My Nonprofit Reviews
Rhonda S.
Review for International WAGR Syndrome Association, Montgomery Village , MD, USA
Excellent family support and advocacy! The relationships that have been built with medical professionals are priceless!
Review for International WAGR Syndrome Association, Montgomery Village , MD, USA
I would be lost without the knowledge and support of this organization!
Review for International WAGR Syndrome Association, Montgomery Village , MD, USA
I would have never survived the world of rare disease without the IWSA by my side.
Review for International WAGR Syndrome Association, Montgomery Village , MD, USA
I don't know what I would do without the IWSA. I have learned more about my child by talking and sharing with parents, than I could ever learn from a textbook. We would have NEVER learned about the NIH study without the support of the IWSA. This is a group that I will be forever connected to!
More Feedback
I've personally experienced the results of this organization in...
Better healthcare, better services at school, access to professionals, knowledge, power, and understanding
If I had to make changes to this organization, I would...
encourage more parents to get involved in helping the organization on a day to day basis.
