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Mary P.

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1 reviews

Review for PATIENT ALLIANCE NEUROENDOCRINEIMMU DISORDERS ORG FOR RESECH & ADV INC, Traverse City, MI, USA

Rating: 5 stars  

I am a disabled Desert STorm veteran with many of the chronic illnesses that PANDORA raises awareness for. I have had CFS and fibromyalgia since i was in Desert STorm. In 2005, i looked on the internet for an organization that advocates for sick Desert Storm vets. This one was the closest one i could find. They gave me advice and support by email and phone. I moved down to South Florida in 2007. BEfore my health took a downturn, i advocated for the foundation on Facebook and Twitter. Marly Silverman, the philanthropist and creator of this organization, also suffers from CFS. She works tirelessly and endlessly , going to meetings with doctors, government agencies, Congress, etc,. She organizes petitions, sets up fundraisers, anything you can think of, she does it.

Role:  Volunteer & I advocated for our organization on Twitter. I steered other sick people and veterans to our website.