My Nonprofit Reviews
Todd J.
Review for Spina Bifida Association of America, Arlington, VA, USA
As the parent of a ten-year-old boy with spina bifida, I find SBAA to be an indispensable source of information and support. They provide some of the most valuable services imaginable to families who are dealing with spina bifida. They are a very important organization and do a wonderful job of reaching out to the community they serve in many ways.
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I've personally experienced the results of this organization in...
Many aspects of my son's life, especially learning about long-term prognoses, medical and hygiene issues, and socialization.
If I had to make changes to this organization, I would...
Perhaps make the conferences less expensive; many families we know can't attend the conferences because of the prohibitive price. I know these things are expensive to put on, but families who deal with spina bifida already have many expenses on the table.