age of 40 at the time of discovery, oral cancer does occur in those under this age. It is also now confirmed that in a younger age group, including those who have never used tobacco products, have a cause which is HPV viral based. The human papilloma virus, particularly version 16, has now been shown to be sexually transmitted between partners, and is conclusively implicated in the increasing incidence of young non-smoking oral cancer patients.

Geographic areas served:

USA

2014 Top-Rated Nonprofit
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More Info

949-723-4400
http://www.oralcancer.org

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Reviews for The Oral Cancer Foundation

Rating: 5 stars  

2 people found this review helpful

Through this organization I receive much needed emotional support as I live through the oral cancer journey. Also it has given me factual information about my condition and helped me view my expectations realistically. We have a bond.

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Rating: 5 stars  

2 people found this review helpful

As soon as I was diagnosed on June 5, 2015 I hit the internet to learn all I can about my type of cancer and what I was potentially in for. The message board on this site and all of the literature has been a life saver and sanity saver! I am currently on there starting a new thread as I begin to prepare for a new phase of my treatment.

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Rating: 5 stars  

2 people found this review helpful

I was diagnosed with tongue cancer earlier this year. Finding he Oral Cancer Foundation has been a wonderful resource and support for me. I cannot imagine having to go through this ordeal without this foundation!

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Rating: 5 stars  

2 people found this review helpful

My family is very grateful for the Oral Cancer Foundation's work in supporting patients and their families as they navigate diagnosis, treatment, and survival, and for keeping the public abreast of research and and relevant news. The support forum has been particularly helpful. My mother was diagnosed with advanced squamous cell carcinoma of the tongue, and through OCF, we have been able to research clinical trials, access other resources, and communicate with survivors and caregivers farther along in the process.

If I had to make changes to this organization, I would...

None!

When was your last experience with this nonprofit?

2015

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Role: Professional with expertise in this field
Rating: 5 stars  

2 people found this review helpful

As a dental hygienist, part of my daily job is to educate patients about oral cancer. The Oral Cancer Foundation has been an incredible resource for vetted, up to date, and reliable information related to trends, risk factors, current research and best practices. After volunteering at community screening events, one of my own family members was diagnosed with oral cancer and I was blessed that I was able to refer him to this foundation as he fought one of the toughest battles of his life. Information he received truly made a difference in his treatment decisions and thankfully he is alive and thriving today! With 24/7/365 access, OCF is truly a top rated non-profit serving the public, patients, and the dental/medical communities!

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Rating: 5 stars  

2 people found this review helpful

There are not all that many places to share the experience of having a portion of your tongue removed. Many less to share that experience with people who provide the support and encouragement that I found at the OCF. It is loaded with information, compassion and it's done with sincerity from people who have been there. It provided me with somewhere to go and people to turn to in some very dark and scary times. I will be sticking around to try to contribute in whatever way I can. I love the OCF!

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Rating: 5 stars  

2 people found this review helpful

My mom became a member of the OCF after her first battle with oral cancer. During my mom's nine year battle the OCF provided support, resources and friends that helped her endure. Unfortunately, my mom lost her battle with oral cancer in 2011. The OCF continues to be an amazing outlet for me to help spread awareness and promote oral cancer screenings. I am so grateful for the OCF and everyone associated with this foundation!

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Role: Professional with expertise in this field
Rating: 5 stars  

3 people found this review helpful

Words could not express the value of the Oral Cancer Foundation and it's impact on the lives of oral cancer patients and their families. As a speaker on the subject of oral cancer, I direct all healthcare professionals to the site. It is meticulously updated with the most current information complemented by a vast array of educational resources. However much more than that, is the ability of the foundation to advocate, relate and support those who are going through tremendous challenges in their lives.
The founder, Brian Hill knows first hand the devastation of the disease. His empathy and compassion are exemplary. He has had the ability to instill the same kindness and warmth in the team that he works with. This became evident when one of our own family members was stricken with late stage oral cancer and eventually succumbed to the illness. The team rallied and supported through every phase of treatment. Our world is a much better place with having the Oral Cancer Foundation in it.
Jo-Anne Jones, RDH

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Rating: 5 stars  

4 people found this review helpful

I LOVE, LOVE, LOVE the Oral Cancer Foundation!!! Its is a very small nonprofit that has a worldwide presence. The Oral Cancer Foundation provides factual medical info and support to help oral cancer patients and caregivers. When a newly diagnosed patient joins the online support group, they have found a new "family". Members embrace them and offer encouragement and support thru all their ups and downs. I couldnt think of another organization anywhere that cares for each member like The Oral Cancer Foundation does. Im proud to be a member and also a volunteer.

