INTERNATIONAL WAGR SYNDROME ASSOCIATION
June 12, 2011
I don't know what I would do without the IWSA. I have learned more about my child by talking and sharing with parents, than I could ever learn from a textbook. We would have NEVER learned about the NIH study without the support of the IWSA. This is a group that I will be forever connected to!
I've personally experienced the results of this organization in...
Better healthcare, better services at school, access to professionals, knowledge, power, and understanding
Ways to make it better...
If I had to make changes to this organization, I would...
encourage more parents to get involved in helping the organization on a day to day basis.
Volunteer & When my son was diagnosed with cancer, I was able to connect to another mom going through the exact same thing. .