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Virginia

Virginia - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
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1 Reviews

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INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION
March 24, 2011

My daugher has IH and suffered for 5 1/2 years. The IHRF Foundation has been a great asset for us. They have wonderful people that can help us to have a knowledgable person to talk to about what is happening with our daughter. The support team is awesome.

The Great!

I've personally experienced the results of this organization in...

I have had several occasions to talk with people within the organization. They have helped me to come to terms with some of the issues associated with my daughters condition and helped me to find other methods of help for her.

Ways to make it better...

If I had to make changes to this organization, I would...

Have it more well known, I want everyone to know about this group and how great they are.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Through the internet

What, if any, change in your life has this group encouraged?

They helped me to realize that how our daughter is treated medically and in school is up to us and we need to take a stand on her care and her life.

When was your last experience with this nonprofit?

2011

MY ROLE:
Client Served & My daughter and I have started a yearly event to help raise funds for this organization. The more help we get the more chances of finding a cure we have.