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4590 MacArthur Blvd Nw Ste 250
Washington
District of Columbia 20007
USA
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Mission:
TO PROVIDE INFORMATION RELATED TO THE BIRTH DEFECT OF SPINA BIFIDA, INCLUDING PROGRESS IN THE AREAS OF MEDICINE, EDUCATION, LEGISLATION AND FINANCIAL SUPPORT; TO HELP FUND RESEARCH INTO THE CAUSES, EFFECTS AND TREATMENT OF SPINA BIFIDA; TO ENCOURAGE THE TRAINING OF PROFESSIONALS INVOLVED IN THE TREATMENT OF SPINA BIFIDA.
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11 Reviews
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Average rating:
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10/17/13
I am the parent of a 7 year old daughter who has spina bifida. I have donated time and energy (using a half marathon to raise awareness and around $7k) and personal funds to this worthy organization. The Spina Bifida Association is the ONLY national nonprofit exclusively serving those affected by ... more »
06/02/11
I am 42 year old women that has SB. I have had well over 20 surgeries I walk with braces and have used crutches off and on,I also use manual wheelchair when I need it. I have a AA degree. I worked with People that also disable to show tham that Just becasue we are Disable dose not mean that we ... more »
06/01/11
I am a parent of a 9 yr old girl with SB. The resources and support that I have found from SBAA are great. It is also a great resource to find others with the same questions and concerns. Some have all ready gone through what you are experinceing now and are able to pass on their triumphs and ... more »
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