My Nonprofit Reviews
Review for The Cfids Association Of America, Inc., Charlotte, NC, USA
My affiliation with The CFIDS Association of America began shortly after my diagnosis with CFS in 2005, when I quickly realized that they were, and continue to, be the largest and most active charitable organization dedicated to chronic fatigue syndrome (CFS). Since 1987, the Association has invested more than $29.5 million in initiatives to make CFS widely understood, diagnosable, curable and preventable. Over the past 6 years I've have made The CFIDS Association of America my charity of choice, as well as my source for accurate, up-to-date reporting of scientific data on CFS.
I strongly believe that their focus on research will most efficiently help us all reach our collective end goal; to understand the cause of this illness, and develop safe, affordable treatments and preventatives.
I've personally experienced the results of this organization in...
the form of published research findings focusing on identifying biomarkers for CFS, generated by grants from The CFIDS Association of America.
If I had to make changes to this organization, I would...
Provide them with greater resources and funding to augment their efforts to support patients with CFS through their focus on solid research, which will provide an accelerated approach to developing an advanced objective diagnosis, and effective treatment for CFS.