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1 reviews

Review for VHL ALLIANCE, Boston, MA, USA

Rating: 5 stars  

I have a daughter who had a hemangioblastoma this past April. So far, she shows no other signs of VHL; and we are arranging the test to hopefully rule it out. However, this has caused us to become aware of this disease and to help in any way to find a cure! The VHL Alliance has been fabulous at providing information and support that we haven't been able to find elsewhere. They are encouraging to individuals facing this disease, and working hard to do what it takes to inform the public, and support finding an end to this disease. Thank you VHL Alliance!!

Role:  General Member of the Public & I'm not sure what this is really looking for.