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1 reviews

Review for Mld Foundation, West Linn, OR, USA

Rating: 5 stars  

Dean & Teryn founders of The MLD Foundation have children that have & do suffer from this disease. They know how difficult it is to get information on how to help people affected with MLD. In an effort to help others not have to go through what they have been through they started this foundation in order to help others have access to information. They have many contacts in Medicine & Research that has been very valuable to many people. The MLD disscussion group which they started has been an invaluable sorce of information for me & many, many others. They work tirelessly and effectively and helping other families affected with MLD & they have meant many of them. This foundation offers support most of us can not get elsewhere even in the medical community it is difficult to find doctors that have even heard of MLD and most of them don't know what kind of treatments are needed. I have had 3 children with MLD and I am so thankful for the MLD foundation they have been a great source of help, knowledge, & comfort to me and I know many, many others.

Role:  Client Served & MLD Discussion List.