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Charli H.

141 profile views
1 reviews

Review for Vasculitis Foundation, Kansas City, MO, USA

Rating: 5 stars  

Vasculitis Foundation has been a great source of information and support for me! I have a rare disease, a type of vasculitis called Wegener's Granulomatosis. I felt like I was the only person in the whole world who had it. But when I discovered and joined the VF, I was amazed to discover that there are others! I learned a lot about my illness from their website and the bi-monthly newsletters keep me up-to-date on fundraising, awareness raising, and the latest research. I am very thankful for the VF!

I've personally experienced the results of this organization in...

my daily life - related to learning about my illness, learning about how to advocate for myself with medical professionals, and feeling connected to a community.

If I had to make changes to this organization, I would...

I'm not sure I'd make any changes!

Role:  Client Served & I received information and support.