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Phone: 949-723-4400
3419 Via Lido
#205

Newport Beach
California 92633
USA
Website
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Target demographics: While historically the majority of people are over the age of 40 at the time of discovery, oral cancer does occur in those under this age. It is also now confirmed that in a younger age group, including those who have never used tobacco products, have a cause which is HPV viral based. The human papilloma virus, particularly version 16, has now been shown to be sexually transmitted between partners, and is conclusively implicated in the increasing incidence of young non-smoking oral cancer patients.

Geographic areas served: USA

Mission:
The Oral Cancer Foundation is a non-profit 501c3 charity that works to provide information about this disease to the public, advocate for patients, and provide support services to them. OCF operates the world’s largest real time, patient-to-survivor interactive support service via the web, and the foundation’s main information web site, which contains thousands of pages of information, receives over 22 million hits per month. We are also sponsors of research, primarily in the area of detection mechanisms that facilitate the discovery of the disease at early stages when survival rates are the highest.
Results:
*WINNER OF THE 2009 CANCER FIGHTERS AWARD FOR SMALL NON-PROFITS*

With our mouth we eat and drink what sustains us. With it, we communicate ideas and feelings to the world through speech or a simple smile. It allows us to taste the nuance of a fine wine, the sweetness of a freshly picked berry, or mustard covered hot dog at the ballpark. Love or passion is expressed by it when we kiss a loved one or child. When cancer affects our mouths, it does more than take away these everyday functions, it too often takes our lives. Through increased public and professional awareness, prevention through lifestyle changes, early detection initiatives, education, improved treatment modalities, and sponsorship of research, the Oral Cancer Foundation’s mission is to contribute to the reduction of suffering, permanent physical damage and disfigurement, and death caused by this disease.

The foundation is an IRS registered non-profit 501(c) 3, public service charity designed for advocacy and service, created to promote change, through proactive means, in both the public and medical/dental professional sectors. At the forefront of our agenda is the firm establishment in the minds of the American public for the need to undergo an annual oral cancer screening, combined with an outreach to the dental and medical communities to provide this service as a matter of routine practice. Oral cancer takes more lives than cancers we routinely hear about, such as cervical, Hodgkin’s lymphoma, skin (malignant melanoma), testicular, and many others. In the efforts to reduce the death rate from cancers in the US, the most significant progress has been made through early detection. Cervical, skin, prostate, and others that lend themselves to simple, opportunistic screenings and exams have all had their death rates reduced through programs promoting early discovery. Early discovery and diagnosis, yields better long-term outcomes, and lower morbidity to those who undergo treatments. Oral cancer is not hidden within the body in some hard to find location requiring an invasive examination, the majority of the time it is literally in plain view, right under your nose, and can be seen with the naked eye or felt with the fingers. In most cases, its early, highly survivable stages are easily detected in a 3 to 5 minute painless visual and tactile examination. Even the precancerous lesions, which can progress into malignancy, can be seen with the naked eye. An annual oral examination conducted by members of the dental and medical communities will have a definite impact on reducing the death rate associated with oral cancer. It is our mission to bring this about.

Founded by an oral cancer survivor, Brian R. Hill, the foundation’s goals are supported by a Scientific Advisory Board composed of leading cancer authorities from varied medical and dental specialties, drawn from premier cancer treatment, research, and educational institutions in the US. The foundation is currently forming its Board of Advisors from a selection of individuals with experience in philanthropic and cause related issues, and continues to add to its board of directors.

In 2008 The Bruce Paltrow fund was added to OCF as a collaborative effort between the Paltrow family, headed by Actress Blythe Danner (Paltrow), and OCF’s founder. The Paltrow fund has specific goals to aid in fund raising and public outreach efforts. The goals reflect the humanitarian nature of Director Producer Bruce Paltrow who was lost to oral cancer in 2002.  More details related to this fund’s efforts in areas where disparities in health care exist can be found here.



The foundation is primarily supported by, and dependant on, donations that are received from private individuals who mostly come from the ranks of survivors, and family and friends of those who have had the disease. As a disease that has not received the national publicity and awareness of some of the major cancers such as breast, prostate, etc., national fund raising efforts pale in comparison when support from the general public is considered. A small group of private sector corporate sponsors have also made unrestricted donations to the foundation in support of its efforts. Early funding for some projects was underwritten and paid for privately by Brian and Ingrid Hill, the founders. Brian Hill has also donated without compensation 1000’s of hours of his working time since 2001 to further the work of the foundation. While the foundation has the tax status to receive monies from federal and state governments and institutions, no grant money has been obtained from these sources to date. The foundation hopes to continue to develop relationships with benevolent corporate sponsors or other foundations who share common goals with OCF, which will provide the funding necessary to enact the initiatives that the foundation has pending at this time.

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07/31/14
The Oral Cancer Foundation (OCF) is the best source of information and support for those impacted by oral cancer. While some think this is a rare cancer, oral cancers will be newly diagnosed in about 115 new individuals each day in the US alone, and one person dies from oral cancer every hour of ... more »
07/23/14
I found the Oral Cancer Foundation when I was a terrified, newly diagnosed patient. The community forum and educational resources were invaluable to me then and through my treatment and recovery. As a three year survivor, I still often return to the community forum to both receive and offer support ... more »
07/20/14
When you are diagnosed with cancer, there are simultaneously dozens of places to get advice and no places at all. What that means is it is easy to become overwhelmed with information and to almost drown in it. Cancer is scary - so very scary - and having a place to go, a place where people have ... more »
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