Oops! You must enter a search term greater than 3 characters.

Profile moreless )

PO Box 392
Allen Park
Michigan 48101

Please to add this organization to your favorites.

Add to my favorites Added to favorites!

The mission of the IWSA is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
10 Reviews
See all »
Average rating:
Write A Review
My 10yo daughter has WAGR syndrome and because she was diagnosed pre-natally I was fortunate to have had the support of the IWSA from day one. Being such a rare syndrome, I've found the knowledge of the board to be invaluable in raising my daughter, both in medical and emotional terms. I doubt ... more »
The IWSA was my life preserver when I was swimming in fear off what my son's future would be like. Their knowledge of this disorder was a huge help to not only my family, but our doctors too. We have met other parents who deal with what we do day to day and now they are part of our own "family". I ... more »
This group has been a lifesaver to my daughter who has WAGR and sanity to myself and family. My daughter was 18 when we first found this group. We were given advise to check kidneys for FSGS, other health issues which were never mentioned to us by doctors. Doctors here in UK, 23 years ago could ... more »
See all 10 reviews »

Photos & Video

Are you the Nonprofit? Your photos and videos would look great here!

Promote This Nonprofit

Great Nonprofits badges allow you to raise awareness of your favorite organizations on your own web sites. for text link or graphic badge.

Get badge
By registering you agree to the site's Terms and Conditions.