June 1, 2011
As the parent of a ten-year-old boy with spina bifida, I find SBAA to be an indispensable source of information and support. They provide some of the most valuable services imaginable to families who are dealing with spina bifida. They are a very important organization and do a wonderful job of reaching out to the community they serve in many ways.
The Great!
I've personally experienced the results of this organization in...
Many aspects of my son's life, especially learning about long-term prognoses, medical and hygiene issues, and socialization.
Ways to make it better...
If I had to make changes to this organization, I would...
Perhaps make the conferences less expensive; many families we know can't attend the conferences because of the prohibitive price. I know these things are expensive to put on, but families who deal with spina bifida already have many expenses on the table.
MY ROLE:
Client Served & learned many things about my son's birth defect through SBAA resources.
