SADS (Sudden Arrhythmia Death Syndromes) Foundation
February 17, 2011
In the early '90s, Long QT Syndrome took the lives of two of my uncles. Today my grandpa, aunt, dad and myself live full and normal lives. Though hardly anyone has heard the name, let alone fully understands the potential severity of the condition, Long QT and other SADS conditions are responsible for far too many deaths. On October 10, 2010, I went into cardiac arrest due to ventricular fibrillation. Within 15 seconds, my implanted defibrillator detected the rhythm and sent a corrective shock to my heart. It is safe to say that without an ICD and how far research has come, I probably wouldn't be here today. Although I have always understood the condition, it has never been so real to me, nor have I ever been quite as thankful for organizations such as the SADS Foundation, as I am now. The SADS Foundation is full of wonderful people who are striving to continue to spread awareness of SADS conditions. It reminds me that, even through hard times, we need to reach out to others and think outside ourselves.
I've personally experienced the results of this organization in...
The SADS Foundation has been extremely helpful to me and my family since it was founded. I have been able to be connected to other people in similar situations during harder times. They have also allowed me to help other spread awareness to other people. The interconnectivity of the organization is great.
Ways to make it better...
If I had to make changes to this organization, I would...
While the SADS Foundation is wonderful, I wish there were offices in other parts of the country. I would especially love to be able to be more involved with a branch of SADS in the Northwest.
Would you volunteer for this group again?
For the time you spent, how much of an impact did you feel your work or activity had?
Did the organization use your time wisely?
Would you recommend this group to a friend?
When was your last experience with this nonprofit?
Volunteer & I spread awareness of SADS conditions by distributing information and sharing my story. I am also in the process of planning a fundraiser for SADS.