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1 previous review
Rating: 5 stars  

2 people found this review helpful

The Oral Cancer Foundation is THE BEST!!! It helps thousands of oral cancer patients and their caregivers each month. The public forum has hundreds of members who are always willing to help others. This organization is a great small nonprofit which helps so many.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

3 people found this review helpful

The Oral Cancer Foundation is the BEST!!!! It is THE place to turn to for correct medical info and support when diagnosed with oral cancer. The main site is full of important info and news stories about oral cancer. The public forum is made up of volunteers who will help the patient thru diagnosis, treatment and recovery with correct medical info and moral support.

OCF has helped me tremendously. If it wasnt for Brian Hill and the Oral Cancer Foundation I probably wouldnt be here today. When I was diagnosed with my 3rd round of oral cancer and it was Stage IV, I almost gave up. Brian and the kind Oral Cancer Foundations members helped me to understand I had a shot and to not quit before I even tried. A huge THANK YOU to both Brian and his creation, OCF!!!

I have been a volunteer for OCF for the past few years since my recovery from my third round of oral cancer. This organization is run on a show string budget and does wonders with what it has. OCF funds research studies to help current and future oral cancer patients. This is one great non profit!!!!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

3 people found this review helpful

The Oral Cancer Foundation (OCF) is the best source of information and support for those impacted by oral cancer. While some think this is a rare cancer, oral cancers will be newly diagnosed in about 115 new individuals each day in the US alone, and one person dies from oral cancer every hour of every day. Approximately 43,250 people in the US will be newly diagnosed with oral cancer in 2014. Finding information and support for those newly diagnosed is difficult since this isn’t one of the “popular” cancers. The OCF website and support forum fills that gap. OCF provides reliable, accurate and updated information on oral cancer via their website main pages or through the on-line support group. The on-line support group is available 24x7 and gives you the ability to connect with others that have gone through what you are going through. Now I did not feel so alone!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

2 people found this review helpful

The Oral Cancer Foundation is the best source of information and support for those impacted by oral cancer. When I was first diagnosed with oral cancer, I knew nothing about it and had so many questions. Eventually I found the OCF website and it was just what I was looking for! Reliable, accurate and updated information on oral cancer which answered all the questions I had and was unable to find the answers for elsewhere. Also, the on-line support group is the best – available 24x7 and gives you the ability to connect with others that have gone through what you are going through. Now I did not feel so alone!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

1 person found this review helpful

In June 2005 I got the devastating news that I had oral cancer. Since I never used tobacco products of any kind, this was not a cancer that I worried about or knew much about. I had so many questions and decisions to make in a short period of time. Unfortunately very little information was readily available nor was I able to find any support groups to guide me through the process. I relied heavily on my team of doctors to get me through this and fortunately they did, but what I also needed was to talk to someone that had been through this before and a reliable source of “all you ever needed to know about oral cancer”. The Oral Cancer Foundation was the answer to my prayers. Months after my treatment began I was directed to the OCF website. The information contained on the website has proven to be the most comprehensive, accurate, and up-to-date source that I have found on all aspects of this devastating disease. And the “Survivor / Patient Forum” is in my opinion the best support group out there for oral cancer, or for any type of cancer. With over 6,000 members from all over the United States and many foreign countries you have access to a “24x7” support network that consists of survivors and caregivers who are knowledgeable, compassionate, and more than willing to help those facing this disease and life altering impact of the treatments used to stop this killer disease. I and all members of the OCF community are extremely grateful for the efforts of Brain Hill, the OCF founder and an oral cancer survivor. Without his efforts many of us would have been left to travel this road scared and alone. THANK YOU BRIAN AND OCF!!

I've personally experienced the results of this organization in...

the support and advice given to newly diagnosed oral cancer patients and caregivers via the survivor/patient forum.

If I had to make changes to this organization, I would...

not change a thing.

What I've enjoyed the most about my experience with this nonprofit is...

having had the opportunity to speak with the Brian Hill, the founder, a number of times and I’ve learned first hand how dedicated he is to fighting this disease and how much he has single handedly accomplished on such a small budget.

The kinds of staff and volunteers that I met were...

extremely dedicated, caring and knowledgeable.

If this organization had 10 million bucks, it could...

continue its great work including sponsoring more research on finding a cure and offering more free oral cancer screenings.

Ways to make it better...

I had found OCF ealier.

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

funding to support additional research, screenings, and maintaining the outstanding website and support forum.

When was your last experience with this nonprofit?

2009-7-01

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