PATIENT ALLIANCE NEUROENDOCRINEIMMU DISORDERS ORG FOR RESECH & ADV INC
October 31, 2010
I am a disabled Desert STorm veteran with many of the chronic illnesses that PANDORA raises awareness for. I have had CFS and fibromyalgia since i was in Desert STorm. In 2005, i looked on the internet for an organization that advocates for sick Desert Storm vets. This one was the closest one i could find. They gave me advice and support by email and phone. I moved down to South Florida in 2007. BEfore my health took a downturn, i advocated for the foundation on Facebook and Twitter. Marly Silverman, the philanthropist and creator of this organization, also suffers from CFS. She works tirelessly and endlessly , going to meetings with doctors, government agencies, Congress, etc,. She organizes petitions, sets up fundraisers, anything you can think of, she does it.
I've personally experienced the results of this organization in...
They asked to use my story on a brochure they have coming out. It is such an honor and i know it will help many other veterans.
Ways to make it better...
If I had to make changes to this organization, I would...
not change anything except get more volunteers.
Volunteer & I advocated for our organization on Twitter. I steered other sick people and veterans to our website.