My Nonprofit Reviews
Review for SADS (Sudden Arrhythmia Death Syndromes) Foundation, Salt Lake City, UT, USA
When my middle son, Cache, was born almost 6 years ago, we found out he had a rare genetic heart condition called Long QT syndrome. Of course the first thing we wanted was answers. That is when I stubble across the SADS Foundation’s web site. They had so much information and also mailed me information as well. They have been great supporters over the years; as we have found out my brother, his children, myself, and my children also have this scary syndrome. We are lucky to have found out, as many are not as blessed as us. SADS Foundation provides great support for all families affect by SADS conditions. As of last year, we celebrate Cache’s birthday by helping raise awareness and fundraising so they may help save others from tragedies and support others.
I've personally experienced the results of this organization in...
support to our family and others
If I had to make changes to this organization, I would...