My Nonprofit Reviews

It’s been 20yrs since being diagnosed with APS. No one knew what it was . I stumbled on this group by doing my own research via the Internet.
It has made a big difference in my outlook in living with APS and gives me vital, up to date medical information. It has been an emotional support group for me. I learned I Can live a somewhat normal life, with a few tweaks, questions answered, research info made available. The APS Foundation plays a vital role in giving those of us affected by APS hope and confidence we can live with this autoimmune disease.

I found the APS Foundation of America by chance about 19 yrs ago after suffering a stroke and being diagnosed with APS. I never heard of this autoimmune disease , my Docs never heard of it and in the beginning of my journey I found myself afraid and isolated. I was referred to a Rheumatologist who was one of a handful of professionals who knew what APS was and how to treat it. Together we set about finding a treatment for me that would allow me to return to an almost normal life.
I researched APS and came across this site and the support group that helped me to understand what I needed to do and allowed me to ask questions of the experts and people with this disease. They offered me support and gave me knowledge of the treatments and medications available to me. It was a God send and a game changer for me because I now had the knowledge and resources needed to become my own advocate . I have through the years taught many of my Docs and medical professionals about APS. It was and still is a vital resource for me.

Been a member for almost 17 years! Thank you Tina & APS Foundation for all you do. The information and help on this site has gotten me through some tough times.

I was diagnosed with APS in 2002. I had never heard of APS until then.
I started searching for information, the library, the internet. I began to understand what I had but found no one else with this disease.
Frustrated I searched the web looking for anyone who could understand and help me.
Finally I came across the APS web site and learned that a few more people had this disease. APS has given me the support I need to go on. It has offered information on drugs, genetic research, and treatments for APS. It has helped my family understand the disease. I don't feel alone anymore!

More Feedback