I started searching for information, the library, the internet. I began to understand what I had but found no one else with this disease.
Frustrated I searched the web looking for anyone who could understand and help me.
Finally I came across the APS web site and learned that a few more people had this disease. APS has given me the support I need to go on. It has offered information on drugs, genetic research, and treatments for APS. It has helped my family understand the disease. I don't feel alone anymore!
I've personally experienced the results of this organization in...
Dealing with family and friends. I reccommend it to everyone I meet. It helps others understand the disease
Ways to make it better...
If I had to make changes to this organization, I would...
See that more advertising would be done. Most people (including some doctors) know very little about APS. TV campaign: 6 minutes, some health programs (Dr. OZ)
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